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09-03-2008, 10:35 PM
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#1
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Senior Member
Join Date: Jun 2008
Location: NY
Posts: 81
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a happy thread
Hi!!! I just felt like writing a happy thread since i think my previous ones were too uh not happy haha. that and the fact that i have a lot of homework and need a good reason to procrastinate : o
the good news is that mommy appears to be responding well to the xeloda/tykerb/herceptin combo yea! her ca 27/29 have been dropping from 350 to around 250. averaging 30-60 every 3 weeks. shes getting a cat scan soon *fingers crossed
despite the fact that im about 5 hours away from home, i've been feeling the happiest i've felt in a longgg time. im just really appreciative that i have an amazing mom and im really enjoying my classes and college in general
my moms bday is coming up, in oct, im trying to think of either making a surprise visit home or mailing her something big. any suggestions?
i hope everyones doing good, i just feel tremendous hope for all of us who are affected by this disease and i refuse to think otherwise. Stay strong everybody!
k im gonna go back to my very lonely looking calculus book : )
__________________
Hi i'm Sue. I've been part of the her2support family since 08'. My amazing mother Hong was her 2 stage IV 9 years and bravely earned her wings, I still love this board and continue to her fight. Plz reach out if you want to connect:)
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09-03-2008, 10:54 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Sue,
Your post put a huge smile on my face. Thank you!
I am so thrilled to hear your Mother is responding to her treatment. I am also thrilled to hear the strength in your post.
I remember when I was dx and having my treatments my son was still in college at the time. Just know you have already given your mother a huge gift, by attending school and doing what you have to do.
She knows how difficult these times are for you.
A gift my son gave to me that I still treasure to this day
was a jar filled with personal small notes of special things he appreciated and loves about me.
He mentioned all sorts of things from early childhood up to his college days..and young manhood. I still open the notes and read them as they are so very special and dear to me. Oh, of course also include your beautiful smile.
You are a strong loving daughter...
I wish you great sucess in your fall term.
Warmly,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Last edited by Jean; 09-03-2008 at 11:11 PM..
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09-03-2008, 11:21 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Sue,
I am happy for you and your mom! Good luck with your calculus.
Karen
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09-04-2008, 12:11 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Hey Sue....a big hug and smiles for both you and your precious mommy.....
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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09-04-2008, 03:44 AM
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#5
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Glad your mom is responding well to her treatment. I think Jean's idea is a great one! I am a mom too and I know it is thrilling when your child tells you how much they love and appreciate you and the things you do/have done for them. I think she would really like a gift along those lines.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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09-04-2008, 04:42 AM
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#6
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Member
Join Date: Dec 2007
Location: Ohio
Posts: 21
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She mush know how lucky she is to have such a wonderful daughter; I know my daughter did not want to go back to college after I was diagnosed, and I'm sure it's hard for you as well.
I like the ideas that have been given here; my only suggestion is to stay AWAY from all the pink crap that seems to be everywhere these days. I get so sick of people giving me that stuff. Give her something to know how much you love her!
__________________
dx 07/20/07 with IDC
left MRM with expander 08/07
2.2 cm er/pr-, her2+ all nodes clear
2/08 BRCA negative
4 AC dose dense 09/06/07-10/18/07
12 weekly Taxol/Herceptin 11/01/07-01/18/08
Herceptin 1 year/done 10/31/08!
2/08 reconstuction
port out 12/4/08
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09-04-2008, 09:02 AM
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#7
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Sue,
Great news!! I am so happy to hear that your mom is responding well to treatment and you can let go of a little of that stress.
Keep doing well in school. A mother's greatest reward is when her child succeeds in life. You are a winner!
Much love to you.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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09-04-2008, 02:31 PM
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#8
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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glad to hear how things are going. hope you might it back for her b-day. hugs and prayers.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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09-04-2008, 06:57 PM
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#9
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Hi Sue,
I'm so happy that your mom is responding to her treatment!
Missed you at the brunch, but there will be another and hopefully your mom will be able to come along too.
Glad your enjoying college. Have fun!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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09-04-2008, 07:40 PM
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#10
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Senior Member
Join Date: Jan 2008
Posts: 305
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I am very happy for you and your mom - may the good news keep coming!
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09-05-2008, 03:14 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Thanks for sharing your mom's good news with us!! I am happy that she is responding well!! That's awesome!!
You are a great daughter and I bet if it is possible for you to surprise her at home, that she would be so happy! Whatever you decide will be great because you are doing it out of love. I am very proud of you!
Lexi
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