| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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05-06-2007, 06:24 AM
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#1
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Losing Belly Fat
Everyone's body is different. I gained a lot of weight during treatment, especially in the belly. My last Herceptin was in November 2006. My diet hasn't changed any. In fact, I have an appointment with the nutritionist at the cancer center to help me learn to eat better. But I am losing belly fat without trying. I can actually pull in my stomach now. There probably is no proof on this, but I think some of us gain weight around the middle with Herceptin or maybe retain water with the treatment. So take heart. When I looked at my body profile sideways in the mirror during treatment, my stomach bulged big time. I looked at myself yesterday and I could actually pull in my gut. It doesn't happen to everyone, but it happened to me.
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MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-06-2007, 07:20 AM
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#2
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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I have just stopped herceptin for the second time (this time I was taking it weekly) and have already noticed a change. My weight is only a couple of pounds different, but I can sure tell the difference the way clothes fit.
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Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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05-06-2007, 07:52 AM
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#3
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Senior Member
Join Date: Oct 2005
Posts: 215
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losing belly fat
I also gained weight on treatment. Not so much in the belly , but in the abdomen, and having only one boob it makes it look even bigger. rather frustrating when trying to buy somethig nice to wear to my granddaughters wedding. Jeanette
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05-10-2007, 01:23 PM
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#4
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Senior Member
Join Date: Nov 2006
Location: London, England
Posts: 96
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Great to hear I'm not the only one finding skirts and jeans a lot tighter but not seeming to have actually put much more weight on. I love this site! I'm on number 11 of 18 Herceptins and you've given me something else to look forward to once it finishes.
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Caroline
Diag. March 10th 2006, aged 46.
Invasive ductal carcinoma, 2cm + multifocal. Stage 2, Grade 3
HER2+++, ER+/PR+
Right mast. May 2006. 6 of 20 nodes positive
FEC x 4, taxotere x 4; port implanted after 6 cycles
Rads x 25
1 year of Herceptin ended Nov 07.
Arimidex 5 years
Considering reconstruction, maybe soon...
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05-11-2007, 07:33 PM
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#5
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Senior Member
Join Date: Feb 2007
Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
Posts: 36
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I to have gained a lot of belly fat, I would love to get rid of it .I have gone up two sizes already and I refuse to go shopping for new things.I am so happy to hear that your belly fat went down maybe mine will to when I get off the treatments.
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DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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05-14-2007, 08:36 AM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I really thing they should pu this on Herceptin as a side effect. I have put on 23 pounds over the past 3 1/2 year....no diet change, just clothing size!!! If i am ever taken off, I hope the belly fat goes away!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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