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05-31-2009, 02:30 PM
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#1
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Senior Member
Join Date: Oct 2007
Posts: 57
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Scary - time blood clot anyone?
Hi her2 friends,
First, thanks for your input on Herceptin/Ixempra and Herceptin/Doxil; I did choose the Ixempra mainly because I was still a litle nervous of cardio risk form Herceptin/Doxil
Well, the next scary thing that happened was an ultrasound showed I have a BLOOD CLOT at the portal vein that feeds in the liver! What kind of symptoms might I expect? (Bleeding) I was just started on anti-clotting injections daily. I do not know any bc survivor with this condition. Has anyone had a blood clot like this? What kind of symptoms (if any) did it cause? How was it treated?
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05-31-2009, 04:50 PM
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#2
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I didn't have a blood clot, although doctors thought I did and gave me a shot of blood thinner. Turned out the test was wrong. I had a nose bleed as a side effect.
A friend in my support group (a Her2 buddy) had two blood clots in her lungs. They gave her blood thinners. She's fine now.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-31-2009, 06:33 PM
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#3
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Lida,
The heparin injections should help to dissolve the clot. It is always troublesome to have a clot anywhere in the body as it can travel and occlude a much needed vessel. I doubt you will experience many, if any symptoms related to the clot as it dissolves away.
I will pray your clot resolves painlessly and quickly, that you will not be overwhelmed with anxiety, but will have peace in this storm.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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06-02-2009, 06:36 PM
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#4
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Senior Member
Join Date: Oct 2007
Posts: 57
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Hi friends,
I appreciate your advice and support regarding my scary blood clot in the left portal vein. Mjo, if you know, what med did your friend with the lung clots get -Heparin, Comadin, or something else? Laurel, I am taking Lovenox shots which are a form of Heparin which is an anti-coagulate - not a clot buster. I hope it helps my situation, prevents worsening, and that the clot dissolves on its own. It is still SCARY because if it becomes fully blocked, bleeding and enlargement of liver, spleen etc. can occur! But assistance of my her2 friends means so much to me. If you have any additional info and advice, please let me know. Lida
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06-02-2009, 07:11 PM
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#5
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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You are being very brave, Lida. I'm certain I'd be an absolute wreck. How will your docs determine if the clot has dissolved? By scanning? How long do they project you will have to be taking the Lovenox?
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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06-03-2009, 06:06 PM
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#6
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Senior Member
Join Date: Oct 2007
Posts: 57
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Laurel and her2 friends,
I am not sure how they will monitor the clot, but imaging will be done often. They expect I will be on Lovenox 4-6 months! Anyone have more info on this, please post. Lida
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06-03-2009, 07:02 PM
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#7
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Oh Lida, that is a long travail! I am so sorry you are facing this. Hang in there and please keep us updated from time to time. Sending prayers to the Almighty on your behalf!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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