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02-08-2008, 04:07 PM
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#21
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Senior Member
Join Date: Sep 2006
Location: East Central Illinois
Posts: 89
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Gricel, remind us to vote again tomorrow with the quick link, and many of us will. Your story is inspiring!
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02-08-2008, 04:29 PM
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#22
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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I did it Gricel ...and I will do it tomorrow again .....we need to win this run too.......through you !!!!lol good luck
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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02-08-2008, 04:42 PM
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#23
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Well, I tried to vote again and the site told me "You've already voted", oops!
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-08-2008, 04:46 PM
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#24
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Lolly,
It's a 24 hour thing. It all depends on when you voted yesterday. Thank you for trying again.
I'll be sure to give you ladies daily reminders. Thank you for putting up with me.
Love to all,
Ita (gricel)
www.a1amarathon.com/poll |
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02-08-2008, 05:10 PM
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#25
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I just voted again............................you're ahead of whoever was ahead of you yesteday. Yahoo. Keep voting people. Oh this if fun..........I feel like I'm in the marathon too.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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02-08-2008, 09:58 PM
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#26
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Grecil, You have my vote! Go for it! Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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02-09-2008, 06:11 AM
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#27
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Not giving up
Another day, another vote. Let's catch up everyone.
Gricel
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02-09-2008, 07:17 AM
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#28
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Great story, you got my vote. Good Luck!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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02-09-2008, 07:48 AM
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#29
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Senior Member
Join Date: Dec 2005
Location: Ontario, Canada
Posts: 48
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My Vote is in for today, and you have inspired me to get moving. This Xeloda makes me feel so tired, but if I ignore it, (like I do on dance days,) and get out in the elements, I may just forget about this fatique. Go, Ita, Go.
Diana.
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02-10-2008, 04:35 PM
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#30
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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I've fallen waayyy behind.
Let's give her a run for her money.
Vote, vote, vote
Gricel
www.a1amarathon.com/poll |
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02-11-2008, 11:15 AM
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#31
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Friendly reminder
Another day to vote!! I promise, I won't bother you guys too much after the 13th. I hate being a pest.
Thanks all,
Gricel
www.a1amarathon.com/poll |
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02-11-2008, 11:21 AM
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#32
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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I just voted again. Best of luck to you! Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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02-11-2008, 03:34 PM
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#33
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Vote Now -- And Often!!!
Hi Ita!
I voted for you! 3X!!!
HEY LADIES, AND GENTLEMEN -- OUR SISTER, ITA, NEEDS OUR HELP!!!
WHEN IS THE VOTING OVER???
I'M GOING ONCE A DAY AND VOTING! WATCHING THAT GRAPH LINE INCH ACROSS SLOWLY BUT SURELY!!!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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02-11-2008, 04:18 PM
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#34
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Hiya Andi,
Voting ends the 13th at noon. Think I got a chance? There's always a chance, right!
Get those votes in ladies!! Pass it on to your friends and if anyone has a myspace account post it on a forum there. I can't since it takes 7 days for me to be able to post since I just joined.
Love ya,
Ita (gricel)
www.a1amarathon.com/poll |
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02-11-2008, 04:50 PM
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#35
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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IMPORTANT: REMEMBER TO ... SCROLL DOWN TO JET BLUE TO VOTE, LADIES & GENTLEMAN.
ITA IS AT 27 TO SOMEONE ELSE 55.!! SHE NEEDS EVERY VOTE SHE CAN GET.
I JUST VOTED AGAIN. IT DIDN'T TELL ME I COULDN'T.
MAYBE I'LL DO IT HOURLY.
BIG HUGS!!!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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02-11-2008, 05:51 PM
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#36
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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Ita,
I am so proud of you, and I have voted. I too have gained 20 pounds. You have motivated me to look up the Weight Watchers' schedule and do something about it. I am a life time member, but I haven't been able to get focused. Tonight, I want to be where you are.
Congratulations!
Louise
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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02-11-2008, 07:57 PM
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#37
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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An idea
How about if we start a thread in the "keeping your mind off BC" in regards to our weekly diet and exercise? We can motivate one another and throw out ideas. I'm pretty good about the exercise part, it's the eating part that I fall apart on.
It will be like a free Weight Watchers meeting. We're always there for one another and check in once a week with our stats. It's harder to cheat when you have to report it to someone.
What do you think?
Gricel
www.a1amarathon.com/poll |
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02-12-2008, 08:10 AM
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#38
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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Our votes are creeping up!
She must have the whole military voting for her. Holy cannoli! I need someone with a YouTube video to get me to the top. If not, it's still ok. It's been a blast getting all of your support. We have until tomorrow to vote.
Ita (Gricel)
www.a1amarathon.com/poll |
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02-12-2008, 08:29 AM
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#39
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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I voted 3 times yesterday, probably a few hours
apart. I'll try this again today.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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02-12-2008, 02:13 PM
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#40
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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HEY, WARRIOR WOMEN!!!!
ARE WE GOING TO BE OUTDONE BY THE ARMY?????
I VOTED. AGAIN. AND AGAIN. I WILL WAIT AN HOUR... AND VOTE YET AGAIN. HELPING OUR SISTA!!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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