HonCode

Go Back   HER2 Support Group Forums > Diet and Nutrition
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Diet and Nutrition By popular demand our nutritional message board. This board will be monitored by a Registered RD who is certified in oncology by the American Dietetic Association

Reply
 
Thread Tools Display Modes
Old 06-08-2014, 01:49 AM   #1
maouno
Senior Member
 
Join Date: Aug 2008
Posts: 73
after aromasin

Soon I've to stop Aromasin, which gave me some defend. I would like to take something instead and I'm thinking about Dr. Eliaz' Breastdefend supplements made of mushrooms and tumeric and modified Citruspectin together. I would take the minimum doses, because it's only for defend. I can skip then the Tumeric that I take already. What do you think about the idea, Tanya? And when I start it, do I've to stop every few months for a month? I eat already a lot of mushrooms, but I would be more quiet to do it this way, because it feels more safe. Maybe partly psychological. My onc. said, that all of this is only commercial.

Thanks for answering me, Maouno
__________________
Maouno
Called after a reindeer.
July 2008 after 12 years second time BC.
Other side, new case, lumpectomy 8 aug 2008: 1 cm, no nodes. Postmeno. Er+Pr-Her2+++
Oncotest high risk, Muga 51, port placed Dec. 2008, chemo CMF started 18 nov during 6 months , 6 rounds of two treatments. Finished rads April 2009, started Herceptin late: 10 Sept 2009. Muga 63.
Finished herceptin 5 sept 2010.Port taken out 19 oct 2010!!
maouno is offline   Reply With Quote
Old 06-20-2014, 06:10 AM   #2
TanyaRD
Senior Member
 
Join Date: Sep 2009
Posts: 358
Re: after aromasin

Maouno,
It is often frightening to lose the "safety net" of medications like Aromasin. There may be a place for some supplementation in addition to your diet. I would first ask, though, that you look at your diet for any areas of improvement. One thing we know in breast cancer is that diet appears to make a significant difference in prevention of recurrence. Diets low in saturated fat, moderate in healthy fats (like olive oil, nuts) and high in fruits and vegetables have been proven to lower recurrence risk up to 40% in some studies. Additionally, physical activity--working up to 30 min or more per day is beneficial. Achieving a healthy weight if needed is also known to be crucial in prevention. If you are doing well in all of these areas then I would consider adding a few supplements (omega 3s and vitamin D3). Tumeric shows some benefit due to its strong antioxident properties but may interact with some medications so it would be helpful to meet with a Registered Dietitian who could evaluate the benefits/risks of adding additional supplements.

Let your diet and activity empower you. These are your new safety net.

Best wishes,
__________________
TanyaRD

Registered Dietitian
Board Certified Specialist in Oncology Nutrition
TanyaRD is offline   Reply With Quote
Old 09-26-2014, 10:41 AM   #3
maouno
Senior Member
 
Join Date: Aug 2008
Posts: 73
Re: after aromasin

After the first time I had BC I got another kind of BC with Her2 at the other side and that must have been started after the Herceptin, after my defense. The first and the second fall had no connection. Only the fact that my immune system isn't strong. I think I did everything quite well with walking and diet, but despite. So now after the second time and just before I had to finish my Aromasin I went to an onc. with CAM and got supplements for boosting my immune system. And advises as granat apple juice, flax oil etc. I got Vit E and CoQ4 and mod. citrus pectin and turkish tail mushrooms and two things more. But it's me too much. I only try now the pectin, which gives me a spastic intestine(my feeble point is IBS C from my childhood and I've to take fiber. I did an inquiry about the best coriolus mushroom, it's complicated and expensive. Mushroomstudies.co gives advise.Mushroomscience coriolus didn't get such a high score as I thought. I don't feel happy, I think I've to take something but not everything and in a slowly way to get used. Doing nothing isn't good either in my case. Some advise maybe helpful!
__________________
Maouno
Called after a reindeer.
July 2008 after 12 years second time BC.
Other side, new case, lumpectomy 8 aug 2008: 1 cm, no nodes. Postmeno. Er+Pr-Her2+++
Oncotest high risk, Muga 51, port placed Dec. 2008, chemo CMF started 18 nov during 6 months , 6 rounds of two treatments. Finished rads April 2009, started Herceptin late: 10 Sept 2009. Muga 63.
Finished herceptin 5 sept 2010.Port taken out 19 oct 2010!!
maouno is offline   Reply With Quote
Old 09-26-2014, 10:58 AM   #4
TanyaRD
Senior Member
 
Join Date: Sep 2009
Posts: 358
Re: after aromasin

Maouno,
Does your cancer center offer the services of a Registered Dietitian, preferably one with oncology expertise? I think this would be a good idea as they could help you sort out symptoms and prioritize your best line of defense for taking care of yourself through lifestyle changes.
__________________
TanyaRD

Registered Dietitian
Board Certified Specialist in Oncology Nutrition
TanyaRD is offline   Reply With Quote
Old 09-28-2014, 12:45 PM   #5
maouno
Senior Member
 
Join Date: Aug 2008
Posts: 73
Re: after aromasin

Tanya, thanks for your advise.
Yes, there is a dietitian in the hospital's onc. department. If she can help I don't know, because these CAM supplements as mushrooms and mod.citrus-pectin are not in their basket. But I found that there're advices how to use them online. I went on with my research and I don't believe in the site 'mushroomstudies.co'. They only promote one kind of all the coriolus mushrooms. I think that nevertheless 'mushroomscience' is the best one, because they let the mushrooms grow slowly on wood and they get a hot water extraction. I'll go to a meditation retreat with DR Isaac Eliaz soon, I think it will be helpful too.. I've to have patience to find the right balance..
__________________
Maouno
Called after a reindeer.
July 2008 after 12 years second time BC.
Other side, new case, lumpectomy 8 aug 2008: 1 cm, no nodes. Postmeno. Er+Pr-Her2+++
Oncotest high risk, Muga 51, port placed Dec. 2008, chemo CMF started 18 nov during 6 months , 6 rounds of two treatments. Finished rads April 2009, started Herceptin late: 10 Sept 2009. Muga 63.
Finished herceptin 5 sept 2010.Port taken out 19 oct 2010!!
maouno is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:13 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter