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Old 09-27-2010, 11:44 AM   #1
mmoons
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Question about anniversary date

Hi friends -

I know this has been discussed before. In fact, I may have even asked it. Ha ha. Chemo brain stricks again. I am not finding the answer using the Search.

I was diagnosed October 1, 2008. I had my surgery May 5, 2009.

Which one, oh wise ones, is considered my "cancerversary"...?

Thanks!

Hugs,
Maureen
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Maureen


My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 09-27-2010, 11:58 AM   #2
PinkGirl
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Re: Question about anniversary date

Well, Becky says it's the date of your surgery. I think of my
anniversary date as when I was diagnosed. My oncologist
started counting from when I finished my treatments. I think
I'm 5 years out but my onc. says 4 years. Help????
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Dx Aug/05 at age 51
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Old 09-27-2010, 03:17 PM   #3
Jackie07
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Re: Question about anniversary date

I would think a 'survivor' is tied to his/her 'survival'. If the 'survial rate' is being calculated from the date of diagnosis, then I think we are survivors from the date of our diagnosis. [We start out by surviving the 'shocking news of cancer'... ]

But, since 'surgery' is usually the most traumatic experience during the journey, I think we tend to use the surgery date partly probably because it is our first 'survival' experience. Then again, how does one decide on the date when one has a surgery that overlap two days? Do we use the date when we enter the surgical ward? Or the date when the surgery is done?


http://www.mayoclinic.com/health/can...9/METHOD=print

Cancer survival rate: What it means for your prognosis

Find out what a survival rate can tell you and what it can't. This can help you put survival statistics in perspective.

By Mayo Clinic staff


One of the questions many people ask when first diagnosed with cancer is about their prognosis. You might want to know whether your cancer is relatively easy or more difficult to cure. Your doctor can't predict the future, but an estimate is possible based on the experiences of other people with the same cancer.
It's up to you whether you want to know the survival rates related to your cancer. The numbers can be confusing and frightening.
What is a cancer survival rate?

Cancer survival rates or survival statistics tell you the percentage of people who survive a certain type of cancer for a specific amount of time. Cancer statistics often use an overall five-year survival rate. For instance, the overall five-year survival rate for prostate cancer is 98 percent. That means that of all men diagnosed with prostate cancer, 98 of every 100 were living five years after diagnosis. Conversely, two out of every 100 died of prostate cancer within five years.

Cancer survival rates are based on research that comes from information gathered on hundreds or thousands of people with cancer. An overall survival rate includes people of all ages and health conditions diagnosed with your cancer, including those diagnosed very early and those diagnosed very late.

Your doctor may be able to give you more specific statistics based on your stage of cancer. For instance, 49 percent, or about half, of people diagnosed with early-stage lung cancer live for at least five years after diagnosis. The five-year survival rate for people diagnosed with lung cancer that has spread (metastasized) to other areas of the body is 3 percent.




Overall survival rates don't specify whether cancer survivors are still undergoing treatment at five years or if they've become cancer-free (achieved remission). Other types of survival rates that give more specific information include:
  • Disease-free survival rate. This is the number of people with cancer who achieve remission. That means they no longer have signs of cancer in their bodies.
  • Progression-free survival rate. This is the number of people who still have cancer, but their disease isn't progressing. This includes people who may have had some success with treatment, but their cancer hasn't disappeared completely.
How are cancer survival rates used?




You and your doctor might use survival statistics to:
  • Understand your prognosis. The experience of other people in your same situation can give you and your doctor an idea of your prognosis — your chance of achieving remission. Other factors include your age and your general health. Your doctor uses all of these factors to help you understand the seriousness of your condition.
  • Develop a treatment plan. Statistics can also show how people with your same cancer type and stage respond to treatment. You can use this information, along with your own goals for treatment, to weigh the pros and cons of each option. For instance, if two treatments give you similar chances for remission, but one has more side effects, you might choose the option with fewer side effects.
What can't cancer survival rates tell you?

Cancer survival statistics can be frustrating because they can't give specifics about you. The survival rate for people with your particular cancer might be based on thousands of people. So while cancer survival rates are meant to give you a general idea of most people in your situation, they can't give you your individual chances for remission. This can be frustrating and for that reason, some people choose to ignore cancer survival rate statistics.

Survival statistics don't take into account other medical conditions you have. If your health is otherwise perfect, you're likely to have a greater chance of survival than the statistics suggest. If you have other very significant medical conditions, you may not have the chance of survival suggested by the statistics. Your doctor may be able to help adjust the statistics for your specific situation.




Survival rates have other limitations. For instance, they can't:
  • Give you information about the latest treatments. People included in the latest cancer statistics were diagnosed more than five years ago. The effects of any recent treatment discoveries won't impact survival statistics for at least five years.
  • Tell you what treatments to choose. That's entirely up to you and your doctor. For some people, the treatment with the greatest chance for remission is the one they'll choose. But many people figure other factors, such as side effects and the treatment schedule, into their decision.
Understanding the numbers


CLICK TO ENLARGE

Survival rate

Survival rates are usually given in percentages. You might find that it's easier to understand the numbers in terms of people, not percentages. For example, the five-year survival rate for non-Hodgkin's lymphoma is 63 percent. It might be easier to comprehend if you say it this way: For every 100 people diagnosed with non-Hodgkin's lymphoma, 63 survived for at least five years after diagnosis. Conversely, 37 people died of non-Hodgkin's lymphoma within five years.

If your doctor talks about statistics and you don't understand, ask for an explanation that makes sense to you. Ask questions if you need more information.

It's up to you and your doctor to interpret the numbers. You might think a 63 percent survival rate is positive, or it may frighten you as you think about your future. Your doctor can help you put the statistics in perspective and help you understand your individual situation.
You might choose to ignore cancer survival rates

It's entirely up to you whether you want to know the survival rates associated with your type and stage of cancer. Because survival rates can't tell you about your situation specifically, you might find the statistics are impersonal and not very helpful. But some people want to know everything they can about their cancer. For that reason you might choose to know all the statistics that pertain to you.

The more you know about your type, grade and stage of cancer, the more closely you can predict your risk. If you have a very localized cancer and you are using statistics that include many people with a more widespread cancer, then that data may not apply to you.

Knowing more about your cancer can reduce the anxiety you feel as you analyze your options and begin your treatment, but survival statistics can be confusing and frightening. Tell your doctor if you'd prefer not to pay attention to the numbers. And if you have any questions or concerns about the statistics associated with your cancer, talk about it with your doctor.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 09-27-2010 at 06:00 PM..
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Old 09-27-2010, 05:27 PM   #4
karen z
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Re: Question about anniversary date

I think many refer to the date of their surgery but, like others above, I count the date as the day I knew I had cancer. There were 13 days between that date and my lumpectomy but the first date is the one that is more burned into my brain. I remember both dates without difficulty but have many more details and much more of an emotional response to my "finding out" date.
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Old 09-27-2010, 05:30 PM   #5
mmoons
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Re: Question about anniversary date

That is why I am so curious about this. I had 8 months of chemo before surgery. So there is a big difference for me. If it is the day of diagnosis, Friday is year 2 for me. If it is the day of surgery, I am only 1 year and 4 months out. Not that I am obsessing about it or anything........LOL! :-)
__________________
Maureen


My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 09-27-2010, 05:37 PM   #6
karen z
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Re: Question about anniversary date

And I would NOT obsess (easier said than done, I know). Enjoy your freedom from treatment, your day to day life, and friends and family. Laugh much!
K
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Old 09-27-2010, 08:53 PM   #7
BonnieR
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Re: Question about anniversary date

I believe that you are a survivior from the day you learn you have cancer. That's when the journey begins.
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ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
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Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
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Old 09-27-2010, 10:27 PM   #8
Jackie07
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Re: Question about anniversary date

From the story below posted by Joe back in April, it is really a personal decision:

http://www.nytimes.com/2010/04/27/he...?_r=1&emc=eta1
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 09-28-2010, 09:00 AM   #9
nitewind
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Re: Question about anniversary date

I count from the day I found out, it was two monthes later that I had surgery. So, it's about 4 years and 5 monthes for me.
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Age: 61
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