HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-18-2007, 07:21 AM   #1
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
New Help for Dry Hands

Since going on Xeloda, I have tried everything including prescription steroid hand creams, and nothing has helped. I went to talk to the Xeloda "team" at the San Antonio breast cancer symposium and showed them my hands...they recommended udder balm, which I had already gone through 3 tubes of. I felt destined to wear bandaids on my fingertips forever....the bad thing is, the hands crack and open and then you are not only in pain but at a risk of infection from the open wounds...this week I tried a new product that a girlfriend told me about. It is called AHAVA hand cream...they make all kinds of foot creams, lotions etc, and it is made with dead sea minerals and salts....it is rather expensive, but I found it at T J Maxx for a fair discount. IN 2 days my HANDS WERE LIKE NEW! They have not been this good for the 9 mons since I started Xeloda. I hope it continues to work....just wanted to pass this on and maybe it will help someone else!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 01-18-2007, 07:50 AM   #2
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
Thanks Sheila for sharing. I think it all has to do with finding the right cream for the right person! I use a cream from Arbonne and its for feet but very reasonable and all natural. Have had wonderful luck with it as long as I am faithful in using it which I wasn't in San Antonio. Have had no cracks and my hands are nice and soft. I am happy you finally found something that works for you. This is a full time job just keeping up with our bodies figuring out what works and what doesn't!!! Sending you a hug, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
Sandy H is offline   Reply With Quote
Old 01-18-2007, 08:38 AM   #3
Vi Schorpp
Senior Member
 
Join Date: Sep 2005
Location: OH
Posts: 385
Sheila: These products by Ahava are wonderful. Go to DeadSea Mineral.com and look at their website, there's free shipping. I, too, swear by their products. I am fortunate in that my boss and his wife go to Israel once or twice a year and bring me home some of the products. I'm a believer.
Vi Schorpp is offline   Reply With Quote
Old 01-18-2007, 09:05 AM   #4
MGordon
Senior Member
 
MGordon's Avatar
 
Join Date: Nov 2004
Location: Colorado
Posts: 131
Gold Bond

Sheila -

Lisa had pretty bad HFS (Hand/Foot Syndrome) on Xeloda as well, and found the Udder Smooth cream to be fairly worthless. After trying numerous products she had the most luck with Gold Bond Medicated Hand Cream - might work for you and be a little less pricey!

Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
MGordon is offline   Reply With Quote
Old 01-18-2007, 10:54 AM   #5
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
Sheila, ever since my trip to Israel, I have been using Ahava products. They are wonderful but as Sandy stated, what works for some doesn't always work for others. So glad you found something that works for you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 01-18-2007, 02:58 PM   #6
Andi
Senior Member
 
Join Date: Mar 2006
Location: IOWA
Posts: 243
Thanks for sharing, Sheila!
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
Andi is offline   Reply With Quote
Old 01-18-2007, 06:45 PM   #7
kareneg
Senior Member
 
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Wink

Yes thank you so much for sharing. I have been on Xeloda for three months and my hands and feet look gross. I have been using the Udderly Smooth it seems to help with the pain but my hands and feet look horrible. I will try this hand cream you recommended. And I'll let you know how it works for me.
__________________
Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
kareneg is offline   Reply With Quote
Old 01-18-2007, 07:06 PM   #8
Jackie
Senior Member
 
Jackie's Avatar
 
Join Date: Mar 2006
Location: (Hill Country) Texas
Posts: 72
Thumbs up

Ladies,

Thank you for your suggestions. I had a lot of problem with Hand & Foot Syndrone when I was on Taxotere. I found that Udder Balm a lot better than Udderly Smooth. The Udder Balm you can get at a Hardware store or possibly a feed store (since it is used on cows). I am very interested in the other suggestions because I still have a lot a problem with cracking fingers and I have been off Taxotere for over a year.

Where in Israel can you find Ahava? I am suppose to be going there this summer with my husband.
__________________
Jackie
Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
Jackie is offline   Reply With Quote
Old 01-19-2007, 06:43 AM   #9
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Jackie

You can get it here in the states at some TJ Maxx Stores, online, on EBAY....seek and ye shall find...it is marvelous! My hands have not cracked in over a week....
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 01-21-2007, 12:20 AM   #10
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I will have to look that one up...never heard of it but it sounds like it works wonders.

The one that saved me was "Camille Beckman" hand therapy. Its almost pure Glycerine, almond oil, & aloe vera. Its wonderful stuff...works like nothing else I've ever tried. They also have different products...some for the feet too. I haven't tried that one yet. You can find this hand cream online or at speciality stores. I love to put it on at night when I know I won't be washing my hands...that way it gets to soak in my skin. This stuff saved me.

Seems we have all searched till we found that one special cream.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 01-21-2007, 02:36 AM   #11
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
there is a concern about the estrogenic properties of parabens

I looked up AHAVA
Dermud Rich Cream for Elbows and Knees


and found the following list of


Ingredients

Water (Aqua), Cyclopentasiloxane (and) Dimethicone Copolyol,Cyclomethicone, Caprylic/Capric Triglyceride (and) Stearalkonium Hectorite (and) Propylene Carbonate ,Isostearyl Isostearate, Glycerin, Sea Salt & Water (Dead Sea Water), Dimethicone/Vinyldimethicone Crosspolymer, Aloe Barbadensis Leaf Juice, Propylene Glycol (and) Aloe Barbadensis Extract, Phenoxyethanol & Methylparaben & Butylparaben & Ethylparaben & Propylparaben, Butyrospermum (Shea Butter) Parkii, Cetyl PEG/PPG-10/1 Dimethicone, Panthenol(Provitamin B5), Tocopheryl Acetate(Vitamin E), Bisabolol, Sea Silt (Dead Sea Mud), Allantoin , Fragrance (Perfume).

They are widely used as preservatives and are in shower gels, fragrances, suntan lotions, moisturizers, shampoos, etc. I even once saw them listed in the ingredients of liquid vitamins drops to be ingested in a health food store!

Not to be alarmist--I encourage everyone to look up the scientific literature on parabens under PubMed (google it) and decide for yourself.
Lani is offline   Reply With Quote
Old 01-21-2007, 02:38 AM   #12
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
The ingredients of the AHAVA hand cream (from Amazon.com description)

Ingredients
Water (Aqua), Octyl Palmitate, Cetearyl Alc, (and) PEG-20 Stearate, Cetyl Alc., Cetearyl Alc. (and) Sodium Cetearyl Sulfate, Glycerin, Propylene Glycol, Witch Hazel (Hamamelis Virginiana) Distillate, Dimethicone, Methylparaben, Imidazolidinyl Urea, Propylparaben, Dead Sea Water (Maris Sal & Aqua), Allantoin, 2-Bromo-2-Nitropropane-1,3-Diol.
Lani is offline   Reply With Quote
Old 01-21-2007, 04:54 AM   #13
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Lani
Great info, but as bad as my hands were, I will take the chance...if you really look, there are some bad agents in almost everything we eat, use, wear.....impossible to avoid all the bad things....
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 01-21-2007, 08:47 AM   #14
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
the real question is not if it is a bad agent

that with 25 years' use could cause another cancer vs. a source of estrogen-substitute in those with ER+ tumors who are taking AIs to try to starve their tumors of all estrogen (a substance that stimulates them to grow).

There was a report in Spring 2005 of a topical form of tamoxifen
--they showed how well it was absorbed. Since skin becomes dry, thinner, and less resilient after the menopause, whether natural or induced, due to lack of estrogen, many of the compounds put in cream to restore "youthfulness", moisture, etc may have estrogen-like ingredients.In this case, the ingredient is NOT there for that property. It is just a preservative,

I only suggest people think about IF their tumors are ER+ and if they are taking antihormonals, perhaps trying to find a cream which did not use parabens as a preservative might be a cautious (and perhaps prudent) move.
Lani is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:51 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter