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Old 05-25-2013, 04:30 PM   #1
Danielle
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Posts: 17
Exclamation Christine has passed away

I just wanted to take the time to let you all know my mom, the founder of this group, and your sister through this fight has just recently passed away. I was able to read her all of the messages you all sent in her final hours, and I stressed to her that what she was able to accomplish in her time was so unique and so inspiring. I made sure to remind her of all the lives she's saved and all of the women she's empowered, right down to my sister and me.

If any of you are able to make it out here, I'd love to see as many HER2 faces as possible at her funeral service. I do know the visitation will be at El Camino Memorial at 360 Melrose Avenue, Encinitas, CA 92024 and her funeral will more than likely be held nearby the site of her burial at San Luis Rey Mission in Oceanside.

If for whatever reason you cannot make it and still want to offer something in the way of condolences, my sister and I would prefer donations to the HER2 Support Group in lieu of flowers. You can make a donation in the upper right hand corner of this screen, or if you would prefer, you can also mail a check to the HER2 Support address of 6973 Mimosa Drive, Carlsbad, CA 92011.

Within this organization, both of my parents were able to create a legacy that was so unique and so compassionate, and I want to take this time to thank all of you - from our ladies spearheading all of our advocacy work to the new women who have just recently decided to give this website a chance - for allowing their dream to come into such beautiful and incredible fruition. They loved all of you so dearly, and as their daughters, Debra and I are of course so proud of them.

I hope to see some of you at the services next week. I'll be posting more accurate dates/times as they come in, but right now I'm pretty certain with the holiday weekend, visitations won't be until the end of the next week.

Hugs and may those of you who had the chance to meet my parents never for their memories,
Danielle

Last edited by Posts; 05-25-2013 at 07:00 PM..
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Old 05-25-2013, 05:14 PM   #2
CoolBreeze
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Re: Christine has passed away

Danielle,

Your mom and dad were inspiring and their legacy is not only the organization, but you and your sister. My deepest sympathies for your loss.
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
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Old 05-25-2013, 05:22 PM   #3
Laurel
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Re: Christine has passed away

Danielle,

Your mother was one-in-a-million, but then you know that. Thank you for sharing your parents with all of us, and thank you to you and your sister for continuing this wonderful site. I am grateful to your entire family. Your mother will be greatly missed.
__________________


Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
9 Years NED
I think I just might hang around awhile....

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Old 05-25-2013, 05:50 PM   #4
Paty
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Re: Christine has passed away

Dear Danielle,
I amheartbroken and still in state of a shok. We have lost so many incredible lives this year. Your Mom and Dad and this site that they built for us meant a lot to my life. Going trhough this BC journey without their support would not had been the same for me. Thanks to your parents I was empowered with knowledge about this illness. I am so grateful to them. My condolences to you and Debra who I have the great pleasure to meet too. Let's keep helping lifes as a legacy of your parents beautiful work.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 05-25-2013, 06:56 PM   #5
sassy
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Re: Christine has passed away

Danielle and Debra,

There is a long line of angels welcoming your Mom home, with Joe at the gates.

Had it not been for this site, I seriously doubt I would be living today. It was here that I gained the knowledge and courage to take a hand in my treatment.

Your Mom's vision and Dad's wisdom opened lifelines to many. I'm so glad I had the opportunity to know and work with them.

Peace and comfort to you.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
12 YEARS NED!
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Old 05-25-2013, 07:20 PM   #6
Pamelamary
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Re: Christine has passed away

Danielle and Debra,
I only know of your mother through this site, her wonderful legacy. I am so grateful for the network of knowledge and support she created, and my thoughts are with you at this sad time...... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
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Old 05-25-2013, 07:33 PM   #7
Mary Jo
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Re: Christine has passed away

How proud you must be of your wonderful mother and father. Rejoicing with them both that they are now together again. My heart is sad for you as you grieve their loss.

Prayers for peace and comfort.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

12 years NED

<>< Romans 8:28
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Old 05-25-2013, 08:16 PM   #8
Mandamoo
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Re: Christine has passed away

I am so saddened to hear this and see you and your sister much love. I never knew your mum but what she strove to create thorough this site has helped women all over the world. May she be at peace now. May you find joy in your memories.
Amanda x
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Old 05-25-2013, 08:59 PM   #9
Bunty
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Re: Christine has passed away

Dear Danielle
my condolences to you and Debra on the passing of your mother. This website has helped countless women and men - beyond all our imaginations. Personally, I have been empowered and understood here, and that is because of the dedication of your parents.
Marie
__________________
dx Dec 2000 dcis 2.5cm clear sentinel node, ER/PR- Her-2+
lumpectomy, 6 cycles AC, 6 weeks rads
October 2007 three x 2.5cm lung mets. 8 months Taxol, started Herceptin and continue. Significant reduction in lung mets. Just one small one left.
June 2011 3cm x 4cm liver tumour. Started Abraxane and continue with Herceptin.
November 2011. Finished with Abraxane, continue with just Herceptin. Liver tumour now reduced to 15mm x 12mm. Lung tumour now 10mm x 0.5mm
February 2012. Scans show everything stable, and brain scan clear.
July 2012. PET/CT scans show I'm in remission - no active cancer!
Dec 2012. CT brain clear, lungs stable, liver tumour has increased to 20mm. PET scans showed active liver met and active lung thinglet, and possible bone met.
Jan 2013 recommence Abraxane, continue with Herceptin.
June 2013 finish Cycle 6 Abraxane, continue with Herceptin. 30% reduction in liver tumour, everything stable.

December 2013. CA15-3 on rise.
February 2014. PET and CT scans show single liver tumour has increased to 35mm. No other activity.
March 2014. Planned for SBRT for liver met, but couldn't have treatment as tumour too close to bowel. Continue Herceptin.
April 2014. Surgeon advises that I am a good candidate for liver resection, so will have operation early May (after camping holiday). Tumour now 44mm x 29mm.
May 7, 2014. Two liver tumours surgically removed. Third of liver removed, and gall bladder. Am I NED?
May 2014. Pathology of tumour shows it's now ER+ (95% staining).
June 2014. CA15-3 has decreased to 18 from a pre-surgery reading of 59!
June 2014. Started Femara, continue with Herceptin.
July 2014. Stop Femara due to severe Osteoporosis. Commence Tamoxifen, continue Herceptin. Waiting to hear if I can have Aclasta infusion.

August 2014. CA15-3 has decreased further to 12 - YAY!
October 2014. Aclasta infusion for Osteoporosis.
November 2014, CA15-3 decreased to 11. Scans of liver all clear, something new showing up on lung, but just watching at the moment.
November 2015. Started SBRT on solitary lung met.
November 2015. Bone density scan showed very good improvement so back on Femara - yay!
December 2016. 6 treatments of SBRT radiation on lung. Seems to have had some effect.
June 2016. CA15-3 still stable and low at 9.
June 2016. Started subcutaneous Herceptin replacing infusion.





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Old 05-25-2013, 09:27 PM   #10
StephN
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Re: Christine has passed away

Dear Dani -
Thank you for summoning the courage to write such a beautiful post.

It has been a long, hard time to see your mother in such a state after the strokes started. So many of us have missed her soft spoken, yet wise voice. When she could not see well enough to use the computer she would use the telephone. She continued to help people any way she could, even as her own faculties were changing.

May she and Joe rejoice in each others' long-overdue arms. And rest easy now together.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and half of 2017. Boring ...
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Old 05-25-2013, 09:30 PM   #11
caya
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Re: Christine has passed away

Dear Danielle and Debra,

Please accept my sincere condolences on the loss of your dear mother. She and your father were angels on earth, now they are both angels in heaven. This site is their lasting legacy to us all.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
11 Years NED!!
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Old 05-25-2013, 11:40 PM   #12
cheery
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Re: Christine has passed away

I'm so grateful for this site started by Christine and the wonderful ladies here who've made this site so informative and helpful. Thank you and my condolences to the family of Christine.
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Old 05-26-2013, 01:06 AM   #13
michka
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Re: Christine has passed away

Danielle and Debra your parents were beautiful persons. I am so sad, so sad. If I am still alive I owe it to this forum. Christine and Joe will never be forgotten. My thoughts go to you both Danielle and Debra, your family and all who loved Christine. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 05-26-2013, 01:49 AM   #14
Jackie07
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Location: "Love never fails."
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Re: Christine has passed away

"Love never fails."

Christine and Joe had loved each other, their children and grand children, and devoted their time and energy to this support group. The greatest is love. Love endures. And we will continue to follow their steps to practice patience and kindness, to seek the cure ...

Thank you, Danielle and Debra, for carrying on their work.

Joe and Christine are smiling at you and all of us from Heaven ...
__________________
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 05-26-2013, 05:03 AM   #15
NEDenise
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Re: Christine has passed away

Danielle and Debra,
I know in my heart that there is a great celebration welcoming your Mom home now that her work here is done. The joy when Christine and Joe were reunited..Wow!

My heart goes out to the two of you...but I hope and pray that your pride in her accomplishments, the glow of her love for you, and the bounty of wonderful memories you share, will bring you comfort.

Thank you both for continuing her work. Like the others have said...I'm not sure I'd still be around without this site that your parents worked so hard to create and enrich over the years. And, I love the idea of making a memorial donation in her name. Consider it done.

My prayers are with you in these difficult days ahead.
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. Cavett Robert
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Old 05-26-2013, 05:46 AM   #16
Paula O
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Re: Christine has passed away

Dear Danielle and Debra,

I'm so very sorry about your loss of your dear Mom. Your parents certainly did a lovely, generous, impactful thing in putting this site together, keeping it going all these years, and investing their lives in breast cancer advocacy which is a blessing to all of us.

((((Hugs))))),

Paula
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Old 05-26-2013, 09:06 AM   #17
Becky
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Re: Christine has passed away

My heart is broken but she is now at peace and with Joe again. What a wonderful and inspirational woman Christine was. I will never forget her or the lifeline she provided me and all of us with the idea of this website. Then Joe created this wonderful Christmas gift for her and ALL of us. Their legacy will continue on this site forever and ever.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Zometa every 6 months for osteopenia

NED 13 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 05-26-2013, 03:16 PM   #18
ElaineM
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Wink Re: Christine has passed away

My sympathies to you and your sister. I am very grateful to your parents for starting this website. May your parents be together for all eternity.
Take good care of yourself.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 05-26-2013, 06:28 PM   #19
'lizbeth
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Posts: 2,214
Re: Christine has passed away

Danielle and Debra,

I couldn't even post right away. I want to tell you how much I appreciate the work that your parents did. Losing your mom and dad are so painful. But you are so fortunate to see the legacy that they left on this board. Like others I came on for sympathy, information, guidance and support.

We can only envision that they are together again and watching over us.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

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Old 05-26-2013, 09:26 PM   #20
caroline96
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Join Date: Jan 2011
Location: Houston, TX
Posts: 9
Re: Christine has passed away

Dear Danielle and Debra,

I am truly saddened by the news. My deepest condolences for both of you on the passing of your mother. Your parents' advocacy was the reason I am still alive. I really appreciate your decision to keep the legacy. Bless your heart. Your parents' passion for cancer advocacy will live on and continue to inspire everyone who visited this forum.
__________________
Diagnosed 05/2003 as stage 1 IDC and stage 0 DCIS (2 tumors) through exicisional biopsy of right breast.
Tumor biology: ER +, PR +, HER2 --, grade 2. Ki67: 35% (high)
Lymph nodes involvement: 0/18 lymph nodes.
Treatments: Lumpectomy, 4 cycles of Adriamycin and Cytoxan, followed by 33x radiation. Tamoxifen for 5 years. 7 years NED.

Recurrence: diagnosed on 12/2/2010 as stage 4 BC. No breast involvement.
Mets: lung (one tumor and 12 intrapulmonary nodes), bones.
Tumor biology: ER+, PR ?, HER2 + through FISH ratio.
Treatments:
12/2010: Xeloda.

12/2010: Changed Dr (he refused to retest for HER2)
01/2011: Added Zometa, crashed @ ER due to severe reactions to Zometa but continue on Zometa. Informed of HER2+ status when in hospital.
02/2011: Added Herceptin.
06/2011: Bones clear! But progression in lung....Changed tx to Taxol. Now on Taxol, Herceptin, Zometa combo.
02/2012: Stopped Taxol due to lymphedema.
06/2012: Oopherectomy, started Femara.
02/2013: NED.




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