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Old 01-06-2010, 01:43 PM   #1
Cal-Gal
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6 months post-chemo and hair on body slowed-stopped?

Hi all--

This is really strange but thought I would reach out to all of you to see if anyone else had this happen-and perhaps knows the reason for this happening?????

My hair--all over-- legs, underarms-even on my head-has slowed to almost stopped growing--

Right after chemo, my hair all over my body grew in--it was like working overtime for the first month--had to shave my legs like 2x a week versus normally 1x a week--

Then after the first month my hair growth settled in for the next 4 months of regular pre-chemo growth--

In the last 2 months-I have only shaved my legs 1 time!!!!
there is virtually no hair under my arms and the hair on my head has slowed and grown very little in the last 2 months--prior to that it was really growing fast-which is normal for me--

What is up with all of this?

I am freaking out that this means that the cancer is back??

Thanks so much--
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-06-2010, 02:42 PM   #2
Gerri
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Re: 6 months post-chemo and hair on body slowed-stopped?

Hi Cal-Gal,

I see from your stats that you had a little break between chemo and Herceptin - that may be the answer. For me, Herceptin seemed to make my hair regrowth an extremely slow process - I believe others have experienced the same thing. After completing Herceptin my hair started to grow back at a normal rate. I still have very little underarm hair, as well as hair on my legs (okay by me!). My hair has grown back just as thick as before but my eyebrows and eyelashes are not as long or thick as before - makeup "makes up" for what is lacking .

Hang in there - things return to normal eventually; it's getting there that is so hard to deal with at times.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 01-06-2010, 04:03 PM   #3
Chelee
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Re: 6 months post-chemo and hair on body slowed-stopped?

I totally agree with what Gerri had to say. She's right on the money. I realize once dx with bc everything worries us...believe me...I know. But you will see soon your hair will start growing again. I know the hair on my legs and under arms has never been the same. There is nothing really worth shaving under the arms or legs anymore...which works for me. So don't worry about that...I find that to be pretty normal after chemo.

But the hair on your head and eyebrows will be fine even though it might not seem like it right now. I know till I was completely off herceptin my hair just did not grow back very fast. Seems like to took forever. But not soon after finishing herceptin my hair grew much faster then before. It may of been slow at first due to the Taxotere and Carb...that is so hard on the body. So give it some more time and you will see how fast it will come back.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 01-06-2010, 05:12 PM   #4
Cal-Gal
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Re: 6 months post-chemo and hair on body slowed-stopped?

Thanks Gerri and Chelee!!!

Gerri you are correct---I believe my break between chemo and Herceptin was about than 2 weeks---agree Chelee--I am ok with the hair on my legs and underarms growing in slowly--no problem there--although would LOVE the hair on my head to speed it up!!!

thanks Ladies!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-07-2010, 09:37 AM   #5
MJo
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Re: 6 months post-chemo and hair on body slowed-stopped?

Ditto for me. I have a lot less underarm and leg hair three years after chemo and herceptin. That's a plus because I was a hairy girl.

My eyebrows grew back completely. Hair on my head grew back, but I think it's thinner. Down below is thinner too, but that could be age.
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 01-10-2010, 09:59 AM   #6
Cannon
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Re: 6 months post-chemo and hair on body slowed-stopped?

Agree with everyone, it's the Herceptin. My hair regrowth was very slow until I was done with it.
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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Old 01-10-2010, 04:15 PM   #7
CindyE
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Re: 6 months post-chemo and hair on body slowed-stopped?

I too have very little hair on my legs. I have really no hair on the underarm where I had radiation and the other armpit has just light growth. My eyebrow hair is very thin and I have to use a brow pencil now which is weird as my eyebrows used to be really thick and I had to pluck them so they looked normal. The hair on my head has always been fine and it's about the same as it was before chemo except that it's more curly.
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Cindy

L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008

Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!



I am calling this my pink journey
Follow my journey into the pink at my blog here

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Old 01-10-2010, 06:48 PM   #8
Cal-Gal
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Re: 6 months post-chemo and hair on body slowed-stopped?

Thanks everyone---amazing that there all these (some relatively minor) SE's from Herceptin--funny when you talk to Onc nurses or Onc--and you mention SE's they almost always say--that couldn't be from the Herceptin--what the heck is that all about??? I have persistent nausea, headaches and some dizziness etc--which 2/3 are listed on Genentech's site as SE's but all the above say--they don't think its the "H?"---

Oh well----

Thanks so much for your generosity all of you--
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-10-2010, 09:40 PM   #9
BonnieR
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Re: 6 months post-chemo and hair on body slowed-stopped?

Cal Gal, I would not worry about the hair loss as a sign cancer is returning since the loss was due to treatment, not cancer.
I concur with the others. My hair seems more sparse now.
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 01-13-2010, 10:18 PM   #10
Cal-Gal
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Re: 6 months post-chemo and hair on body slowed-stopped?

HI Bonnie-thanks for the note--my hair was growing like a weed--like normal the first few months off of chemo--and ON Herceptin-since I started Herceptin with only a 2 week break after chemo--and then a few months ago--it virtually stopped---really wild---but at least I have some hair!!!! that I am thankful for!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-18-2010, 04:21 PM   #11
Barbara2
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Posts: 621
Re: 6 months post-chemo and hair on body slowed-stopped?

Same here after 7 years...less hair everywhere, even eyebrows and head.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 01-19-2010, 10:08 AM   #12
lizm100
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Re: 6 months post-chemo and hair on body slowed-stopped?

Cal-gal-

I can't answer why your hair growth is slowed but other members are doing an excellent job as always.

Having fine hair most of my life I have always researched ways to make hair healthier and recall reading through numerous sources that doing a 5 min scalp massage with a few drops of oil (olive, jajoba, almond etc.) prior to washing your hair will increase blood flow to your scalp therefore help with growth. I do the almond oil if a have a few extra minutes and I will say that it gives my hair a nice shine and it looks much healthier.

I have also heard that adding a few drops of Rosemary oil to your shampoo and to work it through your scalp well each time you wash your hair will help stimulate hair folicles. I tried it and it didn't do a thing for me so I just stick to the almond oil

Lastly, I think pepermint oil is supposed to stimulate the hair folices too.

Ok, I'm all adviced out....lol

Wishing you the very best.
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Old 01-21-2010, 07:23 PM   #13
Cal-Gal
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Posts: 309
Re: 6 months post-chemo and hair on body slowed-stopped?

Thanks all for your thoughtful replies---

You guys are the best---I just don't know what I would do without you.......
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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