HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-10-2010, 09:46 AM   #1
v-ness
Senior Member
 
v-ness's Avatar
 
Join Date: Nov 2009
Location: western ma
Posts: 280
Unhappy what to do about nosebleeds?

hi - i haven't had a nosebleed since i was in 4th grade but i've started getting them in the past few weeks. i didn't really think too much about them since they ended quickly. however, after TCH infusion #5 my nose feels like it's been sucked dry of all moisture and i can't blow my nose without the tissue being full of blood and clots this weekend. my mother suggested i put vaseline in my nose, but i read on the web that you can inhale the petroleum particles and that is not good. is there a good and healthy way to moisturize up there? breathing isn't painful, but i am now aware of the dryness of every breath and i can't imagine this constant disruption of the healing scabs is very good. p.s. no, i don't take anything that can be considered a blood thinner. i think it is purely a chemo or herceptin side effect and yes, i have an all-night vaporizer going, to no avail. thank you for any tips you may have. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
v-ness is offline   Reply With Quote
Old 01-10-2010, 12:30 PM   #2
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Re: what to do about nosebleeds?

Have you seen this thread?
Tykerb SE's -OUCH!!
jml
You might have something in common besides being co-members.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 01-10-2010, 12:31 PM   #3
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: what to do about nosebleeds?

I had to discover saline spray and a gel mady by AYR to help my nostrils through my chemos.

I did not use vaseline. You may find other products to help in a local natural foods or supplements store. You can make you own saline solution if you don't want to spend $3 or $4 on each container at the stores.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 01-10-2010, 12:54 PM   #4
Carolyns
Senior Member
 
Join Date: Jun 2006
Location: South Florida
Posts: 477
Re: what to do about nosebleeds?

Hi - Great question. I have found Ocean Gel to be very helpful for me. It is not a spray but a gel and that is what I need something that stays put.

I buy mine at Walgreens in the area where they have saline nasal spray. Here is a link to the website:

http://flemingpharma.com/content/view/111/91/
Carolyns is offline   Reply With Quote
Old 01-10-2010, 01:07 PM   #5
v-ness
Senior Member
 
v-ness's Avatar
 
Join Date: Nov 2009
Location: western ma
Posts: 280
Re: what to do about nosebleeds?

thank you. saline spray didn't occur to me because to me salt = dryness, like your skin after the beach. but i just ran to the pharmacy and that's exactly what the pharmacist suggested so i just took a couple snorts of Ocean something or other. i've just felt like i was breathing through 2 raw holes in my face.

i'm sure i need to be hydrating better too. my lips are raw and chapped. i hate winter.

p.s. carolyn - just saw your post. wish i'd seen the gel! that makes more sense.
v
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
v-ness is offline   Reply With Quote
Old 01-10-2010, 03:00 PM   #6
vlcarr
Senior Member
 
vlcarr's Avatar
 
Join Date: Jun 2009
Posts: 343
Re: what to do about nosebleeds?

My onc said to use A&D ointment in my nose--worked well for me.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
vlcarr is offline   Reply With Quote
Old 01-10-2010, 03:02 PM   #7
Carolyns
Senior Member
 
Join Date: Jun 2006
Location: South Florida
Posts: 477
Re: what to do about nosebleeds?

Some times the gel is there on the shelf and sometimes it is not. The Walgreens where I go is near to my cancer center and my cancer center has samples of the gel on hand. My guess is that many go to Walgreens when the samples run out and that is why they stock it. Anyway, it really does the trick for me.

Good luck. Carolyn
Carolyns is offline   Reply With Quote
Old 01-10-2010, 04:11 PM   #8
yankeebikachic
Senior Member
 
yankeebikachic's Avatar
 
Join Date: Jul 2008
Location: Durham NC
Posts: 73
Re: what to do about nosebleeds?

Its cold and dry, it's winter and you are getting treatment. But of course, you are having nosebleeds! You can of course tell your doctor, but I would just get some saline nasal spray at the pharmacy. I had to use it during my treatment when I started turning the heat on in winter. Also, use a humidifier.
Beth
__________________
4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
yankeebikachic is offline   Reply With Quote
Old 01-10-2010, 04:22 PM   #9
CindyE
Senior Member
 
Join Date: Apr 2008
Location: WA State
Posts: 199
Re: what to do about nosebleeds?

I too had nose bleeds during chemo. Had a few really bad ones that just wouldn't stop for like an hour. I used some saline spray and it helped alittle but just had to deal with the bleeding when it happened. Thankfully once chemo was over and my body and my counts got back to some normalcy, I didn't have any more nose bleeds.
__________________
Cindy

L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008

Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!



I am calling this my pink journey
Follow my journey into the pink at my blog here

CindyE is offline   Reply With Quote
Old 01-10-2010, 04:53 PM   #10
v-ness
Senior Member
 
v-ness's Avatar
 
Join Date: Nov 2009
Location: western ma
Posts: 280
Re: what to do about nosebleeds?

for the record, i've had a humidifier going. so far the saline spray is OK but it dries up quickly. i may go look for that A&D cream tomorrow. something that actually stays put and presumably sinks in sounds good. however, saline has equaled no blood today even if my nose still hurts. thanks, guys. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
v-ness is offline   Reply With Quote
Old 01-10-2010, 04:59 PM   #11
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: what to do about nosebleeds?

Toward the end of treatment nosebleeds are fairly common as your counts are lower and lower. I suggest a bit of B-complex. That worked well for me. Nosebleeds are a bit scary.
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote
Old 01-10-2010, 05:07 PM   #12
vlcarr
Senior Member
 
vlcarr's Avatar
 
Join Date: Jun 2009
Posts: 343
Re: what to do about nosebleeds?

I wanted to mention that the A&D helped with my nose not being so sore and crusty. I would feel like I had sores in my nose along with the bleeding.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
vlcarr is offline   Reply With Quote
Old 01-10-2010, 05:37 PM   #13
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: what to do about nosebleeds?

As already mentions the Ocean saline spray works well. Keeps things moist. I know of one women I chatted with at my cancer center once...she ran into the same problem you have. She was having really bad nose bleeds/clots. That's when her onc told her to get the Ocean spray and also gave her some type of ointment that was an anti-biotic that you put a tiny bit on a Q-tip and spread it around in each nostril. She said it had her nose feeling great in two days. Got rid of the scabs almost immediately. I don't know the name of the ointment...but you might want to ask your onc about it.

Once you get it all healed up, and continue with the saline spray it should be ok after that. By the way...I tried the Ocean spray "Gel". I thought that would be great, (NOT) It's not thick enough and doesn't really coat the inside of the nose like I'd hoped it would. I was disappointed. I've had better luck taking a Q-Tip and wiping regular Chapstick inside my nose. Works great for me. The Chapstick keeps that dried up crusty crap away when I'm on Herceptin.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 01-10-2010, 06:11 PM   #14
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: what to do about nosebleeds?

I think Chelee is talking about Neosporin or Bacitracin. They are both clear salves that are antibiotic. I still use them applied with a Q-tip when I have a cold, or going on an airplane!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 01-13-2010, 11:43 PM   #15
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Re: what to do about nosebleeds?

Valerie, I had that problem with TCH. The chemo effects mucous linings such as inside the nose. I tried the yoga nose washes...didn't help much. What did help for me was to swab a little neosporin inside my nose before going to bed.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 01-17-2010, 06:55 AM   #16
DanaRT
Senior Member
 
DanaRT's Avatar
 
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
Re: what to do about nosebleeds?

I suffered terrible nose bleeds while on TCH. They would last a long time. The blood would run out making a huge mess. It frightened my co-workers when they saw how quick it came on. It was a sore in my nose that needed cauterized. I used neosporin while it healed but had to be careful not to disrupt the healing process when applying it. The cauterization was a success!

Dana
__________________
-Dana-

]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
DanaRT is offline   Reply With Quote
Old 01-17-2010, 05:41 PM   #17
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: what to do about nosebleeds?

I think I started to pay attention to my hydration - drinking plenty of fluid after I had experienced the 'bloody nose syndrome;. I was told by the nurse practioner to use vasaline inside my nostril. I also tried to breathe in some 'steam' off a pot of boiling water (cheaper than getting a steamer - it's also like a home-made humidifier (sorry, I'm just 'cheap', but it worked

I think getting plenty of fluid is the most important part. I've been having dry and chapped lips and dry blood inside of my nose every day the past few months. After I had the hysterectomy/oophorectomy done in the hospital last Thursday, I ate several meals there that was basically juice + juice + juice + milk + soup. And I noticed that I didn't have the dry lips and bloody nose any more - even with the air filter going on all the time in my room.

So I began to drink more juice, eat more soup after I was discharged from the hospital. So far my lips have stayed normal (not peeling.) and I haven't experienced any dry blood inside of my nose.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote
Old 01-18-2010, 12:45 PM   #18
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: what to do about nosebleeds?

I do not have any tips for you, unfortunately...I also get frequent nosebleeds. They started during chemo. They are not as severe now as they were, but every once in a while I get a doozey, usually in the morning. I have learned to go around with a wadded up tissue hanging out of my nose when they happen. Do you have a visual???!!! xo Suzan
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 01-19-2010, 08:21 AM   #19
lizm100
Senior Member
 
lizm100's Avatar
 
Join Date: Mar 2008
Posts: 141
Re: what to do about nosebleeds?

How about natural vitamin E oil? I know Vitamin E can thin the blood when taken internally but I doubt it would if applied topically. I know it helps to heal skin abrasions and moisturizes at the same time. You can either buy it in soft gel form or in bottle form, is relatively inexpensive and is multi-purpose.

I almost forgot to mention that I also use organic almond oil by the NOW brand for moisturizing as well. It's an oil that you can apply topically and cook with it, so know it's definitely not toxic when taken internally.
lizm100 is offline   Reply With Quote
Old 01-22-2010, 09:37 AM   #20
islandgirl
Member
 
Join Date: Jan 2010
Posts: 22
Re: what to do about nosebleeds?

Greetings: I appreciate your concern about nosebleeds. Mine were daily on Taxol and Herceptin, now, with just Herceptin, it is very dry, but with bleeds. I have used non-pertroleum based vaseline and/or olive oil on a q-tip (sounds weird, I know, but it worked). It's such a goofy side effect - but daily an irritating thing. Wishing you the best.

Jude
__________________
2002 Dx with DCIS, low-grade, non-invasive Estrogen/Progesterone +. Lumpectomy (10/26/02) Bad margins.
2002 (12/2/02)Mastectomy left breast
2004 lump right breast. Lumpectomy 6/09 (benign)
2007 total hysterectomy (fibroids/family hx of ovarian cancer)
2009 Dx with DCIS, high grade 3 with microinvasion. Estrogen-Progesterone -, HER2 Neu +
2009 (3/26/09) Mastectomy right breast
5/09 - 8/09 weekly Taxol/Herceptin
8/09 - Present - Herceptin every 3 weeks

6/10 Begin breast reconstruction!
islandgirl is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:22 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter