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Old 01-09-2007, 09:13 PM   #1
Val Pfeiffer
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Article I wrote on Integrative Medicine

hi everyone!
Stephanie wrote me and asked me how my article was coming along--it is complete and was published this month in the Scene (the same local magazine in which my last story on breast cancer was published). Here is the link:

http://www.valleyscene.com/toyourhealth.html

Thanks for all the help and support you guys give me for my writing. I wish I had time to do it more often :-)

Val
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Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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Old 01-09-2007, 11:07 PM   #2
StephN
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Smile Interesting article

Hi Val -
Well, you did it again, woman!
And thanks for putting in the difference between "Alternative" and "Integrative" as this is really a new direction for main stream cancer center such as mine. More of the integrative concept is being added in the offerings to patients.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 01-10-2007, 11:53 AM   #3
AlaskaAngel
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Thumbs up Gradual progress

Nice to see among us yet another person who is so competent in connecting and communicating!

The growing awareness of credibility of integrative medicine I think is also happening because there are more and more highly qualified students and practitioners in the west whose origins are in cultures that are aware of and value the knowledge from the past.

At the major cancer center where I am treated in Seattle, in the last 5 years alone the incorporation of integrative medicine has grown a great deal. I notice the change in emphasis all the more because I travel there fairly infrequently.

Thanks, Val.

AlaskaAngel
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Old 01-10-2007, 05:51 PM   #4
CLTann
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I am taking liberty of sending a copy of Val's article to my brother, who is a practician medical doctor with conventional western medical degree as well as the integrative medicine at Tucson, AZ. I often seek advice from him for various medical problems. My dietary intakes are very much influenced by his inputs.

Thanks for your very informative writing.
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Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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Old 01-10-2007, 08:51 PM   #5
Heart Sutra
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Deleted by author.
p m' d instead
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---Kevin and Sue---

Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year

"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
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Old 01-10-2007, 10:48 PM   #6
AlaskaAngel
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integrative medicine

Thank you for carefully acknowledging personal authorship of your thoughts here, Kevin.

The perspective and experience of a person who actually has been told they have a potentially deadly disease is truly different than the perspective of even the most intensely involved and well-intentioned family members.

<OMost of those who are here have had to make the hard personal choices involved with considering the standard western toxic therapies. These choices have to be made knowing that there is no guarantee of success, and in fact with some awareness that these therapies have limited success, particularly in the case of those with metastasis.

Skepticism applies as well to a lot of the "standard" western practices commonly used in the past that have been abandoned in favor of better and better treatments over time. Please don't confuse the effort toward disciplined and documented integrative medicine with quackery.

The narratives of some of the people here who have personally struggled at great cost through toxic therapies week after week are heartbreaking. It is not foolish to be willing to try to encourage the integration of western medicine with disciplined research involving less toxic therapies from other cultures, ancient or otherwise. Quality of life is a very real part of the equation.

<OCordially,

<OAlaskaAngel<O
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Old 01-11-2007, 02:21 PM   #7
Val Pfeiffer
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As you may be able to infer from reading my article, I do not support abandoning Western medicine in favor of 100% alternative. In my opinion, integrated medicine is strongly encouraged.

I am sure that the Scene would love to get some "letters to the editor" regarding this topic, so if any of you would like to do that in response to this story, I think that would be appropriate and appreciated :-)

Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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