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I have a lot (and I mean A LOT!!!) of experience with osteoporosis, E+ breast cancer, supplements, dexa scans, aromatase inhibitors...see my signature!!! Started breast cancer treatment, already diagnosed 10 years earlier with osteoporosis. Hormone repl. therapy and actonel ( and calcium vit. D and weight bearing ex.) for 10 years, osteoporosis got worse. Then breast cancer dx (I am convinced bc caused by hormone repl. treatments). Arimidex for 5 years...still Actonel (caused upset stomach) switch to Fosomax...for 1 year, still stomach issues. osteoporosis about as bad as it gets. Went to rheumatologist who recommended Forteo, daily injections for 2 years. 18 months of forteo, significant bone improvement (15%), To stabilize the bones, now will have an infusion of Reclast (zometa) once a year for 2 years. In a "nut"shell that's my story! Please feel free to contact me with any ??'s!
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 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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