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Old 08-26-2007, 08:11 PM   #1
anne2
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What to say when someone is losing their battle?

Hi Friends,
My mom's friend (and what I think is her guardian angel, because my mom would have never noticed her lump if it wasn't for her friend being dx with bc) is in hospice care. We are going to visit her and I don't know what words would comfort her. It is so unfair because she is going to leave behind her only child ( only 21). I am very upset, but would hope to provide her some comfort through the journey. Any wisdom would be helpful. The only thing I can bring her is a prayer book, to take comfort in God.
Please say a prayer for Cathy.
Anne
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Old 08-26-2007, 08:23 PM   #2
Faith in Him
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Anne,

I believe prayer is the most powerful thing that you could do for her right now. I know that when I first learned about my bc, I felt such a need to talk. I wanted reassurances from family that my children would be well taken care of should something happen to me.

We are all different but if she wants to talk, let her and be a good listener.

I will keep all of you in my prayers tonight.
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 08-27-2007, 10:36 AM   #3
mts
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I guess a lot depends on how religious she is...
My mother in law was not religious at all.
Before she passed away, I would bring her the most unique looking flowers, and sometimes, a new variety of Hibiscus (her favorite bloom). This way, she would still enjoy the latest looking hybrid and would give her something to look at and talk about. I would ask her where in her garden she wanted it...

She lived in a small town, so even the latest gossip on the local government was interesting to her.

I would also make frosting in her kitchen (from scratch, of course) and ask her opinion on the taste and consistency.

I went through her mother's recipe boxes and she would nix or approve some of them...

These may sound corney- but it gave her the power of providing her opinions on something new and old stuff -right at the very end.

I treated her as I always did... For me, I would not want anymore since anymore would be fake.

These "little things" gave me something to do without forcing any religious "framework" to her situation. We talked quite a bit- not superficial stuff, just normal stuff. Right towards the end, she wanted to be treated normally. The word dignity never came up, but was certainly expressed inmany ways.

I do recall the idiot across the street that never learned to turn off his sprinklers was talked about too!

Maria (MTS)
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Old 08-27-2007, 12:20 PM   #4
hutchibk
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I don't have much to offer, but I like what Faith and Maria have suggested... much love and prayers to you, your mom and your mom's friend.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 08-27-2007, 12:38 PM   #5
Sheila
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When my best friend was dying a month ago, I spent alot of time with her, we talked, laughed, cried, reminised about old times....I gave her hope and love, but also the understanding that it was OK to let go...even though it was so painful for everyone who loved her. My friend was not very religious...even though we spent 4 years together at a Catholic high school....so religion was not the ususal topic of conversation....I do remember one day I took a vial of Holy Oil of St. Peregrine , (the patron Saint of Cancer Patients) to bless her with...she looked at me as though I was doing some voo doo magic on her....it was more for my peace I guess than hers....I would say whatever you do, your Mom's friend will appreciate the time and gift odf love and caring.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-27-2007, 12:44 PM   #6
PinkGirl
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Hi
I recommend two very good books by Dr. Robert Buckman. One is called "Cancer is a Word not a Sentence", and the other is "I Don't Know What to Say". I can sort of paraphrase some of the info from the books:

- make yourself comfortable, take your coat off so your friend knows that you want to be there with her; try to act "at ease".

-it is more important to listen than to try and find the right thing to say. Always ask if the person wants to talk. Use techniques like nodding, smiling and repeating some of her words so she knows you are hearing her, understanding her and listening to her.

-always acknowledge the existence of her emotions - it's okay to say "this must be very hard for you" or "this is very sad".

-it's okay to be silent - just hold her hand and make eye contact.

-acknowledge humor if she is dealing with things that way

-end with a clear contract - "I'll see you on Friday" or "I'll call you next week".

Hope this helps somewhat. The jist of it was that there is no magical, profound thing to say. Just be there and listen.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 08-27-2007, 12:47 PM   #7
Barbara H.
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If you are able, I would suggest that you will be there as a support for her daughter. I have stage four cancer and my greatest concern is leaving my children. I have a child with special needs so she will depend on her parents as long as we live.
Best wishes,
Barbara H.
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Old 08-27-2007, 01:49 PM   #8
Audrey
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My mom has a good friend who is in hospice now and she told me that when she visits her, her friend always asks her to sing for her. So she sings whatever her friend wants to hear and sometimes her daughter plays the flute. Maybe you could offer the gift of music or sharing some other talent (read poetry, make a pillowcase with her picture on it for her only child, etc.)--As others have said, it's not so much what you say as it is just being there and showing that you care. (If she is religious, a book I've always cherished during difficult times is called "Streams in the Desert") Hope this is helpful.
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diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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Old 08-27-2007, 02:48 PM   #9
BonnieR
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I am trying to think what I would want if I was HER. I know, even at this very early stage that I am in, that people sometimes don't know what to say so I try to put them at ease by initiating "normal" conversations because I want to forget cancer for awhile. I want to talk about everday things. (I just got this insight by becoming a cancer patient myself. I used to be uncomfortable visiting someone who was terminallly ill.)
Conversely, it usually comes up naturally during the course of conversation when it is not forced.
It is "the elephant in the living room" that no one knows how to address sometimes.....but I would take my cues from her.....
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-27-2007, 03:35 PM   #10
Sherryg683
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My brother has had his melanoma return with a vengance in his liver and the prognosis is not good at all. When he calls or when I call him, we usually talk for about 3 hours. Most of it is about our common cancer and how no one really knows what it's like unless they're going through it. We talk about God and faith, sometimes about the fear of not having enough. We talk about cheerful things we did while growing up. A lot of the things he wants to talk about is repeated with every conversation but I still listen and act like I've never heard it before. I tell him out right that I don't know what to say or do to make it better for him, I can't. He's still very active and looks great and is not near to being in hospice but he knows what he is facing. As someone else said, I guess if my days were nearing end, I would want anyone who visited to bring me food, lots of good..fattening deserts and dishes that I have deprived myself of trying to keep my weight down. That probably sounds stupid but that's what I would want, that and uplifting coversation and also be let know that my children would be looked after and taken care of...sherryg683
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 08-27-2007, 05:24 PM   #11
Shad
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I agree with the advice about offering to help your mother's friend's daughter. You may also see if she has pets - she may appreciate an offer to help place the pets in good homes. If she is a pet-person, maybe bring a pet to visit her.
Shad
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Shad
Stage 1 invasive ductal carcinoma 1/06, two tumors <0.7 cm, unilateral mastectomy 2/06. E+, P+, HER2+
Sentinal node biopsy negative (but 2 abnormal cells seen subcapsule in the first node).
4 rounds of A/C, 1 year of Herceptin.
1/07 Started on Femara - severe lethargy
4/07 Switiched to Arimidex - doing OK
5/07 DIEP free flap reconstruction with tummy tuck!
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