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03-18-2006, 12:31 PM
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#1
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Eye Twitching
I've had some slight twitching in my left eye this week after I had my 4th Taxotere. I just had a brain scan done 2 weeks ago and it was clear, so I can't believe it's that. Has anyone had this experience. It's not a constant twitch, just every now and then but enough to bother me..sherryg683
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03-18-2006, 01:07 PM
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#2
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Yes, it's the Taxotere. No worry though. It goes away after your off the Taxotere. My eyes twitch like mad for a few days after getting the chemo. Drives me insane.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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03-18-2006, 02:44 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: uk
Posts: 33
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my eye started twitching whilst on taxotere and still does now ,occasionally ,5 months later ! glad to hear i m not the only one ! I wasnt sure if it was something sinister ,herceptin , zoladex, arimidex , left over taxotere ,or .... just a twitch !!
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03-18-2006, 03:43 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Ha...I thought it was just me. I have had my left eye also twitching. Drives me nuts. I rub it and try to get it to stop. Now that I had my long stay in the hospital and the Taxotere is out of my body....I haven't had the twitch at all. But I start again on the taxotere this Monday so I will let you know. But I am sure it is the taxotere.
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03-18-2006, 05:13 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Twitching
My eyes have done that off and on for many years, so when it comes, I don't get excited. It can twitch off and on for a week or so, then go away for many months. The last couple of days my cheek has been twitching. Who knows why, but I think it's harmless.
Barbara
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03-18-2006, 06:21 PM
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#6
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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I have had it off and on and I am not on Taxatere. I thought it was the Herceptin but its not all the time and I am on weekly Herceptin. hugs, Sandy
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03-18-2006, 07:23 PM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 312
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I had eye twitching quite frequently while on Taxotere. I had all the other problems too, shingles, legs and hand feelling like frost bite. Sty in eye that is still there. Teeth problems. Now just on Herceptin, most of the problems are gong away. Haven't had an eye twicth in a long while. Glad to read that it wasn't unusal.
Janet/FL
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03-19-2006, 09:37 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Raleigh, NC
Posts: 148
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Guess I'm not crazy after all! My eyelids twitch, arm and leg muscles twitch. Have been off Taxol for two months and feel it is the Herceptin in my case.
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03-19-2006, 09:24 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Wierd... just my left eye twitched constantly for a few weeks after taxol was completed, but I have had an occasional twitch before. Janet about the teeth? I had my gums recede in one spot during taxol. Needed a graft. The docs are saying they don't think it's chemo related, but I have never seen such a rapid deterioration in my mouth before. BB
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03-20-2006, 03:49 AM
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#10
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Guest
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Dental issues are a common listed side effect of chemos.
Incidently and interestingly omega three intake is reported to help with general gum disease - and it links in more general terms to heart health etc. More communality with inflamatory conditions etc.
Sorry to hear about your plight dental issues on top of everything else cannot be fun.
RB
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03-20-2006, 12:25 PM
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#11
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Senior Member
Join Date: Mar 2006
Location: Northern Va
Posts: 84
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I just finished my forth cycle of Taxotere and my eyes have been twitching for the past week. I didn't really think anything of it. So it sounds like it is the taxotere.
__________________
Cheryl
Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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03-21-2006, 03:54 PM
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#12
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Junior Member
Join Date: Sep 2005
Location: St. Louis, MO
Posts: 1
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My eye twitch increased towards the end of my Herceptin. I finished with Herceptin at the begining of February and my eye twitching is now gone.
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04-04-2006, 01:56 PM
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#13
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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STILL have this ...
Hi -
I did not reply to this thread earlier, but am still bothered by the twitching/fluttering. I have been off chemos for almost 4 years now, but have the 3-weekly Herceptin.
I usually have this problem with my eye at night or wake up in the middle of the night with the twitching/fluttering in the inner corner of my right eye. If I lay a finger on that spot it will stop.
Like some of you said, it comes and goes. Not a painful thing or bother in any other way - just STRANGE!
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12-11-2009, 02:26 PM
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#14
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Eye Twitching
Well, I'm another "eye twitcher". Just got off the phone with my onc nurse before I found this conversation here. She echoes the same thoughts already voiced here. I just finished Taxol three weeks ago and am on Herceptin only now. She attributes "the twitch" to Taxol and expects it to go away in the next couple of weeks or to call her back if it doesn't. (next onc visit not until 3months from now).
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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12-11-2009, 04:59 PM
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#15
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: Eye Twitching
I had twitching in my left eye as well. It drove me absolutely crazy. I wasn't sure what drug was causing it, but I've been off of Carboplatin and Taxotere for nearly 2 months now, and the last time I had problems with the twitching was about 3 weeks ago. Based on the responses here, I bet it was the Taxotere.
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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12-12-2009, 10:42 AM
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#16
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Eye Twitching
I just noticed this same thing over the past month. My was in the right eye now it's switched to the left. Like you all it comes and goes. My 4th chemo is this Wednesday.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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12-13-2009, 10:45 PM
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#17
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: Eye Twitching
I did have this and was also on taxotere--however, I was low in calcium and magnesium blood counts--and once I got those up--the twitching stopped--might be something to check out also---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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12-13-2009, 11:34 PM
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#18
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Eye Twitching
I have that too. Seriously. I guess you can get it just from reading about chemo.
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12-14-2009, 05:00 AM
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#19
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Eye Twitching
Rich, lol
I have the eye twitching now and then.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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01-07-2010, 10:55 AM
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#20
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Junior Member
Join Date: Jan 2010
Location: Wilmington NC
Posts: 1
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Re: Eye Twitching
OMG! Im in the middle of my 5th TCH cycle and my eyes are twiching like mad. Upper and Lower lids both eyes just firing off at random. I read all the threads, but didnt see a one regarding how to make it stop! Any ideas?
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