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Old 05-03-2010, 05:27 PM   #21
linda b
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Posts: 13
Re: Eyelashes--Need Some!

I've been off chemo for over 2 years, but my eyebrows and eyelashes have never grown back totally. I've been using Folligen for 3 weeks- no results yet. Does anyone know how long it takes to start the hair growing? Or am I just one of those that Folligen doesn't work for?
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diagnosed 1/07
bilateral mastectomy 2/07
chemo 4-6/07
started Herceptin 4/07
radiation to lower back 8/07
reconstructive surgery 6/08
off herceptin 5/09
radiation to neck 8/09
hysterectomy 9/09
started Arimidex 10/09
off Arimidex, started Femara 3/10
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Old 05-03-2010, 11:52 PM   #22
Rich66
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Re: Eyelashes--Need Some!

Hey!
Adding Lani's warning post on Latisse
http://www.nytimes.com/2010/05/02/health/02latisse.html
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Mom's treatment history (link)
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Old 05-04-2010, 01:52 PM   #23
Westcoastgirl
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Re: Eyelashes--Need Some!

I don't think I am willing to try any products close to my eyes as they are dim enough as it is. One mistake I made is when I finished chemo I went for a facial. My eyebrows were growing in nicely and the cosmetician talked me into have them shaped. She waxed them as she has in the past and lo and behold they never really recovered from that, so take heed. I shaved my legs once and those hairs have not grown back either. I have no armpit hair and am very sparse in other delicate areas. Thank goodness the hair on my head has grown back completely.
__________________
12/17/08 biopsy after two 6 mos mammo recalls
12/30/08 diagnosed high grade IDC & DCIS
ER/PR +, Her2 (+++) post menopausal/age 57
1/15/09 double mastectomy/skin sparing; no evidence of vascular/lymphatic invasion, 8neg/8 nodes (tumor 8.0mm)
2/16/09 given portacath/removed 4/30/10
2/18/09 "surprise" 2.0mm tumor/positive borders~
completed 28 rads 10/09.
2/23/09 until 4/19/10~treatments every 3wks (4 Cytoxan + Adriamycin, 4 Taxol + Herceptin, 13 Herceptin alone)
8/09 osteoporosis diagnosis/Zometa 3 yrs of 1x/6 months
Chemo side effects; Deafness, kidney function loss
11/09 began Aromatase Inhibitor (Femara)/Feb2014, stopped Femara early/after 3 mos began Tamoxifen for 8 mos to complete 5 years
11/10 Reconstruction, directly to silicone implants
12/11 nipples by skin graft/Right breast size reduced

I have heard th
ere are troubles of more than one kind

Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have trouble with me!
Dr. Seuss
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Old 05-13-2010, 06:21 AM   #24
Sheila
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Re: Eyelashes--Need Some!

I got Latisse from my eye Dr. Mine was 119.00 at Walgreens, and no insurance coverage....I really needed it after 2 years of Taxol...I would tell you how it works, but I keep forgetting to try it.....maybe something for the chemo brain to remind me to use the Latisse is in order!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-23-2010, 03:32 PM   #25
vlcarr
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Posts: 343
Re: Eyelashes--Need Some!

I just wanted to follow up and let everyone know I finally decided to try NeuLash. It doesn't carry the risk of changing your eye color and the research I did indicated it works really well.

It's not cheap-$150.00. I ordered it directly from their website and they had free shipping. It doesn't require a prescription.

I'm excited to try it and will let you all know how it works. Keep your fingers crossed!
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 08-23-2010, 07:02 PM   #26
CoolBreeze
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Re: Eyelashes--Need Some!

After four months my eyelashes are long enough to touch my eyebrows! I had to actually trim a few, they were too long. Latisse works beautifully!
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http://butdoctorihatepink.com

08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
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Old 08-24-2010, 08:50 AM   #27
vlcarr
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Re: Eyelashes--Need Some!

CoolBreeze,

Did you use it on your bottom lashes as well?
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 09-01-2010, 12:07 PM   #28
v-ness
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Posts: 280
Re: Eyelashes--Need Some!

hey there - it says 'not for use on bottom lashes' in the packaging, i believe. not sure why. i suppose you could use it just long enough to jump start the lash growth. i too have been using Latisse (for a little over 4 weeks) and they truly are longer, darker and fuller. i think change in eye color is rare. i don't have to worry about it since my irises are about as brown as they come. good luck with the other stuff! a good lash enhancing pair of products are Cils Booster and Definicils by Lancome. since i hate my hair so much and have to suffer through its growth until it's tolerable, i figure at least my lashes can be pretty. too many mornings i look in the mirror and groan. it sucks looking like Morgan Freeman if you're not really him.

valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 09-01-2010, 02:26 PM   #29
vlcarr
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Posts: 343
Re: Eyelashes--Need Some!

Morgan Freeman-lol. I've decided my hair looks like a chia pet. It's curly and frizzy. A long way from my long straight hair of the past. I'm hoping when it gets longer it will not be as frizzy. I still have a patch on the front that's not as thick as the rest too.......
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 09-01-2010, 02:47 PM   #30
v-ness
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Location: western ma
Posts: 280
Re: Eyelashes--Need Some!

after shelling out $25 for some useless Aveda curl taming cream, i found a $2.75 product that worked in Walmart. Herbal Essences Curl Scrunching Gel. i always had curls that frizzed up in humidity so this battle is not new to me. it's the length that's the struggle. the curl scrunching gel, used liberally, really grabs and sets those curls. my sister told me about a woman who does "brazilian relaxing" (i hope she didn't mistake relaxing for waxing cuz i sure don't want a brazilian wax!) which does not use lye. i might consult about it once my hair grows out a little more. i'd love to see how the straight side lives! i only ever got to experience it after great effort for an hour with a straightening iron. in the 70's i used to pine over the girls with long straight hair as i pulled my mess back in a rubber band. and then they all started in with the perms and i thought WTF!?

i had a weird dream the other night. i dreamt that this girl with long blonde hair and a great set of ta-ta's was at Mardi Gras and even though she wasn't the most glamorous girl there, nor did she take her top off and flash, she was chosen Mardi Gras Queen. when they hoisted her in the air she whipped off her long blonde wig to reveal brand new baby hair just growing in after chemo and i cheered for her because there she was with her beautiful breasts bravely showing them all she was recovering from breast cancer, just like me, and her confidence made mine skyrocket in turn.

valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 09-02-2010, 02:29 AM   #31
Ellie F
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Join Date: Feb 2009
Posts: 1,526
Re: Eyelashes--Need Some!

Good to know i'm not alone! After taxotere my eyebrows are virtually non existent and my top eyelashes number about 3 on each eye!!
Will see if this is available in the UK.
The other odd thing is my bottom lashes are back to normal, me thinks that taxotere must have messed with my hair follicle DNA??

Ellie
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Old 09-02-2010, 06:42 AM   #32
v-ness
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Location: western ma
Posts: 280
Re: Eyelashes--Need Some!

ellie - i lost most of my eyebrows at the end and after 5 months they were still pretty pathetic. when i got Latisse i asked if it worked on eyebrows too and the aesthetician said yes. so i've been giving each brow a nightly swipe and indeed they grew back in. no more penciled in brows that i accidentally wipe off when i wipe my forehead during a hot flash! valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 08-15-2017, 12:29 PM   #33
b.cozna
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Posts: 1
Smile Re: Eyelashes--Need Some!

So when my mom went through chemo for non-hodgkin's lymphoma, she lost all her lashes. She buys latisse online through an online dermatology company called YoDerm. You take a few pictures of your lashes and submit them, and an actual dermatologist prescribed you latisse. It gets mailed directly to her house. She's been using it for several months now and her lashes have grown significantly. I believe it costs her about $110/month. I would highly recommend this company. I like knowing I'm getting legitimate latisse and that a real doctor prescribes it. Most importantly, it helps her feel beautiful again!
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