 |
04-28-2007, 05:07 AM
|
#1
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
CONGRATULATIONS Robin P ~~~~~
Robin
Congratulations (2 days early) on the 5 year mark.....what a day to celebrate. April 30 is a big milestone for you....may you be blessed with many many more. Celebrate....this is better than a birthday, and great news not only for you, but all of us on this board. We cherish each others milestones!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
04-28-2007, 08:08 AM
|
#2
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Robin, celebrate in style for you and for all of us working to get to that fantastic 5 year mark! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
04-28-2007, 08:52 AM
|
#3
|
|
Senior Member
Join Date: Nov 2005
Posts: 943
|
Thanks!
Thank you so very much for the congratulations and well wishes! Five years ago, I worried if I would ever see this day. I am so very thankful that I have made the five-year mark and that I am going strong. I hope my five-year survival will encourage others on the boards, especially since I only had CMF and delayed Herceptin for 9 weeks of treatment.<o></o>
I would like to thank my friends here on the boards for all your support and encouragement. You have helped me to survive emotionally with my down days and physically by helping me to make the best treatment choices along the way. You are my precious heroes, a special lot of women, beating and surviving breast cancer along with me. I am so VERY thankful that I have had the privilege of being in your company for the past few years. Thanks again for all of your help.
P.S. Sheila, congratulations on your five-year mark too, and I pray you have many more as well!
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
|
|
|
|
|
04-28-2007, 10:38 AM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
|
From one member of the Lost Regiment of HER2s to Another
Hey Robin,
Delighted to see you on your way past the 5 year mark! Thanks especially for being someone who shared so much helpful info with others in regard to pushing for more detailed analysis of tumors in making decisions for further treatment -- and for providing continuity and historical connection for newcomers here as time goes by...
AlaskaAngel
5 years out from end of treatment coming up on 11/8/07....
|
|
|
|
|
04-28-2007, 11:15 AM
|
#5
|
|
Senior Member
Join Date: Jan 2007
Posts: 138
|
Congratulations to Robin, Sheila and AA.
Karen
|
|
|
|
|
04-28-2007, 12:38 PM
|
#6
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Congrats Robin on reaching the 5 year mark. Gives hope to newbies like me ( 6 months out, still in the chemo stage) - hoping for many more years out for you.
All the best
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
04-28-2007, 02:04 PM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Woo hoo Robin. This is a HUGE milestone to pass. You are one special lady and I celebrate this one with you. You have been such an important part of our Her2 family and have found and shared so much information with us.
Have a great day.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
04-28-2007, 06:00 PM
|
#8
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Dear Robin,
How wonderful to hear of your 5 year mark. A big milestone.
I wish you a dozen more of 5 year marks.
Enjoy your day and do somthing very special.
Many Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
04-28-2007, 08:44 PM
|
#9
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
Congrats Robin,
Thank you. I have bookmarked your posts from days of yore. I hope you have continued success in staying ned. BB
|
|
|
|
|
04-29-2007, 10:31 AM
|
#10
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Robin best wishes and congrats from me too.....and also Sheila and Alaske Angel and all you her 2 er's coming up to the magical 5 year mark!!!
here's to the next five 
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
04-29-2007, 11:09 AM
|
#11
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Hi Robin,
Congratulations to you on your 5 year mark. So so so so so special. Enjoy YOUR day to the fullest.
Love and the Lord's continued blessings,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
04-30-2007, 10:04 AM
|
#12
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
OK ROBIN, now today is the real day to celebrate!!!! I was afraid I would forget as I had my treatment today in Chicago....thats why I posted congrats early. Now Really Celebrate...and many more to you!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
05-01-2007, 04:07 PM
|
#13
|
|
Senior Member
Join Date: Feb 2007
Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
Posts: 36
|
Congradulations Robin you make me feel a whole lot better.Celebrate!!
__________________
DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
|
|
|
|
|
05-01-2007, 04:12 PM
|
#14
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Congratulations Robin! You've been a fearless advocate for more accurate and specific testing methods, and we thank you.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:43 AM.
|
Linear Mode
