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10-09-2007, 02:13 PM
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#21
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Kelly, I agree with Margerie. My brother called me one night with almost the exact same symptoms your having. He was really concerned. He said he had some pain the prior two days but nothing as bad as the night he wanted me over there. He felt so bad he was afraid to drive and thats so unlike my brother. Took him to hospital and it WAS gallstones. Hopefully you've been seen by now and have some relief and answers. Can't wait to hear from you. Keeping you in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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10-09-2007, 02:27 PM
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#22
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Member
Join Date: Aug 2006
Location: Central NJ
Posts: 16
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Kelly, I'm with the others. I'd say gallbladder, then appendix. The appendix is lower right, gallbladder is upper. And mets don't come on that suddenly I don't think. Of course I've never felt anything with my liver mets!! It's gotta be pretty far gone to have pain, I think. Let us know what it is; I know it's hard to ignore the daily tasks, but we have to take care of ourselves so we're here to do the daily tasks! Let us know how you are.
Julie
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10-09-2007, 02:48 PM
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#23
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Kelly,
I hope you are feeling better and have found the culprit for your side ache. I am hoping it is just your pesky gall bladder. Who needs it any way?!
Pleas let us know how you are doing.
Hugs,
Lexi
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10-09-2007, 02:57 PM
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#24
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Hi all,
Sorry I am just getting back with you. What a day. For some ridiculous reason,I thought I could go to work today and call my onc. from there. It was my middle son's b-day and I didn't want to miss his celebration. Long about 8:15, I realized that wasn't such a good decision. I spent the day at my onc's and getting an abdominal ultrasound. I am waiting to hear the results as I am typing this. He's supposed to let me know tonight. He felt very strongly that it was my gallbladder. I pray that that is all it is. Thank you so much for your concern and advice. Sorry to be such a panicky mess this am.
I will let you know when I hear for sure.
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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10-09-2007, 03:04 PM
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#25
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I hope you get your results back soon. I am with the rest of the group, my liver mets did not feel like that at all. I will be thinking of you, keep us posted.
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10-09-2007, 03:14 PM
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#26
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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maybe kidney stone, the pain is very intense and comes on like gangbusters with no warning.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-09-2007, 04:39 PM
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#27
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Guest
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Kelly,
If it is gallbladder and you need it out, I hope it works as mine did. I woke up from surgery and felt wonderful--mainly because I was finally out of pain after many months. I spent one night in hospital, was walking around next day, and aside from taking it easy for a week, was fine. Appendix removal was worse, but probably because it was removed twenty-five years earlier, when surgery was more difficult. Both surgeries are relatively benign these days. And, for you, the best news of all, not cancer!
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10-09-2007, 05:01 PM
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#28
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Relieved It Wasn't Appendix
Well hello Kelly! So glad to hear from you. And, don't be silly, we know you're no sissy. The kind of pain you described is not a trivial matter. Pain is alarming, in addition to hurting like hell. It is a sign something is very wrong. *We* on this board naturally go immediately to the worst case scenario. That's how we know we will survive -- catching bc before it progresses, in the nick of time, making it a matter of life vs *!#*^!! We've trained ourselves to be alert and in tune w/ev single change in our bodies, and we try to do it without obsessing, which is a neat trick, as we all know. And we all seem to feel, IN OUR MEDICAL OPINION, that this is not ca...
I was just hoping it wasn't appendix, as I have a friend who had the same urgent excruciating pain as you described and went to the doc and was insistent that they keep looking cause she knew this was serious. She is not a complainer. When they decided that it was appendix and immediately did the surgery they said it was a good thing because it was about to burst and become life threatening. She had refused to leave the doc's office (top doc of course) because her Inner Voice told her not to budge. So I wanted to be sure, Kelly, that yours wasn't a similar situation. That happened a 100 yrs ago but I have filed the info away in my brain.
Gall bladder is also severely painful. Though I never experienced that. I did have a kidney stone that sent me to the floor unable to move, after vomiting my guts up and feel sicker than I ever imagined possible. But the pain was in the back, in my kidney area, so I assumed your pain was different -- under the ribs in the front.
Any way thank you so much for relieving our anxiety as we have all been with you all day. Our thoughts and our hearts are still with you. Is hubby coming home soon? Waiting to hear sono results. With loving, healing, soothing energy,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-09-2007, 05:17 PM
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#29
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Vanessa,
Hoping you get the call from the oncologist that's it's just your gallbladder. You're in my prayers
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-09-2007, 08:31 PM
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#30
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Ya know, we don't really need our gallbladder anyway, right? It's fairly expendible. LOL
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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10-09-2007, 08:41 PM
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#31
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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I realized that I didn't miss my gallbladder nearly as much as I miss my breast. It was really a relief to get it out. If it has to be something then I hope it is something simple. I am so glad that you were able to get back to us. Take care.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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10-09-2007, 08:41 PM
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#32
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Sorry the Bday plans didn't all work out. Hope they can fix whatever it is. Bev
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10-09-2007, 09:21 PM
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#33
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Pleurisy, maybe??
With a sharp pain under the ribs like that, it reminds me of an attack of pleurisy. An inflammation in the lining between the ribs. Very painful and stayed for days. It did come on rather quickly as well.
Don't know if the ultrasound would pick that up.
Never had the gall bladder or appendicitis thing. And liver mets only started to bother me on the right side when very advanced.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-10-2007, 11:20 PM
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#34
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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i agree with Steph. It almost sounds like pleurisy or something going on with an inflammation in the lungs, I had severe pain and ended up in the hospital with radiation pneumonitis for 10 days. Have you had radiation within the past 3 months or so? Let us know how you are...we are all thinking of you and praying alot...Love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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10-10-2007, 11:30 PM
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#35
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Tough girl
Hey Kelly,
Thank goodness our medical staff was on duty at 3am. Do not play super human mom and tough girl. If you have pain, call for help. Hoping this is something that can be taken care of and you can get on with your son's birthday party....even if it is a few days late.
Hope to hear from you soon.
Hugs and prayers, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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