HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-15-2008, 02:16 PM   #1
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Mjo

MJo

In answer to your question - if you don't do the trial you will be able to take an AI another 5 years. If your onc won't let you and you don't want to change onc's, then you are no better off than if you were in the control arm of the trial. However, you might find an onc who will let you stay on another 5 years. If you are in the trial and get on a control arm, you will have no choices to make. Why don't you ask your onc what his opinion of a second 5 yrs is and if he plans to keep you on something. If he says he is planning on it, then don't do the trial. You can then choose what you want to do then (as you don't have to stay on if you don't want to).
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 03-16-2008, 03:13 AM   #2
nancy dip
Senior Member
 
Join Date: Jun 2007
Posts: 49
Mjo

I have wondered about this. We all seem to be given the standard dose, no matter our body weight when other drugs are so carefully measured.
Also, no account is taken of our age at starting AIs ie 55 or65 which surely has an effect on our body's natural estrogen.
Personally, AIs have made me very stiff but I think its worth it to try to avoid the blip (?7yrs) of recurrences for ER+s
Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
nancy dip is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:09 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter