six weeks ...

hezzy · 08-30-2009, 06:20 PM

In the morning they were doing WBR, than later hitting three areas with the radiation. Now the six weeks of waiting begins ... its tearing me up already.

I did find a new ONC/DR that I'm meeting with on Tuesday. Also, I had met with the brain surgeon who told me that he wanted to talk to me more after I finished radiation. Im calling him tommorow for an appt.

During the time of getting rads I had pain in the knees and ankles and ended up in the hospital. They ran MRI and found the cancer had hit a vertebra. So they started radiation on that area too.
I prolly had confused people seeing during this time I was changing ONC/DR. The one I was seeing wants to see me at the end of this week to start chemo for the vertebra.
I talked to the ONC/RADS and let them know that I wouldn't be seeing the other ONC anymore and any of my information would need to be send to the other ONC and they completely understand and have been so nice. They've heard me going nuts for weeks worried and knew the ONC wouldnt even talk to me.

There still giving rads to the vertebra till friday and they have me on dexamethasone, morphine, lorazepam, and started on amox/clauv due to ears infection .... I can't wait to get off these meds ....
They told me it will be awhile before I can stop taking the steriods and that I will have to work off of them slowly. I feel like my face and neck are just swollen on them and tight.

Sorry for venting Im just lost there's so much going on this week and seeing the new ONC, she wants to discuss chemo for the vertebra ... it just ugh!!! Im going nuts waiting already and I just wonder are they worried more about the vertbra than the brain .... IDK were to ask or what to ask about any of it on Tuesday now Im lost again .....

ElaineM · 08-30-2009, 08:49 PM

I want to wish you the very best for your upcoming medical treatments and health care plans. Hang in there and keep putting one foot in front of the other. Take care.

Midwest Alice · 08-31-2009, 04:06 AM

Sounds like you are doing everything you can and you are making good decisions. There will be more treatment options if needed down the road. Praying for your mind to have some peace. Keep up your good fight.

Jackie07 · 08-31-2009, 06:53 PM

Hezzy,

Did you get another appontment made with the surgeon?

Glad you are taking actions on the vertebra situation. Take care and yes, just take it one day at a time, put one foot in front of the other... And remember we are here with you.

hezzy · 09-09-2009, 07:25 AM

The new ONC thought it would be best to wait for the results of the radiation and than set up an appt with the surgeon than. They told me about four more weeks and they will be doing an MRI, seems like forever to wait.
I continue herceptin and start Xeloda on Monday bit wrecked about it, so much going on.

Jackie07 · 09-09-2009, 05:35 PM

Many of our members have experiences on Xeloda. If you type in 'Xeloda' in the Search button, you can find postings on the subject. Take it easy, and I hope everything go smoothly.