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05-16-2009, 05:00 PM
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#21
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Thanks for all your wonderful thoughts and prayers.
I had the procedure Thursday and came home yesterday afternoon. I feel pretty good.
The procedure was an embolization of the pulmonary artery (similar technique to an angiography).
I was awake but sedated. I don't remember too much except the IR docs saying about nine times, Hold your breath, hold it, hold it, hold it, ... breath, while one of them was running behind the glass enclosure to take a still photo of the screens showing floroscopy highlighting my lung arteries and vessels. They used stainless steel coils to block the bulging sack in the lung vessel. It was in the area of the RFA (and prior wedge resection). The procedure took 2 hours. The IR docs said it went really well.
The bulging sack in the vessel appears to be the source of the bleeding. I haven't coughed up any blood in two weeks and hope it won't happen again. But I still have to take the anti-fungal mediation voriconazole because it appears the aspergilloma is still there. I'm scheduled for another CT scan at the end of June which both the pulmonologist who prescribed the meds and the IR guy will review to see how the lung is doing.
It seems that there's still no sign of cancer in the lung since the RFA in August. And that's the best part.
Love you all
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-17-2009, 06:37 AM
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#22
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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yeah!
Joan-
I am so glad it went well. I am sure it was stressful in the pre/post procedure times so I am glad your doctor was encouraging...and the best news is no sign of nasty cancer!
I was just about to post that I was thinking about you and got to the end of the string with your update. I hope you feel well and that the anti-fungal medicine is not unpleasant.
Thinking about you and sending you healing, peaceful thoughts!
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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05-17-2009, 09:56 AM
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#23
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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I am happy things went well and that there was no sign of cancer. I hope you are feling bettter soon.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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05-17-2009, 10:27 AM
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#24
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Joan,
I am sending you a big hug and I am joining the prayers to bring you wellbeing again.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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05-18-2009, 09:53 PM
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#25
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Joan, that is the best part. It must feel great saying that too, huh? I am pleased that everything went well for you during the procedure. Please let us know when these follow up dates get close so we can follow you through that too. I appreciate the description of the procedure as well. Stay well Sweet Love and rejoice in the fact that you got to the bottom of some things, will follow up on others...but especially (I'll say it with you) "No Signs Of Cancer!!">>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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05-19-2009, 03:19 PM
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#26
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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please keep us updated and sending lots of hugs, positive thoughts and prayers!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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