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Old 07-12-2015, 01:57 PM   #21
jaykay
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Join Date: Oct 2012
Posts: 604
Re: Teeth

Forgot to mention, I do wear a bite guard religiously. It was mentioned in another post. I am a grinder..
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-12-2015, 09:17 PM   #22
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,733
Re: Teeth

Thank you all for these responses. Very helpful, interesting. Yesterday I met a woman at the beach...cancer survivor (throat and soft palate) treated with heavy radiation, hyperbaric chamber, etc...bottom line, cannot have extractions etc. due to osteonecrosis fears...she is having terrible teeth issues too. Coincidentally seeing my same dentist, paying out of pocket a 5 figure $$$, as am I . It was very reassuring to meet and talk with her.
So, here is my update, I have had all my front teeth (16) prepped for special crowns (no metal) and am now in temporaries. The permanent crowns will go in in 3 weeks. At that time, I will have the remaining molars, 12, prepped for crowns, temporaries, etc. 3 more weeks to final crowns. All these procedures are done under sedation. What an ordeal!!! I will also have a night guard (I am a grinder too!) Also will need to have special cleaning procedure done every 3 months.
Not complaining, no regrets, glad to be alive and NED. Again, thank you all for chiming in. In the general scheme of what so many of us are dealing with on a daily basis, teeth do seem rather trivial...but critical!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!

Last edited by suzan w; 07-12-2015 at 09:21 PM.. Reason: add info
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Old 07-13-2015, 06:42 AM   #23
jaykay
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Join Date: Oct 2012
Posts: 604
Re: Teeth

OMG - what an ordeal even in the "grand scheme of things". Glad you will be under sedation and hope you do not have too much discomfort!

Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-14-2015, 06:36 AM   #24
Lien
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Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 818
Re: Teeth

I have had dental problems for a long, long time, ever since some cheapo dentist put some cheap fillings in my mouth. Turned out to be allergic to them and have had health issues since. Breast cancer was only one of them. Teeth are very important to overall health, I assure you! I have a bridge, lots of fillings, that need renewing every couple of years, as the only filling I'm not allergic to isn't very strong.

Off to my dentist now, for a gum infection and nerve pain. Agree!

Oh, and allergic to novocaine too. So I take a pain killer before treatment.

Jacqueline

(didn't have chemo, but did have Zoladex and Arimidex)
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 01-15-2016, 08:54 AM   #25
LaDonna28
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Join Date: Aug 2014
Posts: 78
Re: Teeth

I have had bad teeth from growing up without fluoride and hereditary reasons; hence, I have had numerous crowns and root canals. Chemo has made my mouth worse and now I have crowned, root canalled teeth that are having issue.... I found this article and am curious: HOW MANY OF US HAD A ROOT CANAL BEFORE CANCER??????

http://articles.mercola.com/sites/ar...led-teeth.aspx
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Steriactic biopsy July 2011 for microcalicificarions - negative
Mammogram 2012, 2013 no change
Mammogram July 8, 2014, more microcalcifications and mass (10mm per radiologist)
Diagnostic Mammogram July 10, 2014
Steriactic Biopsy July 15, 2014
July 21 given diagnosis DCIS and IDC upper, Outer quadrant of right breast
ER Pos >95%. PR Pos 90%, HER-2-neu positive (score +3) Grade 3
Breast surgeon on July 29, 2014 says 2 cm
MRI states only mild to moderate bilateral physiologic background parenchymal enhancement with uptake on intermammary nodes
BRCA tests all negative :)
August 8 port placement. Lung partially collapsed. On oxygen until further notice
August 9, '14 started TCPH therapy with nuelasta shots. 6 cycles @ 3 weeks
5th treatment T and C dosages lowered due to bad neuropathy
6th and last TCPH changed to PH only for Dec 1st
Lumpectomy and node biopsy Dec 2
100% complete response from TCPH neoadjuvent therapy: tumor completely gone-dead cells only. Node completely free of ANY cells. Staged at 0! Margins clear from 4mm-10mm from dead cells.
2 week period following surgery went in for draining of Hematoma that filled surgery void area in breast 3 times
Continued with Herceptin only December 22, 2014 @ 3 weeks until ???
Started radiation Jan. 7, 2015 plan is for 16-20 rads
january 25th 2015 last radiation completed. Stopped at 16 due to Seroma (void in breast is filled with fluid)
January 30 Tamoxifan started
Still on oxygen, tamoxifen side effects kicking my butt. Seeing a gastro dr. due to a lot of stomach issues.
July 2015 - 3D mammogram nervous as all hell - but came back clean!!!! YEAAH
March 2016 - only using oxygen at night! Stomach issues better and trying to wean off the heartburn meds. Am hoping to get reconstructive done Jan 2017.
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Old 01-15-2016, 01:33 PM   #26
jaykay
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Join Date: Oct 2012
Posts: 604
Re: Teeth

Several root canals before cancer, many crowns plus periodontal treatment going back 30 years. I am also cursed with bad teeth but nothing worse since chemo. I do get my teeth cleaned every 3 months. If I didn't, I'd be in big trouble. I started using prescription fluoride toothpaste (prevident) about a year ago and my hygienists tell me it's made a big difference.

Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 08-24-2017, 07:00 AM   #27
Cif
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Join Date: Aug 2014
Posts: 15
Re: Teeth

I saw dentist before chemo, he warned me to care extra for teeth during TCH, by 17th round they had turned grey and gum line brown, I saw him through treatment and he said there was nothing he could do, it just happens. Then the lecture about dry mouth causing this, and I showed him the gel and oramoist I carry and use around clock and I only drink water and no teas or coffee. Four grand later out of pocket and a smile specialist dentist I have my orginal color teeth back and can show my teeth again. Here is the kicker, before doing this people said I looked bad and concerned, the first time they see me with veneers and crowns they say I look so much healthier. I admit, makes huge difference in looks. I wish teeth were covered like boobs with cancer damage.
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Old 08-24-2017, 08:56 AM   #28
Donna H
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Join Date: May 2014
Posts: 169
Re: Teeth

Chemo sides effects just keep on giving! I hadn't had a cavity in the 10 years prior to chemo but my first dentist app after chemo showed 5 cavities. I only had cavities, a minor dental issue thankfully but..... Teeth are very important in overall health and well being.
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Old 08-24-2017, 11:58 AM   #29
Cathya
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Location: Ontario, Canada
Posts: 643
Re: Teeth

OMG When I was radiated to my supraclavicular node etc. they didn't put a block on my head and my teeth were full of holes. I hate to think of what that did to my brain and eyes lol. I had to have caps everywhere. Cost me a bundle. Since then I have lost two of the caps...likely from chemo since one more since I had most recent chemo. What a pain!!!

Cathy
__________________
Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Nice! My hair came back really curly. Hope it lasts lol.

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