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Old 12-24-2011, 05:40 PM   #6
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Prophylactic Mastectomy?

I had bi-lateral with no reconstruction, too. I was really doubting my decision after the surgery but then the path report came back with atypical ductal hyperplasia throughout the left breast. My surgeon felt sure that I would have been back to her within 5-7 years doing this whole thing over again. Since I had major complications from both my chemo and radiation, I doubt I could handle it again at age 65 or 70. Glad I did it (but still have occasional pangs of missing having breasts - only have to look at my kids and grandkids to get over that pretty fast).
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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