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Re: Suspicion of many scattered brain mets
Unfortunately no good news here. Brain mets confirmed. Two 5 mm ones in the cerebellum (still horseback riding, though, which I find kind of amazing), and apparently a scattering of "points that light up" "everywhere". Meeting with onc on Wednesday. From my perspective first choice is IT Herceptin - wondering whetehr that is sometimes combined with stereotactic radiosurgery (on the two bigger ones?).
Second choice T-DM1 + Perjeta. Or possibly try and get into the trial (or compassionate access?) for ONT-380.
CANCER SUCKS.
I need another 10 years with my daughter. I cannot go yet.
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Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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