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Old 04-26-2007, 05:11 AM   #1
Joe
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April 22 Teleconference Transcript

Our teleconference on Legal Issues was a great sucess. Our thanks go to Ms. Joanna Morales for her very informative presentation.

For those who missed it, listen to the transcript:

www.her2support.org/legal.mp3

If you wish to contact the Cancer Legal Resource Center:

Joanna L. Morales, Esq.
Director, Cancer Legal Resource Center
Disability Rights Legal Center
919 Albany Street
Los Angeles, CA 90015

(213) 736-8364 Direct #
(213) 736-1455 Main Line #
(213) 736-8310 TDD #
(213) 736-1428 Fax #
Joanna.Morales@lls.edu
www.disabilityrightslegalcenter.org


Regards
Joe
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Old 04-26-2007, 01:55 PM   #2
LindaC
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Thumbs up Good Info!

Dear Joe,
Thank you for the info I found it very helpful.Sorry I couldn't make the conference.
LindaC
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DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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Old 05-06-2007, 10:24 PM   #3
Chelee
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Joe, Thanks a million for posting that as I was very disappointed that I missed it. I really appreciate you taking the time to keep us all so well informed. Thanks again!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 03-01-2009, 06:45 PM   #4
fauxgypsy
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I just thought I would bump this up. It is very relevant and I am sure that I am not the only one who might need it.

Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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