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09-25-2012, 06:41 AM
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#1
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Member
Join Date: Apr 2012
Location: Norway
Posts: 7
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For er- pr - neg. When did period come back?
I had my last period in January this year. Finished chemo in May. I'm still waithing for my period to come back... Don't want to be in chemopause .... Im 39 years old. When did your periods return? (If they did)
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09-25-2012, 09:02 AM
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#2
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: For er- pr - neg. When did period come back?
Mine did - within 9 - 12 months after chemo. Sporadically, 1 a year, 2 a year, 3 a year, this year 5 periods. Heavy and one was 3 weeks long.
From my experience get regular checkups (annual is best) since breast cancer survivors have an increased risk of gynological cancer. Be aware of symptoms such as irregular periods, bloating, a sensation of fullness, frequent urination.
I did enjoy chemopause and being period free.
I just had an endometrial biopsy (all good) and a pelvic ultrasound (find out within a week) since I had symptoms.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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09-25-2012, 01:57 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: For er- pr - neg. When did period come back?
Mine did in 7 months
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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09-25-2012, 05:11 PM
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#4
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: For er- pr - neg. When did period come back?
Been over a year for me...but I don't miss it one bit! 
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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09-26-2012, 07:11 AM
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#5
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Member
Join Date: Apr 2012
Location: Norway
Posts: 7
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Re: For er- pr - neg. When did period come back?
It is not that I miss my periods, but I'm not to keen on this chemopause I'm in. I want hormones to go back to normal. I have vaginal dryness and I can't seem to loose any weight no matter what! I exhersise, I watch my diet, have been for months now, but the weight is still the same. As to the vaginal dryness I don't want my sexlife to end at the age of 39... My husband is understanding but I don't know for how long. We have tried oils and lube but it just does not do the trick 
The weight came on when I started taxotere and Herceptin. I'm seriously thinking about ending Herceptin treatment. I have 6 more rounds before I finish in February 2013....
I find this all very depressing..
__________________
<3 Kirsti
Diagnosed 10.26.11 with IDC Medullary Carcinoma, 2,2 cm, er- pr - her2 pos. 7/13 pos nodes. Stage 2b. Mx 11.8.11. Started FEC 100 x4 12.16.11. Then had 4x taxotere and Herceptin. 25 rads.
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09-27-2012, 01:33 PM
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#6
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Senior Member
Join Date: Jan 2010
Location: Wisconsin
Posts: 80
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Re: For er- pr - neg. When did period come back?
Hi there. I finished my chemo in April of 2010. I got my periods back in about January the following year. I've had them ever since, but they are not normal - off/on, light heavy....NOT fun!
__________________
Sandra from WI
Stage 1, Tumor 1.4 cm, Grade 3, ER-/PR-/HER2+++
Poorly Differentiated IDC with comedo type necrosis with DCIS/ALH :(
Mammogram: 11/12/09
Call Back Mammo: 11/17/09
Biopsy: 11/25/09
Diagnosis Call: 12/2/09
Partial MX: 12/16/09. 3 LN clean.
6 Cycles Chemo (TCH) Jan-April/10; Herceptin all of 2010; 33 Rads complete 7/10. Herceptin done 12/10.
FOLLOW UPS:
Bil mammo, and Breast MRI 12/10 - CLEAN! (after a second lump was biopsied and BENIGN - showed giant cell reaction?).
Bil mammo 6/11 - CLEAN!
Left mammo 12/11 - CLEAN!
PET/CT scan 4/6/12 - CLEAN!
Bil mammo 8/12 - CLEAN!
November 2012 - Gallbladder Removed.
Bil MRI 2/13 - CLEAN!
http://www.caringbridge.org/visit/sandragreen
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09-27-2012, 04:36 PM
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#7
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: For er- pr - neg. When did period come back?
I'm stage 4 and in continual treatment - just had a chemo break of about 8 weeks (started TDM1 last week) and got my period for the first time in 18 months yesterday! Go figure! (I'm 40)
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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09-27-2012, 05:29 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: For er- pr - neg. When did period come back?
Rava - mine returned about 6 - 9 months after the completion of chemo....I was 36. I hope it comes back for you. I was extremely irregular before cancer and have been on a 28 day cycle ever since with no break!!! Crazy!Hugs - Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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