 |
11-12-2007, 07:54 AM
|
#1
|
|
Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
|
Help! Need Support!
Hi,
My breast cancer has returned for the 6th time. Starting Abraxane/Tykerb today. Had PET SCAN on 11/9/07 and get results today. Getting A little nervous here!!! Just need some support.
Thanks, Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
|
|
|
|
11-12-2007, 08:18 AM
|
#2
|
|
Senior Member
Join Date: Dec 2006
Posts: 415
|
HI Betty~
UGH! SO sorry you're going through this...again & again & again...I don't even know how to count the number of times my disease has recurred, or if I should just consider it one long bumpy road since may 2002.
Hang in there! Know that you can beat this disease back, again & again & again...as many times as you have to until there's a cure!
Where are you getting your treatment/docs?
I live in Atlanta & get treatment @Winship Cancer Institute @Emory. They're wonderful. The docs are great & make the process of multiple consults w/multiple different doctors so much easier.
Keep us posted & until then, keep the faith!
|
|
|
|
|
11-12-2007, 08:31 AM
|
#3
|
|
Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
|
Thanks for the encouragement... I also live in GA. I have been to Emory several times. Last visit was to see a surgical oncoligist to see if the largest tumors can be removed and was told surgery is not an option. Tumors are between my nerve bed and main artery. I see Docs @ GA Cancer Specialists, Breast Care Specialists @ Northside & Winship Cancer Institute @Emory. They are ALL excellent Docs and feel that I am in good hands.
I have been very fortunate that the cancer has not spread to other organs thus far. However, I am getting worried that it may since it keeps returning and growing at such a high rate.
God Bless You and again, thanks for your support!
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
|
|
|
|
|
11-12-2007, 08:48 AM
|
#4
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Betty
I am so sorry this cancer won't just give you a break...where are the recurrewnces located? It seems some are more stubborn, especially in the lymph nodes...I am forever recurring.....hoping that the Abraxane and Tykerb kicks butt and works some magic! You are in my thoughts as you begin yet another fight. Be strong, you will win!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
11-12-2007, 08:59 AM
|
#5
|
|
Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
|
My cancer was first diagnosed in my right breast and has remained in the area under my right arm. Cancer is not in any nodes it just frows and has stayed in this area.
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
|
|
|
|
|
11-12-2007, 10:10 AM
|
#6
|
|
Member
Join Date: Nov 2007
Location: Minneapolis, MN
Posts: 20
|
I am right there with you sisters.
Well ladies I am currently dealing with my sixth recurrence, I did the study for Tykerb and Xelosda it worked great for almost two years. Know I have mets to my neck, so I will start MCC_DM1 on friday... The road is long but I will to walk it again!
__________________
MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.
"Believe in miracles, and watch them happen!"
|
|
|
|
|
11-12-2007, 10:14 AM
|
#7
|
|
Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
|
MPB,
What is MCC_DMI? What kind of cancer did you have the other times?
God Bless us ALL!!!
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
|
|
|
|
|
11-12-2007, 05:50 PM
|
#8
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Betty,
Sorry to hear that you are dealing with so many local recurrences of your cancer. I can't offer any suggestions regarding treatment but do offer my support. I too go to GA Cancer Specialists but in Marrietta.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
11-12-2007, 07:40 PM
|
#9
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Dear Betty,
I am very sorry to hear that you have yet another recurrance.
Of course you have my support and prayers. Of course you are nervious
but you have been able to kick down this monster many times and I am certain with the good doctors you have will do so again. Please keep us updated on your progress. Sending you a big hug and prayers.
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
11-12-2007, 08:03 PM
|
#10
|
|
Senior Member
Join Date: Oct 2007
Posts: 203
|
Betty
I am praying for you, Betty, and for all you recurrences to stay LOCAL. Maybe they just don't like to travel, they like the neighborhood, let's keep 'em close by and zap em good!
Cannon
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
|
|
|
|
|
11-12-2007, 10:05 PM
|
#11
|
|
Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
|
Thanks to ALL for the great support you have shown. The pet was good! All the cancer is still local except, it is in the nodes between my breast and nodes around my collar bone area. No big deal!!!
Chemo went well. (Slept through it) Go back next Monday to see my Dr and more chemo.
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
|
|
|
|
|
11-13-2007, 09:39 AM
|
#12
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Betty,
I am happy that the recurrence is local. I am hopeful that your txs will knock it back.
Hugs,
Lexi
|
|
|
|
|
11-13-2007, 09:55 AM
|
#13
|
|
Senior Member
Join Date: Oct 2007
Posts: 47
|
Betty,
sending you hugs and hope that this treatment knocks the cancer's butt! You appear to be an amazingly strong woman who is quite capable of defeating this!
Patrice
|
|
|
|
|
11-14-2007, 02:01 PM
|
#14
|
|
Senior Member
Join Date: Nov 2005
Location: Philadelphia
Posts: 144
|
God Bless
And Keep You Safe. We're All Pulling For You And I Will Add You To My Prayer List.
Ginagce
|
|
|
|
|
11-16-2007, 12:17 AM
|
#15
|
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
I am very sorry about your recent reoccurance. I hope your new treatment plan works well to knock out those mets. Best wishes and I will keep you in my thoughts and prayers.
|
|
|
|
|
11-16-2007, 05:05 AM
|
#16
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
I am also sorry to hear it is back. I have just started the same treatment except that my disease is running around my body. I am glad yours is staying local, but I am hoping that this mix kicks butt for both of us. I am hoping to see a future posting from you saying you are NED.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
|
11-16-2007, 05:46 AM
|
#17
|
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
so sorry to hear it's back again. Hope the Abraxane shuts it down. Did you ask your onc about going back on Herceptin?
You'll get through this
hugs and love
sarah
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:54 AM.
|
Linear Mode
