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06-06-2006, 09:39 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Were Back !
The HER2 Support Group has returned from the ASCO meeting. I probably missed a lot of posts as we were too busy to log onto our website. Thanks to Al of Canada for updating our ASCO-2006 Board.
And of course a hearty thank you to Vernal, Cynthia, Kim, Becky, Vickie for helping us present our support group to the many professionals at the meeting.
A special thank you to their husbands for giving up their wives for 6 days.
Val Pfeiffer (middle) was in Atlanta for another meeting and stopped by to say hello.
Our last night together and a "Thank You" dinner for a job well done.
Cynthia gave a glowing description of our group at a Bayer/Oncogene Science Press Conference.
If anything we all walked away with fond memories.
Regards
Joe |
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06-07-2006, 02:50 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Thank you again for representing us...
it sounds like a LOT of research is in the works...ESPECIALLY for Her2 cancer. Thank you also to Al for keeping us posted as to the latest news.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-07-2006, 07:22 AM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 414
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Welcome Back
And thanks to Al for doing an excellent job in keeping us informed about ASCO.
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06-07-2006, 09:42 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 95
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Friends,
It was my true honor to attend ASCO as one of the representatives of our Her2 Support Group. I want to report back how proud I was to be a part of such a wonderful and well known organization. I think we all owe a huge round of applause to Christine and Joe for creating and promoting us to the medical community in such a positive and visible way.
On a personal note, it was truly a pleasure to have the chance to meet in person just a few of the many fantastic people who participate on this forum (i.e., Becky, Vernal, Vickie, Kim -- you are the best). I cannot express in words how much I like and respect Christine and Joe and how much work they had to do to make our presence so well known.
The biggest message I took from the conference was that so very much work is being done to help us Her2+ folks. I truly feel that we are fortunate that -- if you had to get breast cancer -- at least we got the type that is the subject of so much research, innovation and hope.
Stay well.
Cynthia
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06-07-2006, 11:20 AM
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#5
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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You guys are amazing!! Thank you for all you do. I know you all work very hard to get the message out!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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06-07-2006, 04:38 PM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 943
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The photos and your participation at the meetings are much appreciated.Thanks for making our voices heard.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 06-07-2006 at 04:44 PM..
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06-07-2006, 05:05 PM
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#7
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Many many thanks and BIG KUDOS for a job well done to Joe, Christine, Vernal, Cynthia, Kim, Becky, Vickie and Al. You guys are incredible!
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06-07-2006, 05:21 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: Carlsbad, CA
Posts: 73
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many many heartfelt thanks to all of you!
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06-09-2006, 07:00 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Honored, Welcomed and Respected
Dear Joe and All of our Members,
It was such a privilege for me to be among the group who represented our lifesaving Her2support group. However, above all else, it was heartwarming to see how much the research and medical oncology communtiy honor and respect the work Christine and Joe have done to keep us all together and connected.
It was nothing short of goosebump raising to see doctors from as far away as Romania, South Africa, Korea and Thailand snatch up our Her2 pamphlets and web site information to share with their patients.
We have a lot to be grateful for; and the work that Christine and Joe has done on our behalf tops the list.
We also had the privilege to meet a member of our advisory, Vernal Branch. She is clearly very savvy and it was fun to see Vernal and her protoge, Cynthia, "work the crowds", making all aware of the fine web site Joe has created for us, as well as telling all about how disease smart you all are.
Well, I am rambling, but all in all it was an awesome trip. We learned alot, and had alot of laughs.
Love Kim from CT
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