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07-31-2007, 07:48 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Kate,
You are in my thoughts and I hope you receive a positive report. I've been there three years ago, and am still going strong. I'm therefore sure you will do well, either way.
Best wishes,
Barbara H.
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07-31-2007, 08:00 PM
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#22
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Kate,
I will be keeping you in my prayers. Keep those positive thoughts flowing.
Since a CT scan does not give the answers - I am thinking it is nothing
but a blimp....hopefully the MRI will give you the news we want to hear.
Hang in - the waiting is so very hard. But know you are loved.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-31-2007, 09:31 PM
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#23
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Kate, you are one of our leaders. So we are all in your band to keep the music upbeat.(I think I will play the clarinet). My prayers our going out to you. You are a dear person and we are here to help you during this waiting period. Thanks for keeping us up to date on your tests.
Love and hope to you, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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08-01-2007, 06:34 AM
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#24
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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MRI scheduled
Just got a call from my oncologist's office and my MRI is scheduled for Friday morning at 10:45am. I sure wish I could have gotten it today since I see my onc tomorrow when I get my chemo. Rest assured, I will have an in-depth conversation about the scan and exactly what did/did not show up and what she is thinking it may/may not be. I'm remaining positive and will keep you all posted. Thank you from the bottom of my heart for all your concern and support. You guys are the greatest!!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-01-2007, 09:30 AM
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#25
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Senior Member
Join Date: Jan 2007
Posts: 144
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Kate,
First, let me say that I have you in my heart, and my prayers as you wait this one out too. As for the brain scan, it could possibly be lesions that everyone has, but you don't know about them until you have an MRI. My daughter had one done because she gets migraines. The GP referred us to a neurologist and he said everyone has them. Not to worry. Put her on Topomax and she is good to go!
Hope and pray that yours is a simple as this too.
Keep the faith,
Emelie
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08-01-2007, 01:29 PM
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#26
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Kate I just saw your post and like everyone else here will be hoping like crazy it's nothing serious.I'm sorry you have this worry but stay strong!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-01-2007, 01:43 PM
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#27
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Good luck. God Bless. Hope it's not serious.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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08-01-2007, 02:15 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Kate-
I know this is such a tough time for you. Believe it or not, the brain MRI is easier to deal with than the lung mets. One thing at a time. Continue with the testing for the brain MRI, but focus on the treatment for the lungs. There are so many options out there, and you need to be aware of that. When I was first diagnosed with lung mets, I was devastated. My onc recommended xeloda, and I did the clinical trial with or without lapatinib(tykerb) and was thrilled to have it stabilize for nearly 18 months!!
Please keep us posted as to your news...
Kind regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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08-01-2007, 08:57 PM
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#29
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Used to think it was my worst nightmare
I just completed WBR 2 weeks ago. It was rough but doable. I am very much fatigued, but I'm getting better every day.
When I origionally had BC in 1991 I had a TIA which is like a mini stroke without the long term damage. I had so many tests to find out if I had brain mets. At the time I was told I'd have about 2 years to live with brain mets treated with WBR.
Things are so much different now. We are living many more years. Some of us have been given NED and are living wonderfull qualities of life. Any time the brain is involed is a scary thing. Just try hard to not freak yourself out till you know all the facts.
This has been hard for me, but it is no longer my worst nightmare, it's done.
I will pray for you, Kate. Blessings, Lu Ann
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