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Re: metronomic chemo
Nancy, I am not NED, but stable. My mets are bone, possibly lung, but no activity there since Dx. My bilirubin is also high--2.7 at the highest. I have remained on the drug as I have Gilbert's Disease. My AST and ALT are also elevated. My platelets are also low and the drug has been held several times to allow them to recover. The dosage has not been lowered but we have discussed this frequently. I have also developed nodular regenerative hyperplasia of the liver which is an indication to stop the drug. Despite all these issues, I have few symptoms and good quality of life. I do have bone pain which I attribute to the disease. I do not have many other options.
Kathy
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