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Old 03-19-2006, 06:57 AM   #21
tousled1
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Location: Acworth, GA
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I just had my first of 4 rounds of taxatore (decadron pre-med) on Wednesday. Thursday morning I felt pretty good but since Thursday evening all I have been able to do is get up and go to the bathroom and then back to bed. I have never been so exhausted in my entire life! Besides the extreme fatigue every bone in my body hurts too. I have 3 more rounds to go and hopefully my body will be able to adjust somewhat to the drug so that I don't feel completely incacapitated.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 03-25-2006, 03:12 PM   #22
SherriT
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Well, I managed to make it through my first "hit" of Herceptin/Carpoplatin/Docetaxel without too much problem. I was so worked up about what was going to happen during the first treatment and now, in hindsight, it was merely for nothing. I experienced no side effects during treatment, thankfully.

I definitely do not like the Dexamethasone I've decided. They put me on a double-dose the day before, day of and day after and I just hate that stuff. I think it makes me feel the worst of all. Anyone have any ideas whether it's the Dexamathasone that gives you that "spoonful of flour" feeling in your mouth? Man I cannot stand that either. No amount of water seems to counteract it and I don't really like to drink anything too "sweet" to kill the taste--as it really comes back with an even worse taste afterwards.

Other than that, it hasn't been too bad, so far anyways. I am feeling tired but nothing too over the top yet. I did manage to sleep until almost 10:00 this morning though, which I must have needed because I can't remember the last time I did that, LOL!

Take care everyone and thanks for your responses.

SherriT
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Old 03-25-2006, 07:35 PM   #23
Chelee
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I am so happy to hear you got through your first chemo much better then you expected. I know that worry and fear of your "first" chemo session. Mine wasn't that long ago. Boy was I stressing over it. But like you....mine went well. My infusion nurse said I got a A+. lol I was so worried about side affects or a nasty reaction...but all and all...it wasn't bad at all. The worse part for the FIRST infusion was the FIVE hours in the chair. Long day! Plus that darned pre-med Decadron. Misrable stuff! Keeps you feeling jittery and WIDE awake. So hard to sleep when your on it. Plus the Decadron cause my face to get SUPER RED and actually HOT to touch. My oncologist said he never saw anyones face actually FEEL hot to touch. The red flushing part is semi normal.

I don't know about that spoonful of flour feeling in your mouth...but I am NOT sure if that is from the decadron or the other chemo drugs you had??? I know I lose most my taste buds after chemo. Really don't think its the decadron? Things taste funny and some things even smell darned right awful. Like I LOVE the smell of coffee...but after chemo...oh gag me! I know I get a metal kind of taste in my mouth...its awful. But it gets better after the first week. So hang in there.

But anyway...glad you got through your first chemo ok. Now you won't stress as much over the next since you know what to expect. We have all been where you were. Its really scary not knowing what to expect the first time. I found it darn well overwhelming!
Your really lucky you could sleep...especially after the decadron. I know I play heck sleeping after chemo due to the decadron. I am SO TIRED...but I CAN'T sleep no matter how hard I try. Its frustrating.

Thanks for letting us know how it went. Keep posting.
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