Starting new regimen Thursday - Page 3

Leslie's sister · 09-10-2007, 07:51 PM

Lolly, as you can see by all of these posts you are one loved woman! Keep fighting the fight. My prayer is that you return to NED and kick this rotten disease in the #*@*#!

SoCalGal · 09-10-2007, 07:54 PM

Lolly,
Sorry to read your post...also wishing you strength, courage and clarity to stay focused on the new regime. I think the fatigue is a result of stress and chemo. Try to keep your mind busy with things you enjoy and just keep putting one foot in front of the other until you are on this new regime. I am praying for you, and for all of us. xoFlori

PS - Are you anywhere near Eugene? My daughter will be a "Duck" soon!

lilyecuadorian · 09-11-2007, 07:38 AM

Stillhere,Me and my mother apreciatte the biographic, I hear he's done to many miracles ...

Jean · 09-11-2007, 07:54 AM

Lolly,
I just want to send my prayers and wishes to you that the new trt will kick those nasty mets down and out for the count.

Hugs,
Jean

Andrea Barnett Budin · 09-11-2007, 06:00 PM

LOLLY, I have you in my thoughts and prayers. Taxotere did the trick for me, so I'm hoping it'll knock yr canser out of the ballpark! Wishing you NED with all my heart! Always love your posts and your Spirit, Lolly. Sent with HUGE HUGS just for YOU... ANDI

rentrac · 09-11-2007, 06:31 PM

Dear Lolly,
It ain't fair. You are in my thoughts and prayers as you start the next new path in treatment. I'm hoping all those skin nodules decide to make like trees and LEAVE. Meanwhile, rest well and take joy in the comfort of your favorite resting spot.
warmly, Rentrac

Lolly · 09-14-2007, 03:33 PM

Just an update; the Xeloda approval finally came through this last Wednesday. A nice surprise is that it's now being covered 100% by Medicare Part B, just like the IV chemo's. In the past I had a $40 co-pay since it was an oral prescription. Good news!

<3 Lolly

pattyz · 09-15-2007, 07:48 AM

Oh! That is good news, Lolly.

How are you feeling otherwise? What's your dosage of Taxotere?

And how will your delayed Xeloda fit into your TXT/H schedule?

Because of my partner, Lyle's, recent dx of Stage III locally advanced bc and tx with TAC, I did Taxotere research. That's when I found all the POSITIVE reports shown with the Taxotere/Xeloda combos... This will be your experience, too, Lolly. yup. I just know it, that's all!

bighugs,
patty

nitewind · 09-15-2007, 07:59 AM

Great news about the drug coverage, Lolly. Things are starting to look up, praying for the taxotere to kick the nasty butt of this monster.
Hugs

tousled1 · 09-17-2007, 08:52 PM

Lolly,

Glad that your first Taxatore treatment went well. I had very good results with Taxatore ad I'm sure it will work magic for you.

Dina · 09-17-2007, 10:25 PM

Lolly - wishing you all the best with all these treatments as well. Wondering what do you all do for complete lack of energy? I'm on tykerb and navelbine at the moment, and often find I can't get out of bed all day - no chance of taking children to school in the mornings, and quite often still knocked out by the time it's picking up time!! Does exercise work to give more energy? Or is it just about staying in bed?

hutchibk · 09-17-2007, 10:51 PM

Dina, I have heard that regular exercise (even mild exercise as long as it's regular) really helps cut through the fatigue... that staying in bed just exacerbates the fatigue. I have just joined a gym, and plan to come up with a 20-30 min workout that I can do 3-4 x a week. I do walk regularly... but I know I should be doing more.

All the best Lolly - kick its butt!

Dina · 09-18-2007, 01:26 AM

thank you brenda so much for writing back - i do walking, but agree with you that exercise has to be a good thing..,what's everybody else's experience?

dhealey · 09-18-2007, 01:57 AM

That's great news Lolly! I know I was so happy when my insurance finally started paying for my herceptin treatments. I had to threaten getting a lawyer after 6 mos. and when I did that, they started paying for them. They even had to pay the oncologist interest. I agree exercise does help with the fatigue. I walk, do yoga, pilates and lift light weights. This has helped alot with the fatigue. It also helps to build your immunity. Best of luck to everyone!

Lolly · 09-19-2007, 08:13 PM

Well, I can't advise about the exercise since I don't get any, lol! I have just enough energy to do light housework and shopping, so far anyway.
Patty, I don't know what dose the Taxotere is, but I'll ask next week. I don't know if the Xeloda being delayed set me back or not, but I'm not worrying about it just determined to do some damage to those bad cells!

<3 Lolly

Dina · 09-20-2007, 02:22 AM

Yes, I'm the same - zilch energy, but wondering if doing exercise gives you more energy in these circumstances...??? Also what causes the lack of energy - the illness, or the treatment? and does it get better? The oncologists (here in the UK anyhow) don't seem to have these answers, and my sense from these forums is how much more proactive American patients are, and much better at getting answers and information too.

Anyhow, thanks so much for writing - it's such a lifeline, this support network, love, Dina

madubois63 · 09-20-2007, 03:28 AM

Dina - Walking is a great way to excercise. If the weather is not good, I go to a mall. If the weather is good, a beach is my first choice. It doesn't matter where, how fast or how long your walks are. Moving is the best thing. If one day you can't, then don't. The next day you may feel like walking twice as much. Listen to your body, and don't over due it. I believe the treatments are the thing causing the lack of energy more than the illness (of course, that depends on where the illness is). During my first fight with bc, I was not sick at all until they started the treatments. But, during the second fight, the mets were on my lungs making it hard to breath and move - slowing me down. During my fight with leukemia and graft verses host disease, many of the drugs I was/am taking literally atrophied my muscles. I could not lift my legs to go up a step at one point. As we decrease the medications, my muscles responded, and I am able to handle more and more steps up (I can walk for miles though, just not up - figure that out??) You will regain your energy, but it may take some time. The problem is that you will look so good, and everyone will expect you to feel that way...leaving you in the dust. Don't be afraid to tell them to slow down!
Love,Maryann

Dina · 09-20-2007, 05:25 AM

thanks Maryann - you look sensationally energetic in your picture. Just being by the sea is so health-giving isn't it, I'd love to have the option to walk on a beach every day!! My mets are in my lungs and at the head of the pancreas, so I have a stent inserted, which causes some of its own problems I think. I'm on navelbine, an intreavenous drug, taken two Tuesdays out of three, and tykerb, which is pills, taken every day (five a day). I've been given blood transfusions to help with the exhaustion, and they do help, but I figure I can't just keep having more blood poured into me every few weeks...so hence, the search for some better ways to combat the tiredness.

Thank you for your lovely, cheering note, love,Dina

Emelie · 09-20-2007, 08:00 AM

Lolly,
Taxotere and Herceptin did the trick for me before my surgery. I went weekly for 12 weeks and did fine. A little tired, but kept my weight up and maintained my daily life, to a point. No gourmet meals or dinner parties!
Best of luck and I will keep you in my prayers.
Emelie

mts · 09-21-2007, 10:44 AM

Lolly,

I just logged on to the website and was surprised to hear that your cocktail decided to whimp out on you !
You have always been such a great "responder" to everyone elses issues and I just want to let you know that I am thinking about you and sending you health vibes...

Please take care.

Maria (MTS)