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02-09-2011, 08:25 PM
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#21
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Senior Member
Join Date: Nov 2009
Posts: 72
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Re: more surgery -now the other leg
Pam,
I am sorry to hear that you have to have more surgery; my thoughts and prayers are with you.
Estelle
__________________
Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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02-09-2011, 09:26 PM
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#22
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: more surgery -now the other leg
Pam,
Sending you as many good vibes as I can via cyberspace. I am hoping and praying that the surgery goes well and the Havaline (sp) is what you need. If your grocery store has those red roses for sale...go and get them now and pretend like Saturday is Valentines Day. You are our Valentine....All the very best. You have been through so much and I hope all will be better when you get through the surgery.
Hugs to our Valentine,
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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02-10-2011, 12:57 PM
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#23
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: more surgery -now the other leg
So sorry to hear you have to do all over again. I hope all goes smoothly and you are tearing around soon.
Sending you lots of prayers and hugs for a speedy recovery and effective treatment with Halavan.
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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02-10-2011, 01:22 PM
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#24
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: more surgery -now the other leg
Pam, I am so sorry that you have to do this now when you are still recovering from the previous surgery. Please know that you are in my prayers. God Bless. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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02-10-2011, 03:38 PM
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#25
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: more surgery -now the other leg
I will be thinking of you on Valentine's Day Pam. I think you should celebrate Valentine's with dark chocolate (lots of antioxidants) over the weekend.
Take good care of yourself. I hope you and Sheila become our Halavan champions !!!!!!!
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02-10-2011, 03:58 PM
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#26
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Senior Member
Join Date: Oct 2010
Posts: 229
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Re: more surgery -now the other leg
Pam,
I will be sending up prayers on Monday for a perfect surgery and quick recovery. What fabulous strength you have, it is so inspiring! Peace unto you through the weekend.
Elizabeth
__________________
Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
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02-10-2011, 05:32 PM
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#27
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: more surgery -now the other leg
Pam,
I just saw your post and am so sorry, sending all the Irish luck and ((((hugs))) I can muster just for you!! 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-10-2011, 07:03 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: more surgery -now the other leg
Best of luck...I will be thinking of you on Monday! xo Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-13-2011, 04:38 PM
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#29
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: more surgery -now the other leg
Hi Pam,
Just wanted you to know I'm thinking of you. Sending lots of good thoughts for Mondays surgery. I can only imagine how much your dreading this after doing your other femur not that long ago. It's actually a good you caught this problem now before a fracture happened later on during chemo. Now you will have a matched set and get this all behind you.
Sending best wishes that all goes well and that you have a speedy recovery. At least you know what to expect this time. Your truly an inspriation to me. I'm just so sorry you have to go through all this yet again! Will be looking for a update when you feel up to it. Hang in there Pam.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-13-2011, 08:22 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: more surgery -now the other leg
Dear Pam,
Please know that my thoughts will be with you tomorrow.
Best wishes,
Barbara H.
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02-14-2011, 06:47 AM
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#31
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: more surgery -now the other leg
Thank you everyone for all you well wishes. I'm off to the hospital today. Surgery isn't until 230 so it will be a long day. hopefully nothing will go wrong and it will be a good outcome like before. I probably won't have computer access for several days but will check in when I can, Peace, Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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02-14-2011, 07:22 AM
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#32
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Re: more surgery -now the other leg
Pam,
Best wishes and prayers being sent for your surgery and a good recovery. God bless. (((Hugs)))
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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02-14-2011, 11:47 PM
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#33
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Guest
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Re: more surgery -now the other leg
deaest Pam , monday is now completed, I wish you a good morning, All my energy wii be focus on your leg. Your not alone we are here. We continue to send you strength,each day
waitinhg and am ecxcited to hear uplifting news
suzanne
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02-15-2011, 08:55 AM
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#34
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: more surgery -now the other leg
Pam,
I hope today is good for you. I am praying for a speedy recovery. You are truly an inspiration.
Hugs,
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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02-15-2011, 11:17 AM
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#35
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: more surgery -now the other leg
Pam, I just wanted to say hello and send you my best wishes for a speedy, less painful recovery. You are in my prayers. Best Wishes. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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02-15-2011, 01:36 PM
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#36
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: more surgery -now the other leg
Pam,
Hope you are doing well. Hope to hear from you soon.
Amelia
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02-16-2011, 07:40 AM
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#37
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Re: more surgery -now the other leg
Pam,
You are a true warrior. I will be thinking of you this week.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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02-17-2011, 09:49 AM
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#38
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Guest
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Re: more surgery -now the other leg
Hi Pam. Thinking of you and hoping that all went well. Sending wishes for a good recovery!
Barb A
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02-17-2011, 08:49 PM
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#39
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: more surgery -now the other leg
Hey, Pam, just popping on to check to see if you have posted. I know it is only Thursday, but was hoping to hear how you are holding up. Hoping you are pain-free and resting comfortably. I just wanted you to know you are in my thoughts.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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