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07-09-2006, 06:13 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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July 9 - madubois63 update
Hi everybody. Sorry I haven't posted in a bit. I've been busy. I had another bone marrow biopsy on Friday. It may be a few days before I get a full report, but I am praying they say "remission." My counts are amazing. My white counts is 6.8 - I can't remember when it was that high!!! I am feeling pretty good and getting a good portion of the day - cooking, cleaning, shopping - before I get tired. Seems the more I do, the better I feel. I took the ferry to Connecticut today and visited my nephews. I haven't really seen them in months. They are 21 months old and all over the place. I took my daughter to the mall yesterday. The little things mean so much. It just felt good to drive on my own, walk around and spend time with my daughter. It did cost me $60.00, but it was worth it. I do have to go back to the hospital for another round of chemo in a month - every moment out of the hospital and every meal away from there is precious. I am tired now, but I just wanted to remind you all that I pray for all of us everyday, I love you and appreciate all your support and friendship!!!
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
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07-09-2006, 06:56 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: .
Posts: 87
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Maryann,
You are a brave and wonderful person. I will pray for you continued health and good results.
XOXO
Anne
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07-09-2006, 07:01 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Maryanne,
Thanks for the update, and we will all pray for remission too! You are an inspiration. Glad to got to enjoy the weekend so much.
Sassy
________
LIVE SEX WEBSHOWS
Last edited by sassy; 08-22-2011 at 08:49 AM..
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07-09-2006, 07:20 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 31
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Maryann,
You are one strong and amazing person...I'll be praying for your remission
Warmly,
Judiek
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07-09-2006, 07:42 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Glad to hear you're doing so well
Maryanne, thanks for posting your update - wow that's so great that you are rebounding so quickly (and gearing up for the next battle!) and that you have had time to do some living - regular live stuff! We'll all be praying for remission...keep those updates coming!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-09-2006, 09:42 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Maryanne, thanks for the update, it really lifts my spirits to know you're doing so well! You keep us posted now, and we'll keep the prayers coming 
<3 Lolly |
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07-09-2006, 10:00 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Maryanne,
Thanks for the update. You are in my thoughts and prayers.
Love,
Karen
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07-10-2006, 04:05 AM
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#8
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maryanne
You are an amazing woman!!!!!!!!Wonder woman perhaps....it is so uplifting to see your posts, your amazing attitude and continued success in this new battle...you are truly an inspiration to all of us at handling things...my prayers continue that the bone marrow will show remission...keep up the great response!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-10-2006, 04:15 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Maryanne,
I am so happy for you that you are having this month off to be with your children, to have fun and to live your life. At the same time it is so wonderful that you are feeling so well.
You truly amaze me, are an inspiration, and thank you so much for sharing.
Best wishes,
Barbara H.
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07-10-2006, 04:39 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Maryanne,
Great to hear fromyou that things are looking better. Kerp fighting and getting better
sarah
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07-10-2006, 04:58 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Hi Maryann;
So glad to hear how well you are feeling and how well you are doing!! Take care of yourself and enjoy. We're so happy to follow your every step through this ordeal.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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07-10-2006, 05:05 AM
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#12
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Maryann, that is so amazing and July is a wonderful month to enjoy!! Will keep you in my prayers and as Sheila said you are "Wonder Woman" and perhaps, we should ask Joe to assign that to you. hugs, Sandy
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07-10-2006, 06:21 AM
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#13
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Senior Member
Join Date: Mar 2006
Location: Minnesota
Posts: 32
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Maryann,
Thanks for the update. I am so happy that things are going well for you. You have such a positive attitude and you are in my thoughts and prayers.
__________________
Ann
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07-10-2006, 06:33 AM
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#14
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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So glad to hear that you're doing so well and enjoying being "normal." You are an inspiration to us all.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-10-2006, 10:44 AM
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#15
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Thanks for keeping us posted on how you are doing. I am so happy that you are feeling well and positive. It sounds like you are having a good time!
Love,
Lexi
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07-10-2006, 03:03 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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"Ditto" to all these comments, Maryanne! You are truly an inspiration to all of us, and give us strength and courage to "Jes keep a'keepin' on!" Hugs, Tricia
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07-10-2006, 07:24 PM
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#17
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Senior Member
Join Date: Mar 2006
Location: (Hill Country) Texas
Posts: 72
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Maryann,
You are so strong and positive. It is good to hear of your good report. I will be praying for you as well. Enjoy you time off.
__________________
Jackie
Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
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