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Old 05-02-2007, 01:52 PM   #1
Marie G
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Join Date: Mar 2007
Location: State Motto='HOPE' Rhode Island
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Question Forgot to ask you all

Anyone having hearing problems from the Herceptin?? The chemo nurses I deal with and the Cancer Society has planted this question in our heads. I have noticed that my poor husband is more deaf than ever and they all believe it is the Hercetin. (We rarely ever have fought since we met and I always tease him that it is pointless, he cannot hear me anyway!!Ha, ha) In all seriousness, I feel so bad for the life he fails to hear, but he is still here!!! Love and hugs to All>>Marie G
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Old 05-02-2007, 02:00 PM   #2
Sheila
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Location: Morris, IL
Posts: 3,507
Marie

I had to laugh...my husband always tells me he's going to get me a hearing aid....funny though, he is the only one I have trouble hearing...and so does everyone he talks to...he talks very soft and fast....when ever he tells me I'm deaf, I respond, no I'm not, I'm just not listening!!!!
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 05-02-2007, 02:21 PM   #3
LindaC
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Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
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Marie,
My husband tells me all the time that I have selective hearing.
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DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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Old 05-02-2007, 02:25 PM   #4
Hopeful
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Marie,

I had no hearing problems until bc treatment. I did not have chemo, but started Herceptin with my radiation treatments last August. On Oct 1, I added Femara. By mid-November, I had terrible tinnitus. I tend to blame the tinnitus on the hormonal treatment, as I have done some research on it and hormones (estrogen) can affect hearing. I changed to Arimidex in Dec., and the tinnitus got somewhat better, but I still have it. I don't know if it is related to the combination of Herceptin with the AI or just the AI. I am looking forward to concluding my year of Herceptin to see if that will improve the condition any.

Best of luck to you and your husband,

Hopeful
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