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Old 11-12-2007, 02:39 PM   #1
momdeeco
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MRI not covered by insurance

My oncologist in Chicago recommended a MRI every 6 months alternated with a mammo every 6 months. My first MRI 6 months ago was covered by ins., but this one they aren't covering. Has anyone else had problems with this. Am I o.k. to do a MRI once a year? I am considering doing a double mastectomy so I don't have to fight with insurances and the worry of it all. My signature tells why the oncologist recommends frequent MRI's.
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Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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Old 11-12-2007, 03:20 PM   #2
chrisy
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You can appeal the decision, and have your doctor write a letter explaining why this is necessary. Getting either an MRI or Mammo every 3 months sounds like a lot, tho. Is this the plan for the long term or just a short time?

Getting a mastectomy just to not deal with insurance problems seems a tad drastic - although I know dealing with those folks can be very frustrating. Besides, that will cost them money too!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 11-12-2007, 04:59 PM   #3
Linda
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I agree that every 3 months may be overkill, and that's probably why your insurance co is balking. I had a partial mast and am high risk, and I go to a top breast specialist in LA. My followup is to see him every six months -- alternating mammo and MRI. If you do self exams, too, that should be enough. I've had no problem with insurance coverage (and actually my surgeon once added in an extra mammo of the cancer breast -- but I don't go more often than every 6 mos.)
Linda
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Old 11-12-2007, 08:25 PM   #4
Jean
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Karla,
I have a digital mammogram every 6 months and alternate with an MRI.
Most insurance companies will only cover the MRI once per year.

You may wish to look into the BSGI, Breast Specific Gamma Imaging.
MRI in general costs almost $2,000 while the Dilon BSGI cost $500
this new test uses radiotracer uptake to detect cancer independent of tissue density. If you feel you need to test every 3 months you may want to consider the Dilon test. Google Dilion to find out who in your area has the new machine. Only two are in New York so far.


http://www.mayoclinicproceedings.com...sp?AID=811&UID=
http://www.dilon.com/
http://www.medcenterone.com/services...aCam/index.htm
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Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 11-20-2007, 03:28 AM   #5
momdeeco
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I just received a bill for an MRI in May that this ins. isn't paying! I hadn't had a MRI since 12-05. Of course I am going to appeal it, yet it seems when I should be celebrating a 2 yr anniversay tomorrow, I in tears over ins. not covering recommended MRI and BSO. How can a doc that has never seen me be deciding my health care?
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Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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Old 11-20-2007, 05:35 AM   #6
Brenda_D
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Hi momdeeco. You should have your Onc write an appeal and explain why the MRI was necessary.

I also think the every 3 month thing is a bit much.
Can you point out why your Onc ordered it that way? Is it because you had to stop Herceptin?
If so, I would have them do a new Muga scan and see if you can get back on it now, since it's been awhile.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 11-20-2007, 06:48 AM   #7
momdeeco
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Brenda,
I think the reason of being so aggressive with the MRI's is because in 8/05 I had a normal mammo. In Nov. during SBE I found a lump. The mammo didn't catch it because of dense breasts. Also I am the 4th generation with BC on Paternal side. I have phone call into oncologist for her to write an appeal.
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Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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Old 11-20-2007, 10:14 AM   #8
hutchibk
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Yes! Appeal, because they don't expect you to. They expect an initial denial will just make you go away. Also, call your State Department of Insurance and get the address and dept. where you need to cc: the appeal letter to. Make sure you indicate that cc: on the bottom of your letter to the insurance company. Seeing that on the letter can really open their eyes and show them that you are serious, and they will also be required to justify their decision to the SDI, which will definitely keep them honest. This is how I got my second PET covered, which they tried to tell me was not necessary. Their response letter, which agreed that it would be covered, also explained the criteria in previously unknown detail, which in turn was able to help my doc get PETs covered for other patients with the same ins.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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