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11-22-2007, 05:23 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 39
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Sister
Hi Allhavnt posted in long time, my sister died today aged 43 left behind 2 young children and wonderful husband. Again, I would like to thank you all for your support, especially Patty Z and Joe for advice and suggestions. Thankfully we were able, with support of district nurses and GPs to care for her at home as she wished with myself and others providing personal care. I hate this disease ut loved and respected my sister, especially, for her courage and strength which I hope he passes onto me now as I will need itHannah
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11-22-2007, 05:28 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Oh, Hannah! I'm so very sorry about the loss of your sister! I can't even imagine how you must feel. I lost my brother when he was 52 and have felt so alone without him. I believe you must have blessed her beyond belief by allowing her to close this life and enter the next as she wanted. God bless you! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-22-2007, 05:43 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Hannah
I am so sorry for your loss...a sister is a very special person we hold so close to our heart, so i know you are at a loss....may the love you were able to share in her final days, give you strength to carry on, knowing that she no longer suffers from this awful disease. Always keep her memory alive for her children...they will need you more than ever now. You are in my heart and prayers.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-22-2007, 06:46 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Hannah,
Please accept my heart felt sympathy in the passing of your sister. She was fortunate to have such a loving sister who made sure that her last wishes were fulfilled. I'm sure she's at peace now. Be strong as now her children will need you more than ever.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-22-2007, 06:48 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hannah, I am so very sorry for the loss of your beloved sister. My heart really goes out to you. I just recently lost my Mother from lung cancer and I miss her so much. I can only imagine how difficult this has to be on you right now. But hold those memories close to your heart. I'm sure your sister felt so blessed to have you with her on those final days. You have my sincerest condolences at this very difficult time.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-22-2007, 10:47 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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So sorry Hannah.Lost my sis this year to lung ca so this post is making me tear up. Cancer in all its forms seem so random and unfair. Love ya and take care. BB
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11-23-2007, 03:30 AM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hannah I too an so sorry for the loss you must be feeling for your sister, I hope it brings some small comfort to know she's at peace and free from pain. May God bless you all during this difficult time.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-23-2007, 06:54 AM
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#8
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Hannah, I am so sorry for the loss of your beloved sister. May you feel God's healing powers as you grieve you loss. May he give you the strength to carry on her memory through you for her children. She is an angel now watching over you.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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11-23-2007, 07:50 AM
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#9
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Senior Member
Join Date: Mar 2006
Posts: 306
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Oh Hannah.
I'm so very sorry.
Your devotion to your sister will a big part in what helps you find your way through.
Please accept my heartfelt condolences, to you and your family.
with love,
patty
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11-23-2007, 08:53 AM
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#10
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Hannah, I am so sorry. I lost my bay brother 3 years ago unexpectedly and it is still hard. I am glad you were able to be there for her.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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11-23-2007, 11:19 AM
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#11
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Hannah,
I am so sorry for the loss of your sister. Please know that you and her family are in my thoughts and prayers now.
Hugs,
Lexi
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11-23-2007, 01:21 PM
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#12
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Senior Member
Join Date: Sep 2005
Posts: 556
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Hannah,
I am so sorry for the loss of your sister. You are a good sister who helped her in fighting the decease. My deepest sympathy for the family.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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11-23-2007, 03:52 PM
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#13
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Hannah,
My heart goes out to you and your sister's family. You will at least have the consolation of knowing you were able to fulfill her wishes so she could be in the sanctuary of her own home at the end.
My thoughts and prayers are with you.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-23-2007, 04:42 PM
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#14
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Dear Hannah,
I am so sorry to hear about your sister. I am sending you my love and heartfelt prayers for strength and healing.
Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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11-23-2007, 06:11 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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My heart aches for your loss, Hannah. I too lost my sister, my only sibling, to BC in 1985, the year I was also diagnosed with BC. I have a lot of the letters she wrote me and I re-read them the other day. The pain never really goes away, but the joy of having had a sister will always remain. I pray time and the sweet memories of your sister will bring comfort to you as it has to me through the years. Hugs, TriciaK
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11-23-2007, 06:50 PM
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#16
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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I am so sorry to hear of the loss of your sister. My sister passed away 22 years ago at age 38, leaving behind a son, from a terrible auto accident. I never got the chance to say good-bye to her or my Mother (who died with her). I still hold them in my heart everday of those 22 years and tears fall at the oddest times. I wish I could be there for you and hold you close and take some of this pain away. She will always be with you, in the deepest part of your heart and soul. Again, I sned you my love and support and prayers for your family during this almost surreal time of pain and loss. Love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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11-23-2007, 07:25 PM
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#17
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I am so sorry for your loss, my heart truly does go out to you. My prayers are with you and your family.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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11-23-2007, 08:04 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Hannah,
I'm very sorry for your loss... Hopefully the date of your sisters passing will be one of special rememberance and not sorrow. What was your sister's name ? So many times we hear of sad news and it just puts an ache into my heart. I hope you are OK and that her children are loved at this very sad time.
Maria
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