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03-15-2012, 03:37 PM
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#21
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: bad news again..
Good luck with the new trial. I hope you get the T DM1 you are hoping to get. Remember Petuzamab and the actual T DM1 are getting closer to approval day by day.
Enjoy the trip if you are able to go. It will be great to roam around Europe and re connect with old friends or meet some new ones. Everybody needs a vacation and a change of scenery once in awhile, including cancer patients !!
I am keeping my fingers crossed for your success.
Take good care of yourself.
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03-15-2012, 03:46 PM
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#22
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: bad news again..
I'm cheering for you too sweetie! I hope you get the TDM1 and that it knocks the cancer right out of you!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-15-2012, 06:41 PM
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#23
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: bad news again..
Hey, Beans, just saw this update and do not blame you one bit for being P. Off at Cancer! That said, I just feel there is something in the wings for you that will stabilize those lung mets. Maybe it's the TDM-1 trial or another one, but I just believe you will achieve NED again. Hang in there and I'd love to bum around Europe with ya in a van! Sounds like a blast. I think you will be able to do your Euro tour.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-15-2012, 09:07 PM
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#24
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Senior Member
Join Date: Sep 2011
Location: Lovington, New Mexico
Posts: 100
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Re: bad news again..
Great words from many who know! Onward! Thoughts and prayers and good vibes headed your way.
__________________
7/25/2011 Diagnosed DCIS and IDC on left from biopsy.
8/9/2011 Bilateral mastectomy
7mm clear margins Stage 1b, grade 3, 0/4 SLN ER- PR+ Her-2/neu +
9/19/2011 Started TCH every 3 weeks, TC for six cycles, Herceptin for 1 year
May all of your dreams bloom like daisies in the sun....
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03-16-2012, 06:19 AM
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#25
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: bad news again..
fullofbeans,
I am praying you get TDM1.
Amelia
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03-16-2012, 06:28 AM
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#26
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: bad news again..
Keeping my fingers crossed that you get TDM1 and that it knocks out those nodules.
Joan
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03-17-2012, 05:41 PM
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#27
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: bad news again..
I am hoping you do get on the TDM1 trial.
Hang in...you have come so far. I am sorry you have not recovered as you wish. The trip sounds perfect and keep those plans if you can.
Keeping you in prayer and thought.
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-18-2012, 10:31 AM
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#28
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Re: bad news again..
No one deserves that chance more than you, FOB.
AlaskaAngel
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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03-19-2012, 08:45 PM
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#29
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Senior Member
Join Date: Jul 2009
Location: New York
Posts: 106
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Re: bad news again..
I'm for the trip, the trial, and mainly behind you getting what you need to fight this. I am sending all of my positive thoughts and hopes to you.
__________________
Mammo 6/2/09
left breast biopsy 6/12/09
Bad news 6/18/09!
7/17/09 lumpectomy
Stage 1- 0.5 cm IDC , DCIS 25%
HER2 +++, ER+95%, PR+10%
8/09 Muga Scan 65
8/19/09 beg. TCH 1Xwk. 12 wks.
last chemo 11/26/09
IMRT - 33 txs. 1/12/10 to 3/11/10
Herceptin 1X week for 1 yr. Ends 8/10
Femara 3X wk. started 1/13/10-too much pain in middle finger; switched to Arimidex 4/28/10 -permanently swollen, but no pain. Will continue for 5 yrs.
10/2/11 CT/PET scan due to elevated CA27.29 of 40.5.
Hot spot in irradiated area. Score goes down again to normal range. Subsequent blood tests go up and down until 2 tests in row at elevated levels of 42.5 & 45.7.
7/9/11 Intermittent vertigo. As a precaution contrast MRI to head. NED.
8/15/11 Erratic CA27.29 may be result of new auto immune disease, bullous pemphigoid (skin problem)
Off Arimidex for 6 wks. to see if trigger finger improves
Switched to Aromasin, 3X wk., but affected my liver.
On 2/23/12 taken off AI's.
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