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11-15-2009, 01:36 AM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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How many of you have had a bone scan?
Out of curiosity how many here have had a bone scan? Not PET/CT, DEXA scan...but actually bone scan?
Thanks,
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-15-2009, 04:31 AM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How many of you have had a bone scan?
Hi Chelee
I have had two bone scans. My first was routine following diagnosis and my second was earlier this year around the time of my recurrence. On my second one they thought I had a suspicious area on my skull. Eventually it was seen by a specialist onc radiologist and was found to be related to cysts.
I have since asked my onc when I will have my next one. His reply was since I am having 6 monthly CT scans of chest, abdo and pelvis with bone windows the only if something turns up on this would he do a bone scan
Ellie
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11-15-2009, 06:02 AM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: How many of you have had a bone scan?
Chelee
I have had about 6 since being diagnosed....probably more so because of my fractured rib, but mostly they bone scans show degenerative joint disease and arthritic changes.....a nice way of saying, damn, she is getting old!
Hope this helps!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-15-2009, 08:02 AM
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#4
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Senior Member
Join Date: Sep 2007
Location: Dublin, Ohio
Posts: 29
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Re: How many of you have had a bone scan?
I've had a two bone scans - both were ordered by my onc when I had pain. Once in my hip and once when my collarbone became painful and swollen. Same answer both times - I'm getting older! And that's my goal.
__________________
Lori
Diagnosed 07/05, Stage 1
Extensive DCIS, .5 mm invasive
Mast
No nodes.
10/05 4 A/C & 1 yr of Herceptin
06 Proph Mast
Lat Flap Recon - failed on one side, replaced w/expander
NED
HER + 3, ER-, PR-
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11-15-2009, 09:08 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: How many of you have had a bone scan?
I have had several bone scans. Nothing remarkable...
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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11-15-2009, 09:18 AM
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#6
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Senior Member
Join Date: Jul 2006
Posts: 463
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Re: How many of you have had a bone scan?
Chelee,
It was part of the workup at my primary diagnosis. But I don't think you're asking about that, right?
Why do you ask? If you give us more details about what/why you're asking, you'll get more on-target responses I think.
Debbie L.
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11-15-2009, 09:36 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: How many of you have had a bone scan?
I had one bone scan upon diagnosis. My ankles light up due to a congenital condition (OCD) in the ankle compounded by a stress fracture due to running (yrs ago). I was not surprised by the light up and it was ruled an arthritic condition although I knew if was not.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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11-15-2009, 11:41 AM
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#8
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: How many of you have had a bone scan?
Had a bone denistity test about 1 year after chemo, is that what you mean. My bones were "very good." Just my slow and tired brain that needs help....Sunday morning humor.
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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11-15-2009, 12:05 PM
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#9
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: How many of you have had a bone scan?
I had a couple bone scans, but in my opinion they are not as reliable as MRI's and PET scans. Every time I had a bone scan I had to follow up with another kind of scan to find out what the area of concern was all about.
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11-15-2009, 12:49 PM
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#10
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Senior Member
Join Date: Oct 2005
Posts: 823
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Re: How many of you have had a bone scan?
I had a Bone Scan on my original DX. They had to inject me with a dye and then I waited a few hours and then came back and they scanned me head to foot.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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11-15-2009, 01:10 PM
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#11
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: How many of you have had a bone scan?
I had a bone scan at dx. I have only had CT scans after that. I was told that the ct does show some bone areas. If something shows up then we would do a bone scan. It is a relatively easy scan to do. Better than drinking the caulky stuff before ct and not as annoying as an MRI.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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11-15-2009, 01:37 PM
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#12
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: How many of you have had a bone scan?
If you are having this pre-op, it is probably for the surgeon to get as much information as possible.
I have had 3 bone scans so far, and 3 Dexa bone density scans.
The bone scans are easy, as is the DEXA. You lie on the table in a comfortable position and the camera moves over you slowly.
Anything slightly suspicious in my bone scans did not have correspondance on the CT or PET/CTs.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-15-2009, 01:38 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: How many of you have had a bone scan?
I had one right before starting chemo, and had one recently for back pain.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-15-2009, 02:32 PM
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#14
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: How many of you have had a bone scan?
Three I think. Ceesun
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11-15-2009, 02:54 PM
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#15
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: How many of you have had a bone scan?
Debbie, I just wanted to see how many of you had a bone scan because in the almost 4 yrs I've been dealing with this I've never had one? I've read alot of posts and it seems like everyone has had at least one bone scan since dx? (I was curious as to why I've never had one especially now that we know I've had mets to hips since day one.) I've had DEXA scans, PET/CTs, Brain MRI's...but never a bone scan?
I am having my first one Monday morning ordered by the Ortho doc that will be doing my femur surgery on the 18th? I told the Ortho I was concern about my right foot/ankle swelling for the last 6 or so months...and its painful. I had asked my onc if cancer travels to the ankle? She said it can...but that is SO RARE. Dr. Femino (Ortho) said it's NOT that rare. So he wants a head to toe bone scan. I was also curious because when I forced my onc to run the MRI which showed the mass on femur...she sent me over for an X-Ray of pelvis/femur. The techs over there ALL kept asking me where my bone scan was? I kept telling them I've never had one and they said I would of had to of in all this time with my dx. They were really having a fit over it.
So I just seriously just wanted to know if I was the only one that hasn't had a bone scan? So far everyone gave me exactly the answer I was looking for...right on target. So far it looks like everyone has had a bone scan or two. (I'm glad my onc is always looking out for me.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-15-2009, 04:02 PM
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#16
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: How many of you have had a bone scan?
Chelee,
I don't know if bone scans are standard at the time of dx. I do have a friend who presented as stage 3. She went through treatment and was later having knee pain. When her onc asked to see her bone scan he was astonished to find she never had one. The surgeon was supposed to order it. My surgeon ordered all my up front scans, including a bone scan since I was stage 3 after surgery.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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11-15-2009, 04:39 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: How many of you have had a bone scan?
I had one. When I told my onc. I had pain in my thigh for about a month, he ordered one. The bone scan was normal, although my onc. told me I had arthritis in my knees. I said "I do......? I have no pain at all." He said "Yes, you do....and then he chuckled and said ..... someday you'll feel it."
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-15-2009, 05:51 PM
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#18
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: How many of you have had a bone scan?
I had a bone scan at initial diagnosis. My assumption was that it was routine along with the CT scan to do initial stage diagnostic. I have not had a PET scan I guess since neither CT or bonescan revealed anything and my lymph nodes were not involved.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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11-15-2009, 06:18 PM
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#19
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: How many of you have had a bone scan?
Faith, It would seem to me since I was stage IIIA, Her2/neu, 3+++ right after surgery on 1-3-06...having a bone scan should of been one of the tests they had me do from the get go. Since that time I've had lots of bone pain and complaints. I requested a bone scan about 2 yrs ago due to scapula, lower back and hip pain that was abnormal for me. In hindsight and knowing my onc the way I do now...she didn't want me to have one because it MIGHT show potenial problems that would lead her to order more tests...which equals the cost of more expensive tests. (She figured I had a bad prognosis so why bother.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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11-15-2009, 06:23 PM
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#20
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: How many of you have had a bone scan?
Hi Chelee ~
I had one initially at diagnosis (I think within the first week) when they realized it was in my nodes. I haven't had one since but did have the other scans.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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