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Old 03-09-2016, 03:26 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Post Node biopsy. What should I ask?

Since I stopped TDM1 a year ago I have MRIs every 3 months. In January a strange node lit up near a kidney and it also lit up on the Pet/Scan I did right after. Nothing else lit up. After taking antibiotics it is still there and although it is unchanged beginning of March, the radiologist and the onc would like a CT guided biopsy. They say it has a strange shape for a breast metastasis but cannot say it is not one and the node was not visible before. (bloodwork normal including liver counts and markers).
I am afraid of the procedure because I had a lot of problems already and do not trust anybody anymore when they tell me there is no risk. But...I am really hesitating. Is it dangerous? Is there a risk of dissemination if it is cancer? Should I wait and just watch with MRIs? I would like to be sure I will get all the possible information from the biopsy.
What would you ask for apart from HER2, ER,PR?
DNA Analysis? They don't do that easily in France. Where could I send my slides in the US?
I did not sleep the entire night trying to list what I should ask.
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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