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Old 11-14-2007, 01:48 PM   #1
Ginagce
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Wink Stupid & Funny Comments For $64,000

IN RESPONSE TO RHONDA'S LATEST POST, I GO TO THINKING ABOUT ALL THE STUPID THINGS PEOPLE HAVE SAID TO ME OVER THE YEARS.
Also, all the funny things people have said.

SO, I THOUGHT, WHY NOT SHARE, COMPARE AND HOPEFULLY GIGGLE A LITTLE.

SO LADIES...HAVE AT IT!

LET'S START POSTING FOR OUR STUPID and/or FUNNY COMMENTS FOR OUR $64,000 CONTEST!

PRIZE: AT LEAST A HALF HOUR OF BELLY LAUGHING!
Here's my funny....at my "Chemosabi" turning 50 and just finished chemo party one of my oldest friends came wearing a baseball hat with writing. (I had insisted it be a HAT PARTY since I was bald and didn't want to be the only one in a hat cause I never wore a wig). Well being the vain woman I am I didn't have my glasses on and couldn't read the writing on the hat. So I asked Bill...what does your hat say.....his response...."Nice Boobs....They new?"

p.s. I had had bilateral mastectomies with recon.



GINAGCE
10 YEAR SURVIVOR
CRAZY LADY TRYING TO FIND "RIGHT" HORMONE TREATMENT

Last edited by Ginagce; 11-14-2007 at 01:53 PM.. Reason: add
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Old 11-14-2007, 01:51 PM   #2
Kimberly Lewis
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A new freind was visiting me at the house and saw a picture of me holding my son. Who's that?, she asked. That was me about 20 years ago I said. her next question was great - "What happened?"
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Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


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Old 11-14-2007, 05:17 PM   #3
Margerie
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After I told my MIL that I had bc and was going to have a mastectomy in a couple of days and then chemo, she said "Do you have to have a mastectomy? Or are there too many tumors? Because I was a nurse and all the mastectomy patients were in HORRIBLE pain for weeks." I went on to say the only bright side to mastectomy was I probably wouldn't need radiation (little did I know, I had a wad of + nodes) and she said "Well, that is good because if you have radiation, your hair will fall out and that will be just AWFUL!"

She never once asked how I was doing.
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 11-14-2007, 06:27 PM   #4
dhealey
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I work in a doctor's office and last year during chemo many of my patients would comment on my wig. One gentleman who had lost his wife to colon cancer asked me what kind of cancer I had. When I replied breast cancer, he asked if I had surgery, which I replied yes I had a mastectomy. He then proceeded to ask which breast had been removed. I was so floored that I just replied if he couldn,t tell then it was none of his business. Alot of patients also not knowing I had cancer told me my new hairstyle looked better than the way I had been wearing my hair. My wig was chin length and a shade of light brown, my natural hair before chemo was gray and short. Go figure.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 11-14-2007, 07:03 PM   #5
Vanessa
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I finished my first round of chemo in November, 2006. In January, I went with my to be son-in-law to pick up my daughter's engagement and wedding ring. I was still packing 30 of the 40 lbs I had gained. The salesperson asked when the wedding date was, when my son-in-law told her February 17th. She look at me and said Oh good, that will give you time to lose some of your weight. I was so hurt and embarrassed, but I took a great deal of pleasure in telling her that my weight gain was due to the steriods I have to take while I am on chemo. She was very embarrassed after that.
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Old 11-14-2007, 07:45 PM   #6
Joanne S
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Wink Margerie

I can relate. I always called my mother-in-law, the mother-out-law, so cold and uncompassionate. Fortunately for me she passed away prior to my bc dx.
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-14-2007, 07:56 PM   #7
Joanne S
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Vanessa, Thanks for sharing your story. Some say hurtful things unintentionally and some are just tacky and some are just plain stupid.

They Walk Among Us and Many Work Retail.

I walked into a Mickey D's with a buy-one-get-one-free coupon for a
sandwich. I handed it to the girl and she looked over at a little
chalkboard that said "buy one-get one free." "They're already
buy-one-get-one-free", she said, "so I guess they're both free" She
handed me my free sandwiches and I walked out the door.


They Walk Among Us and Many Work Retail.


One day I was walking down the beach with some friends when one of them
shouted, "Look at that dead bird!" Someone looked up at the sky and
said, "Where?"


They Walk Among Us!


While looking at a house, my brother asked the real estate agent which
direction was north because, he explained, he didn't want the sun waking
him up every morning. She asked, "Does the sun rise in the north?" When
my brother explained that the sun rises in the east, and has for
sometime, she shook her head and said, "Oh I don't keep up with that
stuff."


They Walk Among Us!!


I used to work in technical support for a 24/7 call center. One day I
got a call from an individual who asked what hours the call center was
open. I told him, "The number you dialed is open 24 hours a day, 7 days
a week." He responded, "Is that Eastern or Pacific time?" Wanting to end
the call quickly, I said, "Uh,
Pacific."


They Walk Among Us!


My friend has a lifesaving tool in his car designed to cut through a
seat belt if he gets trapped. He keeps it in the trunk.


They Walk Among Us!


My friends and I were on a beer run and noticed that the cases were
discounted 10%. Since it was a big party, we bought 2 cases. The cashier
multiplied 2 times 10% and gave us a 20% discount.


They Walk Among Us!


I couldn't find my luggage at the airport baggage area, so I went to the
lost luggage office and told the woman there that my bags never showed
up. She smiled and told me not to worry because she was a trained
professional and I was in good hands. "Now," she asked me, "has your
plane arrived yet?"


They Walk Among Us!


While working at a pizza parlor I observed a man ordering a small pizza
to go. He appeared to be alone and the cook asked him if he would like
it cut into 4 pieces or 6. He thought about it for some time before
responding. "Just cut it into 4 pieces; I don't think I'm hungry enough
to eat 6 pieces."


Yep, They Walk Among Us!


Remember that half of the population is below average! They walk among
us, AND they reproduce, and WORST OF ALL.......they VOTE!

Hope you got a little chuckle out of this. Well wishes to all my bc sisters!
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-14-2007, 08:06 PM   #8
sassy
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While I was without hair (BALD), I mostly wore hats. So my sons found a special one for Mother's Day. It read: "I'm too sexy for my hair--because it isn't there!"

I had one good zinger while on Chemo. I usually take the high road but felt my response to this one was warrented.

A student was asked to leave our school, and as is the case I get the unpleasant calls from the parent wanting to know what would happen to their money (They always fail to realize the responsibility of their child's action when asked to leave, and their misplaced anger is directed at us.) She called on Friday (my chemo day) and was old I was out of the office on Friday's. So bright and early Monday morning she calls me and tells me angrily that she had called me on Friday, but was told I was off on Friday's in the summer and THAT must be NICE!

I simply responded, "Actually, I take chemo on Friday's."

After a short pause, she stammered "OH, I hope that is going well." and her tone changed completely for the remainder of the conversation!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 11-14-2007, 10:54 PM   #9
Sherryg683
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I was playing tennis with a lady that I occaisionally play with after my treatments were done. We got to talking about my cancer and being stage IV. She said "At least you know how you are going to die, I've always wondered how I would die". I don't think she meant to be mean, in fact we were able to get into a frank discussion about death and facing death. That is something not many people around me wanted to talk about at the time. I actually appreciated her giving me an opportunity to vent my fears and listen to me..sherryg
__________________
Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 11-15-2007, 07:35 AM   #10
Hopeful
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I am a small person with small (32A) breasts. On more than one occassion when I have gone for a MUGA or other test, the technician asks me why I am there and I tell her BC. I get the invariable question, "So, you had a double mastectomy?"

Hopeful
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Old 11-15-2007, 08:20 AM   #11
Margerie
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Wink Joanne

I have also heard Monster-in-law. The blessing was realizing what a lucky girl I am having a wonderful husband who miraculously survived his childhood. He eventually grabbed the phone from me that day and told his mother her comments were inappropriate. 2 weeks later, after my surgery and final diagnosis, prognosis (and we have 3 little kids BTW and they were 2,4 and 6 years old at the time) she has only one question for him: "I have been bleaching my teeth every day for 3 months and they still look grey. What can YOU do about it?" (Hubby and I are dentists)

We laugh about it, but have told the kids she is on a LONG cruise. You are right Joanne- they walk (and unfortunately talk) among us!!
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 11-15-2007, 08:41 AM   #12
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My father and stepmother were visiting recently. My hair had just started to grow out and was still very short. I have worn it fairly short for years but nothing drastic. She looked at me and said that she guessed I would probably start keeping it short like that. I smiled and told her that I really didn't think so, since I had no choice in this.

When I was voting last week an older women that I have know for years, a little catty, was one of the volunteers at the poll. Her granddaughter and my daughters have been friends since childhood. She got this smirky little smile on her face and said, loud enough for all the workers to hear her, "I guess its a cute haircut, but isn't it the wrong time of year to get it cut so short? Aren't you cold?" I smiled, and told her just as loudly, that since I had been having treatments for cancer since March, I was just glad to have hair. I left her stnding there with her mouth open. I look like I have a crew cut gone wild, I don't see how these people could think it was fashion choice.

Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 11-15-2007, 09:31 AM   #13
Julie2
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Talking Thanks Joanne-good laughs

Thanks for putting together so many funny incidents. I had good laugh after so many days. You are good at narrating them so funnily.

Thanks!
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 11-15-2007, 09:58 AM   #14
madubois63
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While in the hospital for the mastectomy, I was sharing a room with a woman that had just been diagnosed with diabetes. A "counselor" came in to talk to her about managing her disease. The curtains were pulled, so she never saw me. My roommate was denying that she was sick and giving the woman a hard time. The frustrated counselor then said, "Marie, it's not like you have cancer!" I pulled the curtain open and with my bald head said, "EXCUSE ME??" That idiot ran out of that room so fast...

After my first bout with bc, I went back to college. I had endured a year of treatments that included chemo, a mastectomy, tram flap reconstruction and radiation. I was still tired but trying to get on with my life. I took the elevator to get to my third floor class one day. A woman gets on and says to me, "I'll take the elevator with the lazy people." As I was the only person on the elevator, I told her she may be the lazy one, but I had cancer. Her mouth dropped and she apologized. She got out on the 2nd floor and ran...


__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 11-15-2007, 10:15 AM   #15
lilyecuadorian
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I was in the phone with a "friend" who was telling me about her legal issues ...I told her no to worried ..that she have many option, solutions etc ...and I told her that look at me what I got it ..and she replay "oh yes your problem is totally diferent is nothing to do with mine Oh God thanks him is not that big seriuos" I was spechless just for try to help her and I endend with no hair of hope
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 11-15-2007, 08:36 PM   #16
Margerie
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Was checking out the Heal Magazines online edition. Funny reader stories.................

http://www.healtoday.com/current_iss...ices/index.php

Also if you check out the catheter story under "Spirit" heading-LOL.
__________________
Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 11-16-2007, 10:40 AM   #17
KRISS
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I had just gone bald and no more than 3 weeks later our lovely Britney Spears had her melt down and shaved her head. All I heard for a week was, " I see you are trying to be like Britney!" My reply quickly became "NO she's stupid and I have cancer"
But one of the cutest things I heard while being bald was this. I am a zoo keeper and work with a lot of children. One day this 6 year old boy came up to me and pulled on my shirt and said. "That's OK, my uncle likes to wear his head bald too" I about died. I t makes me smile to this day.
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 11-16-2007, 11:20 AM   #18
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Kriss - my friend Gen had the same "Britney" experience and told a similar story at our support group party last night! HA. People are so stupid sometimes. Good answer!
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 11-16-2007, 05:59 PM   #19
Becky
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Location: Stockton, NJ
Posts: 4,179
As many of you know, I was about 4 months out from my last Taxol when I started Herceptin as it was okayed by ASCO till then. Everyone at work expected I was "done" as I had finished chemo and rads. When I knew I was going to be able to start it, I told my boss. He was good to me during everything, letting me work from home when need be. However, he was a nerdy guy and quite antisocial. I had to tell him I would be leaving every Friday afternoon for a year and explain Herceptin, the trial being over and I could get it and Her2 in general so he would "get it". After I explained everything he said "Are you going to die?" And I said, yes, I am going to die and you are too. Everybody eventually dies.

I was floored though. The response was one I would have expected from a 5 year old.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 11-16-2007, 06:44 PM   #20
KellyA
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Location: Savannah, Georgia
Posts: 301
I was shopping in a local dept. store one afternoon and was wearing my favorite pink cowboy hat with a scarf underneath. I was minding my own business and just "shopping along" when two young women walked by and very loudy said, in a nasty way, "that must be one bad haircut. She looks ridiculous..." I turned around and smiled at both of them, took my hat off, and said, "no haircut, just a little chemo.." If I had a camera for the looks on their faces. Everyone around me stared them down and they couldn't get away fast enough. Then the most wonderful thing happened- about 10 minutes later, in the same store, a little girl that was about four said very loudly to her mom (with eyes as wide as saucers), "Look Mommy, WOW! It's a REAL cowgirl!" She was so cute. I just melted. Totally fixed the day.......

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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