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01-11-2008, 11:15 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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under 40 when dx?
In light of Katie's & Krista's thread, I am curious how many others here on the board were under the age of 40 when they were dx and what our pathologies look like collectively. If you were under 40 when dx, can you please respond with your age of dx and your pathology info if you don't have it in your signature?
Thanks.
Hugs,
Patricia
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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01-11-2008, 11:35 PM
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#2
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Senior Member
Join Date: Jun 2006
Posts: 153
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I was 35 at diagnosis, er/pr- Her2+, grade 2
I got "lucky" with a 7mm tumor and negative nodes.
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01-12-2008, 03:30 AM
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#3
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Hi there!
37 at diagnosis, ER/PR -, Her2+++, grade 3
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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01-12-2008, 06:11 AM
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#4
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Senior Member
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
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Hi, I was 37 when I was diagnosed 3/21/05. 4.5 cm 2+ nodes stage 2b er/pr- grade 3, Her2+.
Laurie
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01-12-2008, 06:32 AM
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#5
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Good morning. I turned 39 not too long before my diagnosis.
Mar
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Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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01-12-2008, 08:11 AM
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#6
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Senior Member
Join Date: Aug 2006
Posts: 492
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I was 38 at dx. er+ pr+ Her2+
Curious to know if some of you all dx in your 30's with hormone + bc took oral contraceptives for a long period (me yes, 10 years) , if your first child was after age 30 (me yes at 32) and how long after last delivery were you diagnosed (me 2.5 years). Sorry to barge in on your thread Patricia!!
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Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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01-12-2008, 09:31 AM
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#7
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Member
Join Date: Jan 2008
Posts: 10
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am i the baby of this thread? (this is the worst thing to be the youngest at, uggh!)
i was diagnosed at 27, i am BRCA negative, and have no family history.
my stats are in my signature.
xo
katie
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Katie
dx 11/15/06 @ 27 years old (now 29)
1.7cm IDC with extensive DCIS; no nodes
ER-/PR+(10%)/Her2+++
grade 3 (9/9), Ki-67 85%
DD AC/DD T, herceptin, tamoxifen
bilateral mastectomy w/ saline impants
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01-12-2008, 09:54 AM
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#8
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Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
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I was 36 years old. Her2+++ er/pr+ 8/16 nodes+, 1 met to the liver. Stage IV. Sally
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01-12-2008, 11:12 AM
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#9
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Member
Join Date: Aug 2006
Posts: 9
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I was diagnosed at 32. My info is in my signature.
Karen
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Diagnosed 7/05 at age 32
IDC - 1.5cm tumor, Grade 3
ER+PR-, HER2 3+
Stage 1 with Vascular Invasion
Negative Sentinel Node
4 AC, 12 weekly Taxol with Herceptin
1 year total Herceptin
SOFT Trial - Ovarian Suppression with Exemestane
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01-12-2008, 11:26 AM
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#10
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Senior Member
Join Date: Sep 2005
Posts: 556
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I was 37 and pregnant when I was diagnosed.
Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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01-12-2008, 11:42 AM
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#11
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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I was 35 years old.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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01-12-2008, 12:05 PM
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#12
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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I was diagnosed at 36 yrs. Stage IIIB, 4 pos. nodes, one skin met, er/pr-, her2+++.
I had both of my children before age 30, breast fed both. I was diagnosed in August 05.
Lexi
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01-12-2008, 12:49 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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I was 36 at diagnosis (on my birthday). The rest of my info is in my signature--
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Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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01-12-2008, 02:13 PM
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#14
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Senior Member
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
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I was 37 when I was diagnosed. Triple positive. Details are in my signature.
I haven't had any children yet and did not take hormonal birith controls pills for any length of time. Birth control pills always made me fat and depressed so I couldn't really tolerate them.
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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01-12-2008, 03:27 PM
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#15
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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I was 35/ almost 36.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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01-12-2008, 06:18 PM
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#16
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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I was 37. One child before the age of 30 and the other child at the age of 32. No family history.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-12-2008, 07:22 PM
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#17
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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I was 37 year old ...5 months after my son birth was diag.no family history
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Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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01-12-2008, 08:57 PM
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#18
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Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
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I was 38
when dx see signature
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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01-12-2008, 09:27 PM
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#19
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I was 36 when diagnosed with stage IV Inflammatory bc. I had 24 nodes removed and 5 were positive. I am and continue to be Her2+++, ER/PR+.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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01-13-2008, 12:20 PM
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#20
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Senior Member
Join Date: May 2006
Location: San Marcos, CA
Posts: 48
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My mom is the HER2 positive one in the family, but I thought I'd chime in since I was 38 at my diagnosis. ER/PR +, HER2 neg, stats in signature.
I was on birth control pills for 17 years, with breaks for my two children. I had my first child at age 30. I was diagnosed five years after delivery of my second child, but the tumor was probably there for quite some time (2.7 cm, mitotic rate of 1, grade 2, so not fast growing).
__________________
Mother/daughter bc patients (should have signed up for spa treatments instead of chemo! Who knew?)
Mom:
dx 2002 age 62
Stage IIIB, triple positive
FACx6, tamoxifen
2004 Stage IV, started Herceptin
mets to pleura, lungs, bone
tried Arimedex, Faslodex, Zometa, Navelbine, Taxol, Taxotere, Gemzar, Carboplatin, Abraxane, Xeloda
June 2007 new mets to nodes and pericardiam
Switched from Xeloda/Herceptin to Xeloda/Tykerb
September 2007 Failed X/T. Switched back to Xeloda/Herceptin, added Gemzar
Jan 2008 Taxol/Tykerb
Feb 2008 Tykerb as a single agent
Me:
dx 2007 age 38
Stage IIA pleomorphic ILC ER/PR + HER2 -
FACx6, tamoxifen
Mom to 2, ages 6 and 9
Trying to find a new hobby besides going to the cancer center.
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