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Old 02-21-2008, 10:09 PM   #1
Bev
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I don't know how they worded the findings, but a B MRI should erase any ambiguities, unless it's micro calcs. If it's micro calcs, maybe ask for a repeat comphrehensive, digital mamm. I don't see why it can't be done now instead of waiting. Waiting is the hardest part. Bev
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Old 02-22-2008, 07:45 AM   #2
mts
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I agree w/ Bev- a Breast MRI could really be helpful... BEFORE anyone starts poking around with a needle.
My tumors were not visible on digital mammo nor digital ultrasound... only Breast MRI worked...

Maria
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Old 02-22-2008, 11:52 AM   #3
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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GREAT ADVICE FROM SUCH GREAT LADIES.

FOR ME MAMMOG AND SONO WERE CONCLUSIVE.

IT IS INTERESTING TO HEAR -- WHAT NEXT, FROM THOSE OF YOU WHO KNOW BEST. Your takes are invaluable! Wise and wonderful every one. I am passing it all on...

I LOVE YOU ALL...

Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 02-22-2008, 08:34 PM   #4
caya
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Same for me Andi - the mammo and ultrasound missed my 2 tumours. - I got the all clear to have my breast reduction 3 months after these imagings, my plastic surgeon saw one tumour and cut it out separately- went in for a breast reduction, came out with breast cancer. My onc. and breast surgeon sent me for a breast MRI before my mast., the breast MRI found the second, 1 cm. tumour.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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