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Old 11-17-2007, 09:56 AM   #1
~Bellydancer~
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Location: Stony Mountain, Manitoba, Canada
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Question Wondering about Tx options

Hey there,
I am seeing my Onc's associate on Tuesday. I am er-/pr-, her2+ (severe). I would like to know what others with the same markers are taking for their chemo. I would like to have a heads up for this meeting.
Any help is appreciated.
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Michelle Dick
" Adversity Reveals your strength"

Dx August 15th/07
Invasive Ductal Carcinoma
ER/PR- negative, HER2- positive
Stage 11 with tumor size 3.5cm, .7cm satelite node
Sx Oct 2nd/07
Skin sparing mastectomy of left breast
immediate reconstruction DIEP flap
Nodes 0/3 Sentinal Node Biopsy
Chemo started Nov, 3 rounds FEC and 3 rounds Taxotere and Herceptin every three weeks
Radiation 28 Tx ended on June 13/08
Herceptin was stopped due to falling MUGA score (went from 62 down to 42)
Cardiologist Appt June 24th
Ramipril 2x/d to protect heart and hopefully increase LVEF
Officially NED
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Old 11-17-2007, 02:30 PM   #2
jml
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Posts: 415
The Breast Book by Susan Love, MD

Hi~
Getting educated is the most empowering thing you can do for yourself right now!You'll feel much more comfortable when you meet w/your onc if you have a solid base of knowledge.
I found Dr. Susan Love's book "The Breast Book" incredibly helpful & user friendly. Since your appointment's on Tuesday, if might be faster to check out her website, but I'd recommend getting the book regardless.

http://susanlovemd.org/breastcancer/

A common chemo combo for early stage BC is "AC +TH"
Adriamycin+Cytoxan, followed by Taxol + Herceptin.
I believe you'll be on Herceptin x 1 year, following active chemo.
Since you are Node Negative, there may be some modifications to this combo.
Hope this is helpful...it's been 51/2 yrs since my dx, and there have been many advances in BC treatment since then, so I wouldn't be surprised if my info is really out-of date.
Definitely check out Dr. Susan Love's website & buy the book - they don't call it The Breast Cancer BIBLE for nothing!

Take good care & best of luck~
Keep us posted
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Old 11-17-2007, 02:37 PM   #3
KellyA
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Location: Savannah, Georgia
Posts: 301
Hi Michelle,

My dx was also er/pr- and her2+++

I had Adraimycin/Cytoxan dose dense (every two weeks) x 4
Taxol every week x 12 weeks with Herceptin weekly x 1 year.

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 11-18-2007, 03:22 PM   #4
Mgarr
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My treatment was almost identical to Kelly except my Taxol started out every 2 weeks then to curb the neuropathy I was experiencing we switched to a weekly infusion. Herceptin w/ Taxol then continued Herceptin alone for a year.

Best of luck.

Mary
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Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 11-18-2007, 03:25 PM   #5
Brenda_D
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I had A/C times 4, every 3 weeks. Then rads, then Herceptin alone, every 3 weeks for the next year.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 11-18-2007, 03:28 PM   #6
Cristina19
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Join Date: Aug 2007
Posts: 38
Michelle,

I won't write a long post here, but I will refer to a long thread that I posted as I was about to go into chemotherapy. I got lots of responses and support.

See below: "Taxotere, Carboplatin, Herceptin"

I'll try to bring it up to the top of the list.

best,
Cristina
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