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Old 08-06-2008, 09:40 AM   #1
Terri B
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Unhappy Magic Mouthwash

Anyone used this? Is it good? I'm about to get some for my mouth sores. One is so bad that it sent me to the dentist! I thought I had an abcessed tooth!

I've been using the Biotene mouthwash and mouthspray, eating lots of yogurt, but still they come. Oh well, i'm certainly not complaining.
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46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 08-06-2008, 10:05 AM   #2
goops
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I used magic mouth wash for just one day. After that I kept a glass of salt water in the kitchen and in the bathroom - every time I went into those rooms I rinsed my mouth out real good with it. When my mouth sore were at their worst they cleared up quickly by me holding salt water in my mouth.
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Old 08-06-2008, 10:13 AM   #3
Terri B
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So the Magic Mouthwash wasn't any good for you?

Wow, it seems the salt water would sting!
Thanks for the input!
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 08-06-2008, 10:38 AM   #4
PinkGirl
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Hi Terri
I tried several remedies and settled on warm salt water.
I used it morning and night and several times inbetween.
It helped a lot.

I was also given ice chips or popsicles during my treatment.
This is supposed to help prevent the sores. You are going
on FEC and the "F" is famous for causing mouth sores.

Make sure you tell your chemo nurse if the sores end up in
your throat. If so, there is a mouth rinse that you swish
around and then swallow.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
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Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
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Old 08-06-2008, 10:40 AM   #5
Mary Anne in TX
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The mouth wash only numbs your mouth for a few minutes...15 - 30 & gives you a "break". I think the salt water is better too. But sometimes I just needed a break to get through! Good luck!
You can do it, one day at a time!
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Diag. 12/05 at age 60
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Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
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Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
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Old 08-06-2008, 11:04 AM   #6
Terri B
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Talking

Interesting about the salt water! And I'm trying to cut back on my salt!! ha!

This "magic mouthwash" is from my onc, and it is a swish and swallow deal. I think i'll save it for when i'm desperate because it's pretty expensive & my insurance didn't cover it!
Thanks for the input.
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 08-06-2008, 11:28 AM   #7
naturaleigh
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Terri

Try L-Lysine too. You can find it with all the vitamins and herbs and is wonderful for mouth sores. During my treatments I took one in the morning and one at night. Still use your magic mouthwash and you will double up on the mouth sore fight!!
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er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
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Old 08-06-2008, 11:36 AM   #8
Yorkiegirl
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Now Terri please know that you don't swallow the salt water, you just swish around, around your mouth and spit it out. I always made sure the water was warm. So it shouldn't bother you about trying to cut down on salt.
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
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Old 08-06-2008, 01:11 PM   #9
Ruth
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Hi Terrie ~

I am so sorry that you are having mouth sores! They hurt so badly ~ I remember it all too well. I needed help when I was taking dose dense A/C and my mouth was just really messed up. My local pharmacy actually made "Magic Mouth Wash" for me (per Onc instructions) and it was very inexpensive (I think $10?). This was 5 years ago so I don't know if they are allowed to create this stuff anymore in the pharmacy? It helped me by making my mouth numb enough that I was able to eat. The main problem I was having was rapid weight loss. I just couldn't swallow. I was also told not to smoke anything...especially herbs...(if you get my meaning) as this would make it worse. I am not a smoker but it was amazing how many people offered me nausea helping potion :-) during this time! I tried warm salt water too and I think what really helped me was controlling the amount of sugar intake. I had no sweets at all. I had read somewhere that yeast loves sugar and cutting it out helps your mouth.

I feel for you and hope your mouth gets to feeling better.

Hugs ~ Ruth
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Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
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Old 08-06-2008, 06:33 PM   #10
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Hi Terry! I'm sorry to hear about your mouth sores. Years ago, Nikki used to get them and the L-Lysine, like Naturaleigh said, did help her. She also had a prescription for Zovirax which she was to take at the first sign of outbreak, and it really helped. Also, she had a Nystatin mouthrinse for thrush, which it sounds like, is not what you're talking about. It sounds like the salt-water rinse has worked good for alot here. Best wishes, Terri
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Old 08-06-2008, 07:32 PM   #11
Gerri
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Hi Terri,

While getting A/C I rinsed my mouth (swish and spit) twice a day with a solution called 'Radio Mix'. It was a combination of lidocaine, and two other ingredients that I can't recall (sorry). The pharmacist mixed it up and it was $23.00 a bottle. It was not covered by insurance because it was a compound. It tasted nasty, but did wonders. I didn't get one mouth sore.
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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Old 08-06-2008, 08:12 PM   #12
BonnieR
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I have had friends get very good results from the "magic" formula.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-06-2008, 08:25 PM   #13
goops
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Quote:
So the Magic Mouthwash wasn't any good for you?

Wow, it seems the salt water would sting!
Thanks for the input!
It wasn't that it didn't work - the way I understand magic mouthwash is that it is to control the pain. The salt water worked so good I didn't need the magic mouthwash more than a day.
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July 2008 - Stage 4 - Liver Mets

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Old 08-07-2008, 06:06 AM   #14
Terri B
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Great Info everyone, Thanks!

This "compound" that i got yesterday is a mixture of lidocaine, benedryl and malox (i think that's what she said). I haven't used it yet, but if it gets really bad, i will!

I did the saltwater rinse this morning. My mouth feels pretty good, although when i first woke up, it was throbbing so i took some ibuprofen!
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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Old 08-07-2008, 06:11 AM   #15
Gerri
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Terri,

That's the combo I had - now I "remember"! The lidocaine numbs your mouth, so that may give you some relief. Granted, I never had the sores to begin with, but my onc told me to use it as a preventative measure.

I hope you get these mouth sores under control. I'm sure they can be quite painful.

All my best,
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault

Last edited by Gerri; 08-07-2008 at 06:15 AM.. Reason: added to it
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Old 08-07-2008, 06:36 AM   #16
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My onc. nurse suggested I rinse with 1 tsp salt, plus 1 tsp baking soda in 8 oz water. I haven't tried it yet. But will try it the next time I need it.
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
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4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
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Old 08-07-2008, 10:25 AM   #17
dogs2
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Question Magic Mouthwash

It's got Maalox and Nystatin - tastes awful. Got some yesterday. My mouth tastes like brine, extremely sore tonge, making me not want to eat/drink. Managed to do an Ensure. Am starting on Neupogen shots from now on - is it due to low white count?? Also have had searing neuropathy in bottoms of feet (calluses). I think carboplatin is the culprit? Any suggestions would be appreciated. I ended up in hosp. after first round, sicker than a dog, 1 percent white cells. And with all my gastric distress, they insisted on doing colonoscopy - glad it's done and normal. But try having nonstop diarrhea with feet you can't walk on (ugh). Almost ended up in hosp. again. Will be taking it easier for sure.

Judy
OTCdogs@aol.com
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Old 08-07-2008, 11:02 AM   #18
BonnieR
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Welcome Judy. Sorry to hear all that is going on with you. I know it is small comfort but try to remember that it is all temporary. Hard to do, I know.
For neruopathy symptoms my onc recommended "Glutamine" an amino acid powder that you get in health food stores. You mix it with liquid. But right now it sounds like you have a challenge just getting nouishment. Have you tried using a straw to drink? Are you on meds for nausea?
I hope your doctors are able to find you some relief soon.
Keep us posted and keep the faith
Bonnie
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-07-2008, 03:02 PM   #19
carstell
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Hey Terri- I really didn't like the magig mouthwash. It numbed up too much. I found that if I dabbed it on the sore areas, or just held a q-tip with the med on it for awhile that was better. I really hated the numb feeling all over my mouth.Felt like my tongue was getting in my way.Distressed me a bit. Also the salt water or biotene toothpaste and mouthwash really seemed to keep my sores in check!Good luck!
Cheryl
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10/23/07 first ever mammo turned 40
11/9 biopsy
11/12 dx ILC 1.5cm er/pr+, her2/neu+
11/20 MRI
11/30 biopsy
12/3 another ILC area 8mm
12/21 lft mastectomy with expander placement
12/26 NODES NEGATIVE! However not 2 small tumors.1 bigger one4x3x3.Also DCIS and LCIS noted.grade II,stage IIa.
1/29/08 port placed
1/31 BRCA negative
A/C Done.Taxol DONE
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Old 08-07-2008, 03:05 PM   #20
Terri B
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Cheryl, Great advise! Thanks!
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Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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