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05-08-2007, 01:25 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Excited about eyelashes
Just to lift the mood a little - I am so excited that in the last two days I have noticed that 7 weeks out from stopping Taxol my eyelashes are coming back! Wow, sometimes it's the littlest things that make me happy...
Now if the eyebrows would show signs of activity...
The Xeloda's not supposed to make it all fall out again, right? Just might make it grow slower?
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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05-08-2007, 03:12 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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"3 on each eye"
Brenda,
I just went to the eye doctor last week, and he was reviewing his notes from 2 years ago when I asked him if he could see ANY eyelashes????? He counted 3 on each eye and wrote that down!
Now I have too many to count...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-09-2007, 12:22 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: State Motto='HOPE'
Rhode Island
Posts: 28
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The Little Things!!!
Oh, the little things honey. Life is made up of them and sometimes we fail to see them. Some may think nothing of eyelashes or fingernails, but I know different. My husband has HER2+/Inflammatory Breast Cancer and we too appreciate those little things also. Keep up that spirit and fight that you have in you, and keep us posted about all the wonderful things happening to you during recovery. So glad for you getting off your chemo and the excitement you are experiencing right now. We will be hoping to hear from you soon. And remember, good or bad, we are all here for you. >>Waiting For A Miracle>>Marie G
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05-09-2007, 03:00 PM
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#4
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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These little guys are definitly underated.
Mine are growing back in two serate rows has anyone ever experienced that?
I am now almost 4 months away fron last chemo but my eylashes are still very few specially the one on top..so I hope it gets better.
The hair on my legs somewhat have no problem growing back..
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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05-09-2007, 07:54 PM
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#5
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I finished chemo in July 2006 and still have just a few eyelashes and brows and I mean a few. I have given up on every getting them back. Has anyone else had this happen where you don't get them back. I can draw on brows but eyelashes? I don't have time to put fake lashes on except for a special occasion like a wedding. I am not happy about being without lashes and I never anticipated them not growing back.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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05-09-2007, 07:55 PM
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#6
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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oh by the way, where i should have hair, like lashes, I don't, but I now have new hairs in places I never had before...example, my chin...great huh?
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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05-10-2007, 11:44 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Just wait 'til the mustache begins to sprout...
Maria
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05-10-2007, 11:59 AM
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#8
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Member
Join Date: Apr 2007
Location: Beautiful Valdez, Alaska for 40 years
Posts: 7
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Lashes
My lashes are thin and can't seem to get any more. Two lines of lashes!!!!
Never heard of that. It was so great to shave my legs at the same time that my daughter shaved my head (it was falling out fast) and not having to shave for months, but now its making up for it as are my chin hairs. No mustach yet except for two hairs that get really long before I notice them. They are almost white. A friend of mine has five lashes on the inside and five on the outside but none in the middle. Makes her crazy when she tries to use mascara! Guess we're all unique.
cassie
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05-10-2007, 12:50 PM
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#9
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Senior Member
Join Date: Jan 2007
Posts: 144
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Hair on my chinny, chin, chin,
I too have hair in places I know I didn't have before! I am 6 weeks out from Taxotere/Herceptin and on the every 3 week tx so I thought I would be getting more of my eyebrows back. Well, no such luck. My eyelashes are very short, thick and curly. They are very, very strange looking. I do have some hair on my head now, but it is almost completely white. I definetly don't look like the person I was 6 months ago, however; I always consider the alternative!
Thank God for wax!
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