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07-04-2009, 09:17 PM
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#1
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Still here!
I've been so busy since my son started summer vacation and whatnot that I've not been visiting the site for a while. In case there's curiosity about my absence I wanted to let you know...I'm fine and I still love you and send good wishes and healing energy out to you all every day. I have read a few posts once in a while, but just haven't taken the time to post any.
From the look of the most recent posts I've missed a LOT! Apparently there have been some pretty controversial comments and emotional responses. I haven't quite located them all, yet. I have a lot of reading to do. Just so you all know, I wasn't missing because of any hard feelings, and you can all say whatever the heck your heart desires and I'll take it or leave it and make no judgments of ya for it. If you got something to get off your chest then let it fly (even you, Bill)  ! I don't take anything personal...even if it's about me. What's true for you is true for you, and if it's not true for me then so be it. Likewise, most of the things I say are not meant to be taken too seriously. I have a strange little mind and see things very differently than a lot of people, and I don't expect everyone to agree or understand.
I guess I'd have to say part of the reason for my absence is the fact that, I'm reaching a point where I'm mostly healed up from chemo/surgery/radiation, and I feel so good to be up and moving and the sun is shining and there's so much work to catch up on after this my most challenging year of my entire life...I just don't want to spend much time at the computer.
Know this though, I am always holding all my HER2 sisters and bros in my heart and fighting the fight and living the life for you all as much as for myself. All for one and one for all has been my motto through this struggle. I want to beat this cancer in honor of all those angels who have fought it before me, and all those suffering from it, now. I think we owe it to them to live our best lives and celebrate and appreciate what we've got while we've got it. Sometimes I just don't know what else I can do. I am here for any of you if there is something I can do to help...hopefully my words are usually more of a help than a hindrance!
Anyway, good to be back. You're the best.
Love, Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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07-04-2009, 09:48 PM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Celeste,
Welcome back and congratulations on your 'healing well'. I love the quote of 'all for one, and one for all'. That made us not only cancer 'fighters', but noble 'knights'. [Does that make Joe (or Christine)'King Arthur'? (Sorry, just can't help it  ]
ps. Unus pro omnibus, omnes pro uno is a Latin phrase that means " One for all, all for one" in English. It is known as being the motto of Alexandre Dumas' Three Musketeers and is also the traditional motto of Switzerland.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 07-04-2009 at 09:52 PM..
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07-04-2009, 09:55 PM
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#3
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Celeste,
Thank you for the update. It is good to hear that you are feeling well and moving ahead. Once in a while let us know how you are and do not get lost for too long. Best wishes,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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07-04-2009, 09:55 PM
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#4
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Thank you Jackie07. Always good to know the background info of your own motto! I've met Joe and Christine and I'm not against crowning them royalty of our round table!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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07-05-2009, 01:46 AM
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#5
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Well said, Celeste and glad you are doing so well.
The quote, I think, is from the Three Musketeers.
See: Wikipedia:
The Three Musketeers (Les Trois Mousquetaires) is a novel by Alexandre Dumas, père. It recounts the adventures of a young man named d'Artagnan after he leaves home to become a guard of the musketeers. D'Artagnan is not one of the musketeers of the title; those are his friends Athos, Porthos, and Aramis—inseparable friends who live by the motto "all for one, one for all" ("tous pour un, un pour tous").[1]
The story of d'Artagnan is continued in Twenty Years After and The Vicomte de Bragelonne. Those three novels by Dumas are together known as the d'Artagnan Romances.
The Three Musketeers was first published in serial form in the magazine Le Siècle between March and July 1844.
So that would make Joe d'Artagnan, a brave soldier. And Christine his Constance, a lovely and brave maiden.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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07-05-2009, 05:29 AM
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#6
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Celeste,
Good to "see" you again. You sound great. I'm happy about that. Keep on livin' life honey.
You summed up how you feel about our site well. The best really. Thanks for your insight. I especially liked your statement which said "what's true for you is true for you and if it's not true for me than let it be." I liked that.
Well Celeste, what's true for me is that I'm encouraged by everyone here. I don't always agree with everyone here but that surely wouldn't be normal if I did. We are all individuals with different "systems" that make us tick. Maybe we're all a bit like a "cuckoo" clock - hahahahahahahahahahahahahahaha!
Cuckoo - cuckoo
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-06-2009, 11:59 AM
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#7
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Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
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Hi Celeste, Check your PM's.
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
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07-07-2009, 11:21 PM
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#8
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Hey everybody, it's almost 12 o'clock midnight, let's get ready to go CUCKOO, CUCKOO!!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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07-07-2009, 11:29 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Celeste, Ok...I'll be watching the clock...won't be long now...we can go CUCKOO CUCKOO together...anyone going to join us. LOL
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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07-07-2009, 11:32 PM
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#10
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hello My 'lil Dancing Queen, sounds like you have been keeping very busy. I have missed you and have become so happy to hear how you are appreciating life. Now that you are feeling much better, how does school fit in? I hope this is still in the reservoirs of your mind. I hear the true love in your voice when you speak of it. So Celeste, remember I love you right back and I am keeping those positive thoughts and prayers flowing your way. So very nice to hear from you Dear Friend.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-08-2009, 06:07 AM
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#11
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Freyja
We missed you...glad to know you are doing so well and moving forward!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-08-2009, 10:35 AM
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#12
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Thanks for remembering Believe. Yes, dancing is my true love. I AM going back to school in September. I'm registered for full time classes on full scholarship! I'm so excited to go "back to school" shopping along with my little first grader! Also, if I can figure out how to pay for it, I'm going to spend a month in Uraguay in the winter for teacher certification in my friend's technique of teaching dance improvisation to people of ALL physical abilities. It's called Danceability.
Thank you all for the warm re-welcomes! I missed you, too. I'm glad to be busy, though.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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07-10-2009, 12:51 PM
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#13
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Celeste,
Glad to see you post. Sounds like you are doing well. I asked Stephanie if she had heard from you when I visited Seattle at the end of June.
You go girl.
Amelia
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07-12-2009, 06:16 AM
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#14
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Hey Celeste ~ you go girl! Keep enjoying your wonderful life 
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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