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07-28-2007, 01:22 PM
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#21
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Senior Member
Join Date: Jul 2007
Location: Bakersfield, CA
Posts: 38
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Flori - that is too funny! My PS is Kulber as well. And I agree about Silberman, I checked around before my bilat because he doen not contact with insurance cos - after hearing of his reputation from other surgeons I decided to just go with him. I love his manner and support staff too.
11 yrs - wow! Did you do surgeries for the local recurrences? What is the normal protocol?
__________________
 Age 33 at dx - 9/15/06
L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely)
-AC DD, taxotere, taxol w/ herceptin
-Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes
Expanders in place
Pregnant when dx
Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3)
Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped
BRCA 1 positive
Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative
Currently on Xeloda and NED
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08-01-2007, 01:55 PM
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#22
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Senior Member
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
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Swanky,
I am so glad you joined this board. I am also from Bakersfield and as a matter of fact our husbands work together. I also work for some of your family members - The Holberts. When I read your post I recognized your story and had Faye look at your picture and she confirmed it was you. If you ever want to talk you can email me at sbrantley@atginternet.com or call me at the store.
Good luck with your new treatment.
Stephanie |
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08-01-2007, 02:06 PM
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#23
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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hi, swanky-
your supraclavicular nodes only puts you at stage IIIC, not 4. Welcome here, there is a wealth of knowledge, and your trial sounds interesting. Keep us posted - will you be having a treatment?
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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08-01-2007, 04:12 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: San Francisco Bay Area in California
Posts: 176
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Hi Swanky from JoJo
Hi Swanky,
I was originally diagnosed 3b in 2003 (3c in new rulings since '04 or '05 or '06??) I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!
Then I recurred to a supra node. I had it a good long while. Abraxane finally wiped it out. I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!
Then a brain met was picked up by a routine brain MRI. THAT, I knew, would indicate that I advanced to stage 4.
So far, my brain is clear....
Hang in there!!
__________________
Blessings & Peace,
~jojo~
1st Dx: May '03 at age 35
Stage 3b
6cm IDC tumor
17/18 + nodes
Neoadjuvant: 4x A/C dose dense; 12x weekly Taxol & weekly Herceptin
Left Mastectomy: Nov '03
27x Rads
Stage 4 since June '04
Still on maintenance Herceptin since the very beginning
Currently on Abraxane (3 weeks / 1 week off)
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08-01-2007, 07:15 PM
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#25
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Senior Member
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
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Hi Swanky,
I have 4 kids too, 14, 12, 10 and 8. My DX info is in my signature, and the speedy recurrence to my lymph nodes is similar to yours. At the time, my doctors agreed that I was stage IIIc but I got an upgrade halfway through chemo when they found some spots in my lungs. I wish the airlines were so quick to upgrade!
I was glad to be guided to this board by a friend in a yahoo group and find support here.
I think I managed to get my picture on the side by adding it as an avatar.
I love the brandname of your new pills and think it is very appropriate.
Keep kicking major you know what!
Best,
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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