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Old 03-10-2013, 01:37 AM   #1
Turboguilly
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Join Date: Feb 2013
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Cool Here is my story

It's not up to date, but will be shortly

http://www.amberguilbeauxsbreastcanc...y.blogspot.com

Thank you for reading
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Old 03-10-2013, 05:50 PM   #2
'lizbeth
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Re: Here is my story

Nice blog. You had surgery on Valentine's Day? A little weird, but on the other hand it makes a great day to celebrate every year as a survivor.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 03-13-2013, 03:15 AM   #3
Jackie07
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Location: "Love never fails."
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Re: Here is my story

Great pictures! Thanks for sharing.

My pathology report in 2007 was also a stage IIB. So far so good (breast cancer-wise.)

Be sure to eat well and walk everyday (a 30-minute walk does wonders!)

Sending you good vibes.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 03-21-2013, 09:58 PM   #4
Turboguilly
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Re: Here is my story

Thank you ladies. Yes 'lizbeth I had surgery on Valentines Day. I am NOT a girly girl & never liked (or celebrated) Valentines Day, but I will now. Thank you Jackie07 for the advice
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Old 03-31-2013, 06:51 AM   #5
Jackie07
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Re: Here is my story

Amber,

Your new picture on your blog looks wonderful!

You ought to use it as your Avatar.

To do so, click on FAQ on the maroon bar on top. Then click on 'User Profile features' before choosing the fourth one 'Signatures, Avatars and Profile Pictures'. And then click on the link at the bottom: 'Edit Avatar'.

Then upload the picture from your computer file.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 03-31-2013 at 06:58 AM..
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Old 04-02-2013, 05:56 AM   #6
jtelle
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Join Date: Mar 2013
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Smile Re: Here is my story

Here I am it is 4 in the morning and of course the anxiety voice starts going off. All the unknown about my upcoming chemo. Well I go on the computer, since I can't sleep anyway and I happen to see your blog. Thank you so much for sharing. I'm a positive person but with all that comes your way with cancer it's not always easy to be the optimistic person. I was diagnosed in December 2012 also and it has been a world wind since then. I had my surgery on Feb 28th, my lymph nodes were clean so no radiation for me I also have a tissue expander, not the most comfortable thing. Last week I meet with my oncologist for the first time and he said chemo and herceptin. Said my HER2 came back high I start chemo April 10th. I went to the wig shop the other day to play with some wigs..I also want some kind of control in this so I too will be shaving my head before my hair falls out, as will my husband Anyway I want to thank you again for sharing your story it has really helped me to keep going this morning and stay positive.
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Old 04-06-2013, 09:31 AM   #7
midgalilswimmer
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Re: Here is my story

Thanks for sharing the blog. I am on chemo presently prior to my lumpectomy. Anxiety resounds with me, I thought I was going crazy waiting for treatment to begin. Now post 2 chemo treatments my anxiety has gone into the background. I only take my xanax to counter act the decadron steroid affect and sleep on the day before and the day of chemo. Also the antinausea works for helping me sleep post chemo.

I shaved my head 2 weeks ago. I let my hair start falling out on its own. First got my hair cut short and then went to the next step. Actually felt good to shave it because was a little itchy by then. I made an event out of it at the hair salon. Took champagne and both my wigs and let my stylist cut them a little till I felt pretty. For me hair loss has not been that big of a deal but we are all individuals. I just hope it doesn't come back grey but by the time it does I guess I will be ready to see it!
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Victoria
Age 48
1/20/2013 Found lump in Right Breast
1/22/2013 Ultrasound/Mammogram lump is of concern
2/5/2013 Needle Biopsy
2/7/2013 Dx of Breast Cancer
2/19/2013 HER2 Positive confirmed
3/1/2013 Port Placement
3/5/2013 Chemo begun Taxotere & Carboplatin w/ weekly Herceptin. 6 total chemos every 3 weeks
3/15/2013 BRCA tests both negative
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