HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 05-10-2007, 02:04 PM   #1
Leslie's sister
Senior Member
 
Join Date: Aug 2006
Location: So California
Posts: 223
Eyelashes falling out again

Hi everyone!
I'm sorry I haven't posted in a while. Life has a way of keeping me way too busy. I have been reading and keeping up with everyone however. You all continue to inspire me DAILY.
Question- My sister finished Chemo Oct 25, 2006. She lost her eyelashes shortly thereafter. She is still on herceptin. The eyelashes and eyebrows started to grow back but now she is losing them again. Did anyone else loose their eyelashes and brows for a second time so far out from Chemo treatment?
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
Leslie's sister is offline   Reply With Quote
Old 05-10-2007, 02:09 PM   #2
KellyA
Senior Member
 
KellyA's Avatar
 
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
Hi there,

I did not have that problem, but have heard of some people experiencing that with Herceptin. I have also heard of some people losing thier fingernails. I learned during treatment that CVS (don't know if you have one) carries these FANTASTIC eyebrow stencils (it's an actual stencil that you fill in with a special powder) that work wonderfully. My eyebrows never looked so good and no one was able to tell the difference! The pack comes with several designs- classic, glamourous, delicate, etc. and you get to chose. I hope that this helps- just remember that this is only temporary and will get better.

Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

KellyA is offline   Reply With Quote
Old 05-10-2007, 02:49 PM   #3
skeetur
Senior Member
 
Join Date: Jan 2007
Posts: 72
My sister had chemo last year (no herceptin - she wasn't HER2+) and her lashes and eyebrows fell out a few weeks after her last chemo. Then they grew back and a couple of months later they were falling out again. Our theory is that since they grew back all at the same time the hair were on the same growth cycle so they started to fall out again all together. Hope that made sense! Eventually things will get back to a normal growth rhythm and they'll be a good mix of them at different stages of the growth process.

Kathy
__________________
12/01/2006 Initial Dx via stereotactic biopsy - DCIS, grade 3
12/27/2006 Lumpectomy w/ SNB: 2 foci of IDC (largest .3 cm, Grade 2, Notthingham score 6) amid large area of DCIS: No clear margins on the DCIS; re-excision recommended
ER+(55%)/PR+(60+)/HER2+ (2.8+ via IHC?)
01/23/2007 Re-excision Lumpectomy: No clear margins on the DCIS; mastectomy recommended
03/02/2007 Bilateral mastectomy w/ expander implant insertion
03/19/2007 Emergency surgery to fix broken blood vessel in left breast
03/30/2007 Met w/ oncologist; oncologist checking on HER2 status with pathologist and doing some consulting on my case - no treatments for now!
05/02/2007 Next appointment w/ oncologist
skeetur is offline   Reply With Quote
Old 05-10-2007, 04:14 PM   #4
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Hi Leslie's Sister


I, too, lost my eyelashes and eyebrows about 1 month AFTER taxol ended. They were thin but I still had them but then out they came. While on herceptin however I did not have that problem. Like others have mentioned to you though, there are lots of the gals who mention that happening to them on herceptin only.

I can imagine it is frustrating to her though. We sooooo want to get our bodies back to normal after that chemo etc. and it just seems to never happen. BUT the GOOD NEWS........................it does happen and WILL eventually.

God's Peace,

Mary Jo (P.S. - tell Leslie "hi" from me)
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 05-10-2007, 05:16 PM   #5
Yorkiegirl
Senior Member
 
Yorkiegirl's Avatar
 
Join Date: Oct 2005
Posts: 823
I lost my eye lashes and brows while on Chemo, once I started Herceptin they grew back, BUT I'll be darned if I didn't loose my eye lashes two more time's.

Now my lashes are very long.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
Yorkiegirl is offline   Reply With Quote
Old 05-10-2007, 06:11 PM   #6
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
I lost my eyelashes a second time too. Very disheartening but they grow back and stay then.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 05-10-2007, 09:01 PM   #7
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
At first I thought I had lost mine due to the TCH but I noticed even with "just" the herceptin alone I lost then about two more times. Plus when I *did* have eyelashes...they weren't much to write home about...they were SO thin. I played heck using mascara. So yes it is very normal for this to happen as you can see from all the replies. But this too will pass. Hang in there.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 05-11-2007, 03:38 PM   #8
Leslie's sister
Senior Member
 
Join Date: Aug 2006
Location: So California
Posts: 223
As Always Thank you

Thank you all for your quick responses. As always, you are a vast source of knowledge and comfort. I will give Leslie the info. It is always reassuring to know that others have experienced the same thing. Marejo, I will tell Leslie hello for you. Everyone keep up the fight. Please know, that I laugh with you, cry with you, and pray with you- even if I don't always post!
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
Leslie's sister is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:20 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter