| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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07-05-2007, 09:31 PM
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#1
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Member
Join Date: Jan 2007
Location: San Clemente, California
Posts: 14
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Tykerb for Stage IIIc?
My onc told me this week that he would recommend Tykerb for me now, in place of the Herceptin I have been on for the past 18 months. My onc says it inhibits the crosstalk between HER1 and Her2. But my insurance will not cover it and it is $9000/month. He will keep me on Herceptin until the end of this year and then decide what to do. Are any of you Stage IIIers on Tykerb?
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07-06-2007, 05:39 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: NYC
Posts: 250
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Hi-- I haven't been offered Tykerb. I know there are others who are Stage III who have been pursuing this with their Oncs. Me, I'm crossing my fingers and hoping that I'll never need it.
Good luck.
Jen
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com
"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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07-06-2007, 06:53 AM
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#3
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Senior Member
Join Date: Dec 2005
Posts: 148
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Hi Connie,
I am stage 3 and I have been pursuing with my onc for Tykerb. FInally I got a prescription from the onc. The insurance denied it and the cost os going to run at 3100 USD per month.
My plan is to go for 6 months of Tykerb and 3 monthly dose of Herceptin as there is pre clinical data that shows Herceptin and Tykerb together have synergistic effect.
I know another member on this board could get it approved by insurance when the onc wrote a letter of neccisity.
Rupali
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07-06-2007, 02:13 PM
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#4
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Member
Join Date: Jan 2007
Location: San Clemente, California
Posts: 14
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Hi Rupal,
Thanks for your reply. It gives me some encouragement. I have written GSK and they have no options for me. I plan on calling them also.
What is the preclinical data you are referring to? My onc said he would not give it at the same time with Herceptin.
Are you on it now paying out of pocket? What area of the country do you live in? I'm interested in why I was quoted the $9000 figure and you were given $3100.
Connie
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07-06-2007, 02:40 PM
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#5
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Senior Member
Join Date: Dec 2005
Posts: 148
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Hi Connie,
I have still not started Tykerb. I got the 3100 price tag when I had caled GSK around 2 months back. ALso on this site some ladies had quoted similar prices.
9000 is too high and there is some confusion. Is that the price for 3 months of Tykerb?
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07-06-2007, 08:55 PM
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#6
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Member
Join Date: Jan 2007
Location: San Clemente, California
Posts: 14
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Hi Rupali,
My oncologist quoted my the $9000 as price per month. I emailed GSK, and they replied saying they couldn't help me. I will call them next week.
Connie
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07-09-2007, 08:56 AM
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#7
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Senior Member
Join Date: Dec 2005
Posts: 148
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Hi Connie,
I just got a call from Tykerb cares and they confirmed the price is USD 3100 per month and no Patient Assistance Programme is availble for STage 3's and most insurances will deny it.
So you will have to pay it out of pocket.
Regards,
Rupali
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07-10-2007, 02:08 PM
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#8
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Senior Member
Join Date: Dec 2005
Posts: 148
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Hi Connie,
Tykerb cares called me today that the maximum price of one month supply of Tykerb cannot be more than USD 3625 and lowst USD 2900
SO you need to check why your onc said 9000
Regards,
Rupali
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07-10-2007, 09:59 PM
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#9
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Member
Join Date: Jan 2007
Location: San Clemente, California
Posts: 14
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Hi Rupali,
I'm definitely checking with my oncologist about the discrepancy in numbers. I also will followup with Tykerb cares. Thanks SO MUCH for your help and information. My husband and I think $3000 a month sounds like a bargain compared to the $9000 number. Neither of which are we able to pay. I still want to know if there are any stage IIIers on Tykerb now, even with having to pay out-of-pocket.
Connie
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07-12-2007, 07:54 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: San Francisco Bay Area in California
Posts: 176
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Reply to Connie's post
Ask Michele U, from this message board, about getting some 800 phone numbers. Some organizations would be willing to help some patients with their fiances on purchasing Tykerb. Best luck to you!
__________________
Blessings & Peace,
~jojo~
1st Dx: May '03 at age 35
Stage 3b
6cm IDC tumor
17/18 + nodes
Neoadjuvant: 4x A/C dose dense; 12x weekly Taxol & weekly Herceptin
Left Mastectomy: Nov '03
27x Rads
Stage 4 since June '04
Still on maintenance Herceptin since the very beginning
Currently on Abraxane (3 weeks / 1 week off)
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07-12-2007, 10:06 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Following on Jojo's post, MicheleU is stage III and is/was on Tykerb.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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